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June 22, 2011

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June 22, 2011

I was recently diagnosed with Meniere's disease and nocturnal tinnitus is one of my symptoms. While initially discouraged and seeking another diagnosis that would let me hope that it would be a temporary condition, I am starting to use coping skills I learnt through the ATA. I find them very helpful and always ready to answer to my questions. I just wish they had a local chapter in the Northeastern US.

The Great!

I've personally experienced the results of this organization in...

Their advise and connection to other sufferers on Facebook.

Ways to make it better...

If I had to make changes to this organization, I would...

Open new local branches, as the condition is more common than thought yet not disclosed by everyone.

June 16, 2011

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June 16, 2011

Let me start by saying that I have been suffering from Tinnitus for quite some time. When my audiologist told me that there was an organization who's sole purpose was to provide information and help for this affliction, I didn't waste any time in logging on to their website. From the first email a few years ago, the staff at ATA have been very helpful in answering questions and providing information on services and products that help in coping with tinnitus.
Something that sets this organization apart from most others is their uncanny ability to keep things personal. By that I mean that the ATA has always maintained a level of professionalism that one would expect from a non-profit organization, but they have always made me feel like they were a small, local group of professionals. They have been responsible for helping me in many ways, from info on relaxation techniques to help me get through the rough days, to obtaining my sound pillow which provides needed "white noise" to help me sleep better at night. They have fielded many phone calls and emails from me, helping me to find specialists in my area, give me info on current research projects, and linking me up with a support group that recently started up in my area (who knows how long I would have gone before discovering it on my own).
They are upfront about letting you know that, while there is not yet a cure, their ultimate goal is to find one.
The annual Tinnitus walk has been a great way for me to get the word out to others, and also do my small part in helping to raise funds for research.

Photos

The Great!

I've personally experienced the results of this organization in...

The wealth of information that ATA has provided, which has helped me to better understand and cope with my tinnitus.

Ways to make it better...

If I had to make changes to this organization, I would...

Be more aggressive in doing my part to let my senators/congressmen and other appropriate groups realize the importance of the ATA's mission. I believe funding is key, and I truly believe that the ATA is making the most out of every dollar to reach their goal, but the key to their ultimate success is to reach more people, and that requires funding.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

My audiologist

When was your last experience with this nonprofit?

2011

April 22, 2011

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April 22, 2011

My experience with the ATA has been a positive one.

I was diagnosed with Subjective Tinnitus in November of 2009. For the first three months, I felt completely isolated with my condition until I joined the ATA. I don’t regret one moment of that decision. Their support site has allowed me
to not feel alone in my struggle to cope with the noise in my head. Whether it’s been one month or 25 years, living with Tinnitus is never easy. It challenges us in ways that others cannot imagine. “It’s maddening”, as one friend quoted. Talking with others on the ATA support site has given me hope for the future. I’m most impressed with the people who work for the ATA. They consistently have a presence on the support site with updates on meetings and the latest news on research and tinnitus treatments. The staff has also been most accommodating to me with prompt responses related to any questions or concerns. It’s comforting to know that this organization is fighting for us every day. I’m proud to be a member of the American Tinnitus Association.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization within it's support group.

Ways to make it better...

If I had to make changes to this organization, I would...

If I had to make any changes to this support organization I would like to see the ATA get more celebrities to do public announcements for more awareness of Tinnitus.

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