Alzheimer's Disease And Related Disorders Association

Rating: 2.1 stars   10 reviews

Issues: Cancer

Location: 225 N. Michigan Avenue 17th Fl Chicago IL 60601 USA

Mission: To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
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Community Reviews

Rating: 5 stars  

2 people found this review helpful

As an Alzheimer's caregiver--first for my father, now my mother--I have been given outstanding support by the Alzheimer's Association. I was a longtime member of one of their caregiver support groups, a group that kept me going through information and emotional support when the going was roughest. I've attended their caregiver six-week (once a week) course--invaluable! Twice I went to their financial information group, in which volunteer lawyers talk about managing family finances and the path to medicaid for Mom's care. The Alz. Assn. supports art organizations in New York which provide special tours for Alzheimer's victims and their caregivers--one of not very many mutually enjoyable things Mom and I do together. (more below)

I've personally experienced the results of this organization in...

Beyond the many things listed above, the Alz. Assn. in New York City gave a six-week (once a week) program in Mindfulness Training for Alzheimer's Caregivers. It made an enormous difference in my quality of life, and my calm capacity to care for Mom while retaining some sanity and sense of joy in my own life.

If I had to make changes to this organization, I would...

Have them open up an office in Brooklyn. I have turned to their NYC office for help, and while the folks there are extraordinarily knowledgeable, lots of their knowledge has to do with services, events, etc., in Manhattan...sometimes a bit far away for us.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

???

What, if any, change in your life has this group encouraged?

See above.

When was your last experience with this nonprofit?

2011

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Review from CharityNavigator
Rating: 2 stars  

1 person found this review helpful

I am unimpressed with this organization. I never got any help from them when my wife had Alzheimer's. They don't actually fund most of the Alz research - the NIH does that - but they sure seem to take credit for it. Their administrative and fund raising expenses are very high. They lobby Congress for more money for Alz care and research - which I suppose is good - but I am pretty sick of the hype about every "breakthrough" - which may help people 5 or 10 years from now, but won't help anyone already suffering from dementia. How about helping the caregivers who are dealing with this every day of their lives?

I've personally experienced the results of this organization in...

no way.

If I had to make changes to this organization, I would...

Redefine the mission to help those who need it TODAY, and cut admin and overhead expenses. Put the money where it is needed.

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