Amyotrophic Lateral Sclerosis Association Reviews
It is more than disappointing that there has been no improvement since my 2011 review. In fact I would rate the 60% program expenses as deplorable. It is sad to see such poor performance as a client/ALS patient and fundraiser. For shame!
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Good mission, badly needed services for its clients made up of terminally ill ALS patients. Disappointing trend in all aspects and particularly in view of the superb performance of some of the chapters who are more successful in demonstrating responsible management and keeping patients at the center of their policies and practices. What is especially disturbing is that these well managed and rated chapters must send some of their hard earned revenue to the headquarters.
Unless there is significant improvement this organization does not deserve to continue as the national leadership/
i write this as a patient with ALS or, as it is also known, Lou Gehrig's disease. My servicing chapter has an excellent record.
I've personally experienced the results of this organization in...
I have had my own concerns with the leadership of the national headquarters leadership for the 6 years since I was diagnosed.
Ways to make it better...
If I had to make changes to this organization, I would...
Transparency, client centricity, accountability, none of which are nothing but basic requirements.