Alternating Hemiplegia of Childhood Foundation Inc

Rating: 4.88 stars   58 reviews

Address:

2000 Town Center Suite 1900 Southfield MI 48075 USA

Mission:

Our vision is to find the cause(s) and a cure for AHC while providing support to the children with AHC and the parents who care for them

Target demographics:

All those diagnosed with Alternating Hemiplegia of Childhood

Programs:

Raise money for research to find a treatment and a cure, host a Family Meeting, Educate the medical community and the public, spread awareness through social media, support families, maintain an interactive website for information and resources.

2015 Top-Rated Nonprofit
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ahckids.org

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Reviews for Alternating Hemiplegia of Childhood Foundation Inc

Rating: 5 stars  

3 people found this review helpful

This wonderful organization makes a difference. The focus is truly on the kids and their families and they emphasize results, including funding the exciting discovery of the gene that causes the disorder. My niece and her family also rely on the support community to stay strong and manage incredibly difficult daily challenges. AHCF impacts their lives every day.

 
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Rating: 5 stars  

3 people found this review helpful

My niece has AHC and I've watched the organization steadily grow and mature since her diagnosis. I've had the pleasure to be involved with, and donate to, fundraising activities such as the annual AHC walk and AHC golf outing in the Chicago area. The organization is forthcoming and clear about how the donations are used in the annual update. I look forward to future progress.

 
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Rating: 5 stars  

1 person found this review helpful

A wonderful organization helping children with this terrible disease.

 
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Rating: 5 stars  

1 person found this review helpful

AHCF does wonders for the children afflicted with this disorder and their loving families as they navigate the uncharted waters of AHC.

 
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Rating: 5 stars  

1 person found this review helpful


Our granddaughter was diagnosed with Alternating Hemiplegia of Childhood when she was 10 months old (1991). Very little was known about AHC then and the information available was difficult to find. This prompted our daughter and other parents to form the Alternating Hemiplegia of Childhood Foundation (AHCF).
It has been an eye opener to observe what it takes to get a foundation up and running. The continued passionate commitment and dedication of parents, families, friends, physicians, volunteers over these past 20 years is so very inspiring. And the results have been monumental.
Thank you AHCF. Keep up the good work !!!

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When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

2 people found this review helpful

My son is 19 years old and has ahc. We have been in this fight alone until we found ahc foundation. It is wonderful to be able to talk to when days are hard and ask all the stupid questions which other sometimes laugh or just looked puzzled. We have become more and more involved and would like to have the world know who we are and help with our cause!!! Jenny Renfroe in Roswell, ga

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2011

 
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