Alternating Hemiplegia Of Childhood Foundation Inc
Rating: 4.85 stars 40 reviews
Location: 2000 Town Center Suite 1900 Southfield MI 48075 USA
Target demographics: All those diagnosed with Alternating Hemiplegia of Childhood
Programs: Raise money for research to find a treatment and a cure, host a Family Meeting, Educate the medical community and the public, spread awareness through social media, support families, maintain an interactive website for information and resources.
Filter Reviews by Role
Promote This Nonprofit
6 people found this review helpful
Our granddaughter, Kathryn is now 3 1/2 years old and was diagnosed with AHC within the first year. It goes without saying that we love her completely, but what we didn't expect to feel was such admiration as we watch her cope with seizures and trouble getting her body to do what she wants. She battles through and keeps on going, expecting to do what her older brother does, and not asking for any special treatment. Her "can do" attitude comes directly from her parents who watch over her, love her, but allow her to explore the world around her and interact with it, not just watch it. All of us have benefited from the AHCF family and their untiring efforts to find a cure for AHC AND provide a network of information and caring people to support the kids and their families.
Our daughter recently got diagnosed at nearly 7 years old and the AHC foundation provides up with a great network of families as well as the most current information about AHC. We have a lot to learn and we rely on this support network to help us along.