When I was diagnosed with advanced invasive bladder cancer in 2007, I was fortunate to find the American Bladder Cancer Society. Not only was the site loaded with current information on every aspect of the disease and treatments, but I was also welcomed by a group of others at various stages of their treatment path. I am a grateful survivor thanks in part to the guidance of this website.
I discovered this site and the ABLCS when I was first diagnosed with bladder cancer and it provided not only a wealth of information and links to resources but also much mutual support from others going through similar experiences.
Found out I had Bladder Cancer in 2006, laser surgery twice, BCG treatment, cancer returned in 2007 more laser surgery...just a whirlwind of emotions, pain, confusion and since it 'wasn't considered one of the more serious cancers' , there wasn't a lot of information. In Dec. 2007 had 12 hrs. of surgery with complete bladder removal, rebuilt my bladder using part of my small intestine "Neo-Bladder", removed my prostrate, removed several masses. Wish there had been a site like this for myself and my family to utilize because we basically had to rely on technical medical documents and other scattered sources. This site is very valuable to those who discover that they have Bladder Cancer. I volunteer at a local hospital with a cancer treatment center/oncology clinic/Women's Breast Heath Center. I wear my survivor's pin and talk freely about my cancer what I had done, and stress the need to do the research on sites like The American Bladder Cancer Society.
This site has made my life much easier dealing with cancer. It is often hard to talk to family due to the fact you know they hurt for you. Talking to people with the same issues and getting information recieved has been amazing.. I am a 28 year old female that has survied this with a two year old boy... Trust me!!! Great place... I would love more awareness on bladder cancer out there,
If it is possible I would give the American Bladder Cancer Society a MILLION STARS!!!!!!!!!!!!!!!!!!! My husband, Steve, was diagnosed with Bladder Cancer in July, 2006, his was high grade w/CIS and if it wasn't for this site I would have totally lost it. The information provided was invaluable to us and the forum is beyond fantastic!!! Even though some of the members are going through the unthinkable in regard to Bladder Cancer either with themselves or with family members, they are beyond generous with their knowledge, support and a listening ear. We mainly lurk but I did post my husbands story on the forum in hopes of giving hope to someone who is where we were in terms of grasping what's has happened. Thank God Steve has been cancer free for 7 years now!
This site is very helpful thank you! I searched high and low for support and eventually found you. I have a lot of questions and fears. My Dad has stageIV bladder cancer and I need this forum to help me understand what he may be going through and what ways I can help. And I need advice on how to deal with my feelings. I'm glad I'm here. I think the forums and Sunday chat. Will help a lot.
In 2006, when I was diagnosed with bladder cancer, not many people had ever heard of a female in her 30's having bladder cancer. That included my doctors at MD Anderson! While researching bladder cancer on the internet, I came across ABLCS. I was immediately welcomed to the group and many came forward to both help me understand what I was dealing with and provide unwavering support and encouragement. To this day, when I have questions, I return to my friends at ABLCS for answers. I have even sent my doctors to the site for additional information about treating a patient with a neobladder. Without a doubt, I would have been completely lost and alone during my cancer treatment had I not been fortunate enough to stumble upon this wonderful resource.
I found this web site perhaps two years ago and log on at least weekly. Not only do the members here support each other, they contribute a world of information. If it wasn't for this organization, many of us (including myself) would remain ignorant of our disease. This site has enable me to make educated decisions when it came to the treatments and diagnostic tests. By coming here and supporting others, I have also gained unmeasurable emotional support.
I had bladder cancer for 5 years and came to a point where nothing was working and the cancer was advancing. I was extremely upset and confused about having a total Cystectomy. I found this web site and was able to confer with others going through the same thing. The comfort of talking with others and the information I got from this site was so helpful. My recovery and anxiety over this procedure was greatly reduced due to the selfless sharing, caring and information I received here. God Bless ABLCS Rudy Zitti