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52 Reviews
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November 25, 2013

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November 25, 2013

When I was diagnosed with advanced invasive bladder cancer in 2007, I was fortunate to find the American Bladder Cancer Society. Not only was the site loaded with current information on every aspect of the disease and treatments, but I was also welcomed by a group of others at various stages of their treatment path. I am a grateful survivor thanks in part to the guidance of this website.

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 24, 2013

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October 24, 2013

I discovered this site and the ABLCS when I was first diagnosed with bladder cancer and it provided not only a wealth of information and links to resources but also much mutual support from others going through similar experiences.

Ways to make it better...

If I had to make changes to this organization, I would...

Try to make more people aware of it since it's so helpful.

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 18, 2013

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October 18, 2013

Found out I had Bladder Cancer in 2006, laser surgery twice, BCG treatment, cancer returned in 2007 more laser surgery...just a whirlwind of emotions, pain, confusion and since it 'wasn't considered one of the more serious cancers' , there wasn't a lot of information. In Dec. 2007 had 12 hrs. of surgery with complete bladder removal, rebuilt my bladder using part of my small intestine "Neo-Bladder", removed my prostrate, removed several masses. Wish there had been a site like this for myself and my family to utilize because we basically had to rely on technical medical documents and other scattered sources. This site is very valuable to those who discover that they have Bladder Cancer. I volunteer at a local hospital with a cancer treatment center/oncology clinic/Women's Breast Heath Center. I wear my survivor's pin and talk freely about my cancer what I had done, and stress the need to do the research on sites like The American Bladder Cancer Society.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing really...I think that it is such a good idea to have sites like this out there for people to utilize. In my brief experience is that there is little that can be done for the elderly who are not computer literate, other than to tell them to have a family member assist them in doing the research.

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How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 18, 2013

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October 18, 2013

This site has made my life much easier dealing with cancer. It is often hard to talk to family due to the fact you know they hurt for you. Talking to people with the same issues and getting information recieved has been amazing.. I am a 28 year old female that has survied this with a two year old boy... Trust me!!! Great place... I would love more awareness on bladder cancer out there,

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How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

October 18, 2013

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October 18, 2013

Amazing nonprofit!! Such a great resource for those of us diagnosed, for the families and friends and for the general public to get all the information they need!! If I could give more than a 5 star rating, I surely would!!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

September 5, 2013

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September 5, 2013

If it is possible I would give the American Bladder Cancer Society a MILLION STARS!!!!!!!!!!!!!!!!!!! My husband, Steve, was diagnosed with Bladder Cancer in July, 2006, his was high grade w/CIS and if it wasn't for this site I would have totally lost it. The information provided was invaluable to us and the forum is beyond fantastic!!! Even though some of the members are going through the unthinkable in regard to Bladder Cancer either with themselves or with family members, they are beyond generous with their knowledge, support and a listening ear. We mainly lurk but I did post my husbands story on the forum in hopes of giving hope to someone who is where we were in terms of grasping what's has happened. Thank God Steve has been cancer free for 7 years now!

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing, this organizing goes above and beyond!!!!!!!

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How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

May 23, 2013

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May 23, 2013

This site is very helpful thank you! I searched high and low for support and eventually found you. I have a lot of questions and fears. My Dad has stageIV bladder cancer and I need this forum to help me understand what he may be going through and what ways I can help. And I need advice on how to deal with my feelings. I'm glad I'm here. I think the forums and Sunday chat. Will help a lot.

Ways to make it better...

If I had to make changes to this organization, I would...

Nothing

More feedback...

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

August 3, 2010
1 person found this review helpful

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August 3, 2010
1 person found this review helpful

In 2006, when I was diagnosed with bladder cancer, not many people had ever heard of a female in her 30's having bladder cancer. That included my doctors at MD Anderson! While researching bladder cancer on the internet, I came across ABLCS. I was immediately welcomed to the group and many came forward to both help me understand what I was dealing with and provide unwavering support and encouragement. To this day, when I have questions, I return to my friends at ABLCS for answers. I have even sent my doctors to the site for additional information about treating a patient with a neobladder. Without a doubt, I would have been completely lost and alone during my cancer treatment had I not been fortunate enough to stumble upon this wonderful resource.

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The Great!

I've personally experienced the results of this organization in...

I believe I covered this topic above...

Ways to make it better...

If I had to make changes to this organization, I would...

Continue to work on growing the awareness of the organization, which is currently underway.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

ABLCS provided hope, companionship and answers from others who had or were experiencing the same cancer diagnosis and treatments.

The kinds of staff and volunteers that I met were...

Incredibly supportive and willing to share absolutely anything! The urinary and reproductive systems are not always the easiest to discuss with total strangers.

If this organization had 10 million bucks, it could...

1) Help get the message out that Bladder Cancer is the 5th most common cancer. If caught and treated early, the chances of survival are very high! 2)Help eliminate the stigma associated with cancer of the "private parts"! 3) Help more people!

Ways to make it better...

I didn't have cancer? Seriously, I can't think of anything!

In my opinion, the biggest challenges facing this organization are...

1) Funding. It takes funds to launch a campaign to teach people about bladder cancer. 2) The stigma associated with this disease

One thing I'd also say is that...

This organization has made incredible strides in the amount of time they have been in existence.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

July 22, 2010
1 person found this review helpful

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July 22, 2010
1 person found this review helpful

I found this web site perhaps two years ago and log on at least weekly. Not only do the members here support each other, they contribute a world of information. If it wasn't for this organization, many of us (including myself) would remain ignorant of our disease. This site has enable me to make educated decisions when it came to the treatments and diagnostic tests. By coming here and supporting others, I have also gained unmeasurable emotional support.

The Great!

I've personally experienced the results of this organization in...

As mentioned above, it has become my one source of information and support for my disease.

Ways to make it better...

If I had to make changes to this organization, I would...

Get Urologist office to provide information to their patients about this organization and its website

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

the education and support I have received

The kinds of staff and volunteers that I met were...

very knowledgeable and supportive

If this organization had 10 million bucks, it could...

contribute more the the research of the disease

Ways to make it better...

I had found the organization earlier

In my opinion, the biggest challenges facing this organization are...

growing so more individuals know of the great work they do.

One thing I'd also say is that...

I can't say enough positive things about this organization

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

July 2, 2010

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July 2, 2010

I had bladder cancer for 5 years and came to a point where nothing was working and the cancer was advancing. I was extremely upset and confused about having a total Cystectomy. I found this web site and was able to confer with others going through the same thing. The comfort of talking with others and the information I got from this site was so helpful. My recovery and anxiety over this procedure was greatly reduced due to the selfless sharing, caring and information I received here. God Bless ABLCS Rudy Zitti

The Great!

I've personally experienced the results of this organization in...

Having to undergo a Radical Cystectomy

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How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

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