Alternating Hemiplegia Of Childhood Foundation Inc

Rating: 4.85 stars   40 reviews

Issues: Health

Location: 2000 Town Center Suite 1900 Southfield MI 48075 USA

Mission: Our vision is to find the cause(s) and a cure for AHC while providing support to the children with AHC and the parents who care for them
Target demographics: All those diagnosed with Alternating Hemiplegia of Childhood
Programs: Raise money for research to find a treatment and a cure, host a Family Meeting, Educate the medical community and the public, spread awareness through social media, support families, maintain an interactive website for information and resources.
2014 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  


Our granddaughter was diagnosed with Alternating Hemiplegia of Childhood when she was 10 months old (1991). Very little was known about AHC then and the information available was difficult to find. This prompted our daughter and other parents to form the Alternating Hemiplegia of Childhood Foundation (AHCF).
It has been an eye opener to observe what it takes to get a foundation up and running. The continued passionate commitment and dedication of parents, families, friends, physicians, volunteers over these past 20 years is so very inspiring. And the results have been monumental.
Thank you AHCF. Keep up the good work !!!

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2013

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Rating: 5 stars  

1 person found this review helpful

My son is 19 years old and has ahc. We have been in this fight alone until we found ahc foundation. It is wonderful to be able to talk to when days are hard and ask all the stupid questions which other sometimes laugh or just looked puzzled. We have become more and more involved and would like to have the world know who we are and help with our cause!!! Jenny Renfroe in Roswell, ga

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Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2011

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