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52 Reviews
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December 25, 2013

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December 25, 2013

If receiving a Bladder Cancer diagnosis, people jump to the internet only to find random, confusing, and frightening information, but no individual help. The "been there/done that" caregivers and survivors at ABLCS welcome you into a friendly environment as a person, providing excellent information, input, and support. Lurkers to the forum often spot others with similar situations, and sensible questions. Many join in to participate. Each one contributes a valuable piece of information that could help others better understand and deal with Bladder Cancer. It's an unfortunate, long term commitment when one joins the "B-C Club". Finding the ABLCS forum provided the communication not found elsewhere. Thanks.

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How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

November 30, 2013

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November 30, 2013

My hospital and my Doctor were not helpful in aiding me to adjust to the bag. Dealing with the issues about the bag were driving me nuts. Several others here were also out of surgery and were Huge help with my problems. Realizing the stress that can come from surgery, I now try to be informative for new folks. It's also important to point out to others that cancer IS NOT terminal.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

November 19, 2013

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November 19, 2013

This site has kept me from loosing my mind through my seven or eight years of going through surgeries and checkups. they would talk to me and support me in hard times and celibrate the good times. I don't know what I would have done without my friends at ABLCS.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

November 8, 2013

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November 8, 2013

This is the only website that has made me feel so loved and supported, instead of just a place to vent and get info. Best forums and blogs ever! Sail on, ABCLS!

Ways to make it better...

If I had to make changes to this organization, I would...

Make it easier to find dates on posts. Sometimes they are in old to new order, sometimes not.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

October 18, 2013

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October 18, 2013

This is such a wonderful place to learn all about this cancer, my husband was diagnosed in Dec. 2012, had a radical cystectomy May 2013 , We had no knowledge of this cancer except that it was fast acting in my husband, with this site and information and stories from others I felt much more informed, our regular MD had no information on this as he had never had a patient with this type of cancer before. Our new Doctor at UofC informed us of this site, and what a help it has been.

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

October 18, 2013

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October 18, 2013

Found out my Dad has bladder cancer. This site has been wonderful. Thank You.

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Will you volunteer or donate to this organization?

Unsure

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

August 3, 2010

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August 3, 2010

In May of 2010, my husband and I were given the shock of our lives. We were told my husband had Bladder Cancer. Not much of a warning to prepare for such a blow in life. Some blood in the urine and then pow, hit in the face with a cancer diagnosis. Despite us both being health care professionals, the diagnosis hit us both extremely hard. We knew we were going to have to learn a lot in a relatively short period of time, if we were going to help increase his odds of survival. Aside the quick bits and pieces of information we were given during a doctors appointment, where else could we go? We had some of the basics down, but we wanted to talk to real people who faced the same situations. We needed updated abstracts and data about Bladder Cancer. We were still in shock. We desperately needed guidance. Shortly after taking to intense research on the Internet, I was fortunate to find a link to the American Bladder Cancer Forum. ABLCS. We no sooner logged on to the ABLCS site when we were greeted by many wonderful and knowledgeable people who were willing to help us. The compassion and knowledge from the members at ABLCS was overwhelming in a positive way. They all knew the words to say; first encouraging us to take a deep breath. Oh yes, something as simple as breathing, a situation people often forget to do when given a serious diagnosis such as cancer. One at a time, the ABLCS members began delivering us the answers about what steps we needed to take in an effort to help save my husbands life. One of ABLCS long standing members named Patricia, was like a walking encyclopedia with regard to her knowledge about Bladder Cancer. She was our Guardian Angel. She not only helped us through the steps, but knew the top docs and hospitals in the country who would be best to help us. Never once did she make us feel like we were taking up her time. When one faces such a diagnosis as cancer, it feels like you are caught in the middle of a tornado and you have no idea where it will toss you when it is done spinning. I am here to tell you that ABLCS is there to catch you when you are tossed to the ground. The organization provides, at no charge to its members, updated bladder cancer information and articles, facts about bladder cancer, and on going daily testimony from survivors and caregivers. The information is there for members to retrieve 24 hours a day, 7 days per week. On Sunday evenings there is a LIVE chat line for members. We would not have known what to have done with my husbands Bladder Cancer diagnosis if it were not for ABLCS. It is a non profit organization that empowers each of the members with education. ABLCS is constantly pioneering the way to locate updated information about treatments and cures for Bladder Cancer. The goal, to educate those of us diagnosed with an overpowering disease. No member is ever denied help from ABLCS. It is an organization dedicated to serving Bladder Cancer patients from everywhere in the world. For that, we are grateful.

The Great!

I've personally experienced the results of this organization in...

n/a

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What I've enjoyed the most about my experience with this nonprofit is...

Meeting people whi have the same medical situations as ours.

The kinds of staff and volunteers that I met were...

Professional, educated and helpful.

If this organization had 10 million bucks, it could...

Continue to work for the betterment of society with regard to education and cures for Bladder Cancer.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 6, 2010

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July 6, 2010

ABLCS I came across this site by chance when I was initially diagnosed with BC & what a help it has been to me & many many others. When you are feeling at your most vunerable & totally confused as to which questions to ask, which way to go, this site has wonderful kind knowlegable people who have experinced the same & much more. It was a godsend to me & I continue to keep in touch for information & support. Thank you ABLCS !!

The Great!

I've personally experienced the results of this organization in...

continually needing the information & support provided

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

June 26, 2010

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June 26, 2010

I found out I had bladder cancer late in 2008. I had the tumor removed and started my BCG treatments. After my 4th treatment, I had a severe reaction and it affected my joints and eyes. I tried to talk with the doctors but they were unaware of what to do. I came across The American Bladder Cancer Society website and can't begin to tell you the help I received. Many expressed that they too have had these kind of symptons and they all helped me everyday until I was on the road to recovery. I don't know what I would do without their help - I go to the website almost daily. I constantly find out new information on bladder cancer, plus learn the experience of all of the people who are going through it. This site has been my constant, and when you are facing cancer that is very important. Thank you for your time. Bobbi Berg

The Great!

I've personally experienced the results of this organization in...

My peace of mind. It has been a world of knowlege and friendship.

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How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

June 26, 2010

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June 26, 2010

This is a great group of people. They've really helped me and others. I've asked questions and had very helpful answers and I've also been to their website forum and just reading the posts and the advice have given me hope for my father. They have helped eliviate fear of what was the unknown and helped us in asking the right questions of his doctor. They have been an invaluable source of support and information for us. ABCS has probably saved many lives in encouraging second opinions and directing people to qualified cancer centers/doctors in areas all over the US.

The Great!

I've personally experienced the results of this organization in...

peace of mind and knowledge from them personally and the stories of people they have helped and/or encouraged. I have learned so much from them.

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What I've enjoyed the most about my experience with this nonprofit is...

Talking with everyone, getting information. It's nice to be able to talk with a group of people who will give you answers and complete honesty.

The kinds of staff and volunteers that I met were...

very knowledgeble and helpful

If this organization had 10 million bucks, it could...

Help so many people out there feeling lost and helpless.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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