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11 Reviews
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February 23, 2013
1 person found this review helpful

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Review from CharityNavigator
February 23, 2013
1 person found this review helpful

One could reasonably say that tinnitus isn't a terribly sexy condition and that tinnitus fundraising must be a tough job. And that's probably true. But although tinnitus won't kill you, it can make your life miserable and your mental health a wreck. I am a tinnitus sufferer and supporter and what ATA provides for me is support, ideas for products to help me manage my symptoms and notices about local tinnitus sufferers' meetings. I am proud to support their mission and their research for a cure.

More feedback...

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Likely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2013

June 22, 2011

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June 22, 2011

I was recently diagnosed with Meniere's disease and nocturnal tinnitus is one of my symptoms. While initially discouraged and seeking another diagnosis that would let me hope that it would be a temporary condition, I am starting to use coping skills I learnt through the ATA. I find them very helpful and always ready to answer to my questions. I just wish they had a local chapter in the Northeastern US.

The Great!

I've personally experienced the results of this organization in...

Their advise and connection to other sufferers on Facebook.

Ways to make it better...

If I had to make changes to this organization, I would...

Open new local branches, as the condition is more common than thought yet not disclosed by everyone.

June 16, 2011

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June 16, 2011

Let me start by saying that I have been suffering from Tinnitus for quite some time. When my audiologist told me that there was an organization who's sole purpose was to provide information and help for this affliction, I didn't waste any time in logging on to their website. From the first email a few years ago, the staff at ATA have been very helpful in answering questions and providing information on services and products that help in coping with tinnitus.
Something that sets this organization apart from most others is their uncanny ability to keep things personal. By that I mean that the ATA has always maintained a level of professionalism that one would expect from a non-profit organization, but they have always made me feel like they were a small, local group of professionals. They have been responsible for helping me in many ways, from info on relaxation techniques to help me get through the rough days, to obtaining my sound pillow which provides needed "white noise" to help me sleep better at night. They have fielded many phone calls and emails from me, helping me to find specialists in my area, give me info on current research projects, and linking me up with a support group that recently started up in my area (who knows how long I would have gone before discovering it on my own).
They are upfront about letting you know that, while there is not yet a cure, their ultimate goal is to find one.
The annual Tinnitus walk has been a great way for me to get the word out to others, and also do my small part in helping to raise funds for research.

Photos

The Great!

I've personally experienced the results of this organization in...

The wealth of information that ATA has provided, which has helped me to better understand and cope with my tinnitus.

Ways to make it better...

If I had to make changes to this organization, I would...

Be more aggressive in doing my part to let my senators/congressmen and other appropriate groups realize the importance of the ATA's mission. I believe funding is key, and I truly believe that the ATA is making the most out of every dollar to reach their goal, but the key to their ultimate success is to reach more people, and that requires funding.

More feedback...

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

How did you learn about this organization?

My audiologist

When was your last experience with this nonprofit?

2011

June 15, 2011

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June 15, 2011

I have served as a board member of the American Tinnitus Association, and currently help as a volunteer. I have always respected how the staff and directors of this organization realized that the old mission of being an information and support organization had been superceded by the advent of the internet, so the organization was retooled from the ground up to pursue the ultimate mission for a health-related organization -- to cure tinnitus. The ATA devised its "Roadmap to a Cure" to show the scientific pathway we intended to follow. It overhauled its website to focus on raising funds and other resources for tinnitus research. And the ATA did these things without losing the communication and compassion skills that have made this organization the lifeline for many people suffering from tinnitus. The ATA leverages its staff to fulfill many functions at the same time. Through skillful planning and preparation, volunteer efforts are channeled into the most productive avenues -- for example, the Advocacy department first was the prime mover to encourage research by the Dept. of Defense into tinnitus, and then allowed for volunteers such as myself to offer our services as unpaid consultants to the DoD on funding research proposals. Finally, the ATA is a good steward of donations -- they make a budget and stick to it, and never lose focus on the organization's mission in the process.

The Great!

I've personally experienced the results of this organization in...

Astute use of my donated money; advice on tinnitus treatments; recommendations for tinnitus health providers in my location.

Ways to make it better...

If I had to make changes to this organization, I would...

Research proposals are reviewed by a select Scientific Advisory Committee of tinnitus researchers, and approved by the board of directors. The process of scientific investigation of finding cures for diseases may itself be subject to review, to see if there are new ways to accelerate research toward specific targets -- and as it turns out, this is something that most health-research organizations are looking at.

June 9, 2011

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June 9, 2011

As the husband of a severe tinnitus sufferer, I can attest to how difficult this affliction can be. Like many millions of other sufferers, my wife struggles each day to live a normal life despite the persistent noise that only she can hear. As maddening as the noise can be, it's equally maddening we know so little about how to silence it. The American Tinnitus Association is one of the few entities that gives hope to tinnitus sufferers and their families. They are advancing research into cures and enlightening policy makers in Washington, D.C. Importantly, ATA also raises awareness about tinnitus among the general public and they provide forums where those suffering from it can gather to discuss treatments and coping mechanisms.

The Great!

I've personally experienced the results of this organization in...

My wife and I have been able to get very thoughtful and helpful information from ATA. Though they're immersed in the science of tinnitus, they undestand that each sufferer is a person with thoughts and feelings.

Ways to make it better...

If I had to make changes to this organization, I would...

Significantly increase its funding. Tinnitus is becoming a national epidemic, thanks in large part to the many thousands of veterans who are leaving the theatre of war with permanent hearing damage. The full weight of the United States government should be behind ATA and the effort to understand and mitigate the myriad causes of tinnitus.

More feedback...

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

My wife's experience as a tinnitus sufferer.

Why did you make your donation at this time?

It coincides with the ATA annual walk in Portland, Oregon.

What would you tell others about this organization?

Our best chance of solving the problem of tinnitus is to support the ATA.

When was your last experience with this nonprofit?

2011

June 7, 2011

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June 7, 2011

The ATA has been there when I have needed them in the past. I first ran across them online when I was searching for info about my tinnitus, and then followed up with them for more information. They sent a great info packet and I did wind up sending in my membership money. I figured it was a pretty good deal, and I was right! I have been happy with the magazine (Tinnitus Today) and get some good email updates as well. I am hoping that our support will lead to a cure soon, and the research that the ATA funds (and helps get the Gov't to fund!) seems to be getting closer and closer. I hope to one day be able to enjoy "silence" again.

The Great!

I've personally experienced the results of this organization in...

Please see my review above. The ATA has been a very easy organization to work with and to get help from!

Ways to make it better...

If I had to make changes to this organization, I would...

I would give them more money! But sadly, I can't afford to. But I do think that with more money they would be able to direct more research towards the search for a cure for tinnitus. I think their only limitations are based on funding.

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

online, at www.ata.org

What, if any, change in your life has this group encouraged?

To take things one day at a time, and to not give up hope for a cure!

When was your last experience with this nonprofit?

2011

June 3, 2011

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June 3, 2011

The ATA fiercely advocates for increased public awareness of tinnitus suffering and provides resources and quality information for those that seek help for their tinnitus. I am impressed by the dedication from this organization in raising the bar for funding of top quality research towards finding a cure. They provide essential support and advocacy on an individual, local, and national basis. Support for the tinnitus community is unparalleled.

The Great!

I've personally experienced the results of this organization in...

Our most recent fundraising activity, the Walk to Silence Tinnitus directly funded five research grants. See www.ata.org/research/ata-funded for more information describing these grants.

Ways to make it better...

If I had to make changes to this organization, I would...

Like to see broader support from the medical community towards the ATA.

More feedback...

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

What is unique about this organization?

Their ability to make a positive change in the lives of tinnitus sufferers as well as others who are affected in any way by tinnitus.

When was your last experience with this nonprofit?

2011

June 1, 2011

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June 1, 2011

I first developed Tinnitus 11 years ago. It came on quickly and I sought medical treatment from my ENT doctor within the week. Following an exam, I was told that my ears are fine and that I had something called Tinnitus. I knew nothing about Tinnitus and asked what couldbe done for it. I was told nothing, I was told to go home and live with it. I paniced at the thought of living with this sound intrution 24x7, 365 days a year. I was in great dispair and became very anxious and depressed. I frantically search the web for a magic elixer or therapy to stop the ringing. I ran across the ATA website and they had a support line which I called. I explained my situation to the support person and she could sense the panic in my voice. She started by reassuring me that things could be done to alleviate the symptoms and she also told me that they were working hard with researchers all around the world to solve this problem. She did not offer me a cure but she did offer me hope. And hope is a powerful thing for someone at the end of their rope. With the help of the ATS, I've learn to live with my Tinnitus and utilitze many of the coping techniques suggested by them. Had it not been for me stumbling across there website 11 years ago, I'm not sure the story would have ended so well. I'm a big advocate of the ATA, they do very important work.

Photos

The Great!

I've personally experienced the results of this organization in...

Saint Louis with the St. Louis chapter of a ATA support group.

Ways to make it better...

If I had to make changes to this organization, I would...

Lobby the American Medical Association (AMA) to educate thier member (doctors) to refer their patients afflicted with Tinnitus to the ATA.

More feedback...

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

Web

What, if any, change in your life has this group encouraged?

They helped enable me get back to my "normally functioning" self.

When was your last experience with this nonprofit?

2011

June 1, 2011

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June 1, 2011

The American Tinnitus Association has been a lifesaver for hundreds of people over the years. Tinnitus can be a devastating malady for those who suffer with it day and night. A good analogy for what tinnitus may be like for some is to strap an electric hair dryer to your head and turn it on and leave it there for the remainder of your life. Sounds unpleasant. It is. I have had tinnitus for 18 years and it changed my life. I look forward to the day when a cure is found. ATA is funding research projects every year. It takes money to fund these projects and that is where the public needs to help. If you can spare a few dollars, or many, go to www.ata.org and contribute. Almost 50% of soldiers are coming back from the wars with tinnitus... they need your help too.

The Great!

I've personally experienced the results of this organization in...

When I got tinnitus I turned to the American Tinnitus Association for help. I spoke to staff members about my condition and they were very helpful. I became very interested in the organization and joined the board.

Ways to make it better...

If I had to make changes to this organization, I would...

I only wish that more people knew about the American Tinnitus Association and would contribute to help fund research.

April 22, 2011

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April 22, 2011

My experience with the ATA has been a positive one.

I was diagnosed with Subjective Tinnitus in November of 2009. For the first three months, I felt completely isolated with my condition until I joined the ATA. I don’t regret one moment of that decision. Their support site has allowed me
to not feel alone in my struggle to cope with the noise in my head. Whether it’s been one month or 25 years, living with Tinnitus is never easy. It challenges us in ways that others cannot imagine. “It’s maddening”, as one friend quoted. Talking with others on the ATA support site has given me hope for the future. I’m most impressed with the people who work for the ATA. They consistently have a presence on the support site with updates on meetings and the latest news on research and tinnitus treatments. The staff has also been most accommodating to me with prompt responses related to any questions or concerns. It’s comforting to know that this organization is fighting for us every day. I’m proud to be a member of the American Tinnitus Association.

The Great!

I've personally experienced the results of this organization in...

I've personally experienced the results of this organization within it's support group.

Ways to make it better...

If I had to make changes to this organization, I would...

If I had to make any changes to this support organization I would like to see the ATA get more celebrities to do public announcements for more awareness of Tinnitus.

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