Oops! You must enter a search term greater than 3 characters.

Invite reviews

Invite friends and colleagues to share their experiences with this nonprofit
2 Reviews
12345
Previous | Next
Write A Review
September 14, 2012
3 people found this review helpful

more

Review from CharityNavigator
September 14, 2012
3 people found this review helpful

It is more than disappointing that there has been no improvement since my 2011 review. In fact I would rate the 60% program expenses as deplorable. It is sad to see such poor performance as a client/ALS patient and fundraiser. For shame!

More feedback...

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Unlikely

How do you feel you were treated by this organization?

Somewhat badly

When was your last experience with this nonprofit?

2012

April 17, 2011
2 people found this review helpful

more

Review from CharityNavigator
April 17, 2011
2 people found this review helpful

Good mission, badly needed services for its clients made up of terminally ill ALS patients. Disappointing trend in all aspects and particularly in view of the superb performance of some of the chapters who are more successful in demonstrating responsible management and keeping patients at the center of their policies and practices. What is especially disturbing is that these well managed and rated chapters must send some of their hard earned revenue to the headquarters.

Unless there is significant improvement this organization does not deserve to continue as the national leadership/

i write this as a patient with ALS or, as it is also known, Lou Gehrig's disease. My servicing chapter has an excellent record.

The Great!

I've personally experienced the results of this organization in...

I have had my own concerns with the leadership of the national headquarters leadership for the 6 years since I was diagnosed.

Ways to make it better...

If I had to make changes to this organization, I would...

Transparency, client centricity, accountability, none of which are nothing but basic requirements.

Previous | Next
Write A Review

Support This Nonprofit

Help this nonprofit get more reviews

5 tips for getting reviews

5 tips for getting reviews...

  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
  2. Putting a link on your Web site
  3. Including a link in your email newsletter
  4. Putting a link in the signature of your email
    Putting a link on your facebook page and status updates
  5. Tweeting out a link to your twitter followers