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July 11, 2012
1 person found this review helpful

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July 11, 2012
1 person found this review helpful

My niece has Alagille Syndrome which is why I became involved with the Alliance. We started as a small group and have grown into a full fledged support group for ALGS families. We are now embarking on another chapter of our organization with our recent announcement of funding ALGS research. It is an exciting time to be a part of the Alliance, and I look forward to the future.

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Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

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  1. Sending an email to clients, volunteers, donors, board members, and other partners with a link to your profile page.
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3 hours of volunteer time for this nonprofit will...

help with researching available grants to fund publication of our revised ALGS in the Classroom booklet; or assist with filing or other clerical tasks in our office (if you live in the Portland OR area); or review a page or two of our website to identify updates that may be needed