American Bladder Cancer Society Inc
Invite reviews
Since the change in doctors, I have realized that I should have gone to this new doctor in the first place. Having a serious disease like T1G3 bladder cancer, I should have been at a major teaching hospital. Also, I am now seeing personal experience of others who faced the same difficult choices I am now facing. I will likely face bladder removal and the American Bladder Cancer Society has put much information on the various options for me to explore. I am very thankful for this very valuable resource.
The Great!
I've personally experienced the results of this organization in...
1. I was shown I needed more experience than that of my former urologist. 2. I am seeing personal experiences of others with my disease. 3. So much information I need to make important choices in the very near future is available and is really helping me.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
Getting first hand experience from others dealing with my disease.
The kinds of staff and volunteers that I met were...
Doctors, nurses, ordinary people.
If this organization had 10 million bucks, it could...
Promote bladder cancer as a disease that needs much more funding for advancing treating the disease. Bladder cancer is relatively unknown among cancer types and doesn't receive the attention it needs.
How frequently have you been involved with the organization?
About every month
When was your last experience with this nonprofit?
2010
I came to this site, totally confused and upset because I had just been diagnosed with bladder cancer. It is supposedly a disease of smoking males, and I am a non-smoking female! I was absolultely panicked. The web site of the American Bladder Cancer Society has a wealth of vetted information available. However, the most valuable, to me, is the almost immediate help available from volunteers/members when you have issues or questions. Both via an email link and, especially the Forum, other members who have "been there -- done that" are ready to share their experiences and (non-medical) advice. I am now 2.5 years from diagnosis and am a volunteer myself. I participate on the Forum and have spoken to numerous people on the telephone. They are confused and very worried. I, and other members of the ABCS, are able to help them calm down and assess their situation, and realize that there IS hope and excellent treatment options are available. One of the most valuable services we provide is a comprehensive list of cancer centers and hospitals which specialize in the treatment of bladder cancer. I don't know what I would have done after my initial diagnosis without this wonderful group of caring volunteers.
The Great!
I've personally experienced the results of this organization in...
Please see my detailed, and perhaps incoherent, discussion above.
More feedback...
What I've enjoyed the most about my experience with this nonprofit is...
The ready friendship with others in "the same boat" that I found here
The kinds of staff and volunteers that I met were...
All are absolutely wonderful. AND they are all volunteers..except for our tech guy who was hired to set up and maintain our web site.
If this organization had 10 million bucks, it could...
I don't think we need 10 million bucks. Just a few thousand would enable us to enhance our efforts and expand our outreach tremendously.
How frequently have you been involved with the organization?
About every week
When was your last experience with this nonprofit?
2010
Filter by reviewer role:
Support This Nonprofit
Help this nonprofit get more reviews
5 tips for getting reviews