ALZHEIMERS ART QUILT INITIATIVE
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Not only is this volunteer organization successful in raising money for Alzheimer's Disease research, it educates and raises public awareness of this devastating disease through it's traveling art exhibits. I recently saw their "From Heartbreak to Hope" quilt exhibit in Portland, OR and saw and felt the impact this illness has on people's lives, not only from the Artist's Statement, but also from the comments of others viewing the exhibit. Just as cancer was referred to as the "C" word in the past, Alzheimer's today is often the "A" word. People are often afraid to talk about it openly. AAQI gives names and voices to those impacted by this illness.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
AAQI is in it's sixth year and has raised over $690,000.00 for research. They have had over 9,000 quilts donated for auctions and sale. For a lttle grassroots organization started by Ami Sims because her mother had this insidious disease, we have come a very long way with not end in sight!!
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2011
For those of us who have lost a loved one to Alzheimer's the AAQI is very near and dear to our hearts. Alzheimer's is a vicious disease that robs the individual of his or her very essence one memory at a time. It is scary and devastating to the one afflicted and heart breaking to the family and friends. AAQI makes making a difference so easy. You can make or buy or make and buy! a priority quilt to raise funds for research into this insidious disease. Anyone can help. It doesn't take a lot of time or a lot of money, just a desire to make a difference. I think it's one of the most effective non-profits I've ever known about.
The Great!
I've personally experienced the results of this organization in...
seeing the amazing amount of money that can be raised when many people give just a little
Ways to make it better...
If I had to make changes to this organization, I would...
none
I am so happy to have found a way to help raise money for Alzheimer's thru this fabulous organization. I lost my mother-in-law to this devastating disease, and swore that somehow, someway I would find a way to help find a cure. Recently, I found the Alzheimers Art Quilt Initiative, and I am so happy that as a quilter, I can now help this organization raise money to find a cure, one stitch at a time. I was also so very impressed at how well this organization is run, with so very little money used for administrative purposes and the rest going to fund the research grants.
The Great!
I've personally experienced the results of this organization in...
Knowing that the money from the sales of my quilts is going directly to fund research for Alzheimers.
Ways to make it better...
If I had to make changes to this organization, I would...
I would not make changes to this organization.
I suspect that every several people has someone in their family or someone they know who has Alzheimer's. It is really a heartbreaking illness, and creating quilts or donating to this good organization is a very healing thing to do, and hopefully one that will help others in the long run.
My Mother did not have Alzheimer's when she died, but she did have severe dementia. Dealing with her was horrible. One day she would seem semi-normal at least, but the very next day she would be so irrational that my brother and her felt like tearing our hair out. To make matters worse, my Dad might have had it some too, for he became very irrational about doing what was best for her well-being. I came to Texas where she was from California. She had open heart surgery shortly before I went there, and when my brother and I went to their home, we discovered my mom had not eaten hardly a thing for days, and my dad didn't seem to think there was anything wrong with that. He got angry that we were trying to get her to eat. He went to take a nap, and while he was asleep, she had a grand mal seizure and we had to call an ambulance. When he woke up, he was ready to try to kill both of us for sending her to the hospital. Total irrationality. Things just got worse and worse, and I ended up going back to California. She died after I left, and I really never got to tell her goodbye in a way that she understood or my dad understood. She never was rational again before she died. My dad died a year later and he really had pretty much become very irrational all the time. They were the only parents we had, and now they are gone and we never really got to say goodbye in a way that meant something.
Doing something for The Alzheimer's Initiative is just a small thing, but it is helping me a lot.
The Great!
I've personally experienced the results of this organization in...
I am just getting started.
Ways to make it better...
If I had to make changes to this organization, I would...
Just make it easier to find whom to send the quilts to and to get registered. It was hard to find that information and I still have not yet found the address.
More feedback...
Was your donation impactful?
Unsure
How likely is it that you would recommend that a friend donate to this group?
Likely
How likely are you to donate to this group again?
Likely
What specific problem, purpose, priority, or project prompted your gift?
I have known about this organization for some time now, and have always believed in what it is doing.
Why did you make your donation at this time?
I signed up to either make a donation quilt each month or buy a quilt.
What would you tell others about this organization?
I think it is a good organization and one worthy of contributing to.
When was your last experience with this nonprofit?
2010
When my mom was diagnosed with Alzheimer's in 2002, I found myself suddenly in charge of her life. As the disease progressed, we placed her in an Alzheimer's facility, which turned out to be one of the best things we could have EVER done for her!
As a quilter, one of the speakers at our quilt guild meeting talked about the Alzheimer's Art Quilt Initiative, so I made a quilt and donated it - it was such a warm feeling. Since then, I have donated numerous quilts, one of which was accepted into the Heartbreak to Hope traveling exhibit. I have gotten others to make quilts to donate also and continue to do so. This organization proves that although we are not researchers, we can still be part of the solution. It is such a feeling of accomplishment that you truly ARE helping eliminate this horrible disease!!! Quilts helped bring the slaves from the South to the North, so it is only fitting that quilts can help bring this disease to an end!!! Thank you Ami for starting such a FABULOUS FABULOUS cause!!!!
The Great!
I've personally experienced the results of this organization in...
It gives me quite a nice feeling to know that I truly AM helping to raise money for the research necessary to END this horrible disease!
Ways to make it better...
If I had to make changes to this organization, I would...
make sure it gets more visibility!!! Ami does a FABULOUS job of promoting this organization, but it needs national recognition on a more regular basis!!
More feedback...
Was your donation impactful?
Likely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
What specific problem, purpose, priority, or project prompted your gift?
this horrible disease
Why did you make your donation at this time?
to help end this disease
What would you tell others about this organization?
it is WONDERFUL!!!
When was your last experience with this nonprofit?
2011
Alzheimer's is a horrible disease, taking the memories and abilities of its victims and never allowing them to be ever again the person they once were. There must be a way to alleviate, or better yet cure, this condition, but it will take years of research and tons of money to fund it. Thanks to the Alzheimer's Art Quilt Initiative, there is a way to help out in this cause. Quilters and quilt lovers, and there are many worldwide, are working together to raise funds. Ami Simms, the founder of the organization, has encouraged everyone to get involved in whatever way they are able. The endeavor has grown by leaps and bounds, since many of us have stories of family, friends and acquaintances who have been beaten down by the disease.
The Great!
I've personally experienced the results of this organization in...
A lot of thought and work has gone into the organization to make it friendly and easy to work with. I am often unable to leave my home, but still I am able through the internet and my sewing to make an impact and help in the fight. I appreciate the careful use of the funds generated and the extreme dedication of a number of people who keep the group going and growing.
Ways to make it better...
If I had to make changes to this organization, I would...
Really, no changes are required, we are working together with good leaders who are dedicated toward putting the funds raised into the hands of researchers who are working hard on the problem of the disease.
My Uncle had this terrible disease. A man who read voraciously, told wonderful stories, worked at his job with dedication and loved his family entirely. What happened to him at the end no one should suffer. The money generated to help find a cure for this disease is needed more and more and this charity is a wonderful way to contribute. I will continue to quilt for this organization to raise funds because I know that everything will be given to this cause.
The Great!
I've personally experienced the results of this organization in...
I know that they have made a difference in making people more aware that they can help.
Ways to make it better...
If I had to make changes to this organization, I would...
Would change nothing.
My Grandfather and my husband's Grandfather both suffered in their golden years with this dreadful disease and were taken from us way too soon! It is a very hard disease for the family to deal with as the very essence of the person's humanity slips slowly away. The work of this great organization and all of the tireless hours spent by the quilters making these beautiful creastions gives all of us hope that we will find a cure in the very near future.
The Great!
I've personally experienced the results of this organization in...
enjoy bidding on the beautiful quilts!
Ways to make it better...
If I had to make changes to this organization, I would...
not change a thing!
I am a quilter. I heard Ami speak in Sheridan WY in was impressed and touched by her mother's story. I have made a small quilt for her auction when I attended The Quilt Show in Boulder CO last summer. I have bid on quite a few of the quilts during the on-line bidding, but have always been out bid. I do have a friend who was a lucky bidder though.
It's a supurb Initiative and helps everyone.
The Great!
I've personally experienced the results of this organization in...
Through Ami Simms
Ways to make it better...
If I had to make changes to this organization, I would...
No changes to the organization.
Kudos to Ami Simms and AAQI.....worthwhile as a charity because Ami has eliminated the middle man....ALL the money raised goes into research to find a way to prevent/cure this SCOURGE on humanity.
My three grown daughters and their progeny, my three grandsons, are all at HIGH RISH through their paternal genes. I hope I live to see the day when their anxiety and mine can be relieved about them contracting this disease. It devastates and destroys the entire family, not just the Alzheimer's patient. Let's GET with it! THANKS, AMI and AAQI
The Great!
I've personally experienced the results of this organization in...
seeing Ami organize and manage this huge effort from the beginning......she is amazing!
Ways to make it better...
If I had to make changes to this organization, I would...
not change a THING!
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