Alternating Hemiplegia of Childhood Foundation Inc

Rating: 4.88 stars   58 reviews

Address:

2000 Town Center Suite 1900 Southfield MI 48075 USA

Mission:

Our vision is to find the cause(s) and a cure for AHC while providing support to the children with AHC and the parents who care for them

Target demographics:

All those diagnosed with Alternating Hemiplegia of Childhood

Programs:

Raise money for research to find a treatment and a cure, host a Family Meeting, Educate the medical community and the public, spread awareness through social media, support families, maintain an interactive website for information and resources.

2015 Top-Rated Nonprofit
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More Info

ahckids.org

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Reviews for Alternating Hemiplegia of Childhood Foundation Inc

Rating: 5 stars  

2 people found this review helpful

I am extremely impressed with the passion and dedication of the board members of this foundation, and with the care they take to be a well-organized and smoothly-running small nonprofit. They have funded critical research for this rare disorder, research that may not have otherwise been possible, and which has already led to a major advance in our understanding of the genetics of this condition. I expect that they will fund future research providing the best chance for more effective treatments, or someday a cure, for AHC. I attended portions of the family meeting in San Franscisco in June 2012, and was struck by how well the presentations and services seemed to match the needs of the families attending. I am very excited to be part of the medical advisory board of the AHCF.

Will you volunteer or donate to this organization beyond what is required of advisors?

Likely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

 
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