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October 21, 2010

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October 21, 2010

Jennifer is a skilled and knowledgeable lawyer with a number of victories to show for it. The book she wrote, "Know Your Rights," is incredibly useful as well.

The Great!

I've personally experienced the results of this organization in...

I use the book Jennifer wrote to help me figure out my rights as a graduate student

Ways to make it better...

If I had to make changes to this organization, I would...

make it bigger

October 20, 2010

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October 20, 2010

I donated very little but I've watched and witnessed what an amazing woman Jennifer Jaff is with her organization, fighting for people who can't fight for themselves. Jennifer, herself who has this painful disease, knows what it feels to be discriminated, ignored, etc while battling this disease and not getting support from people they loved because they don't understand the disease that overtakes this person's life. She listens, consults, advices, and supports...more importantly, readily to fight for them. She cares about every person she comes in contact with and treats them like any human being should be treated - unconditional love with no strings attached. She makes the person feel a person, not a disabled person.

The Great!

I've personally experienced the results of this organization in...

I've had personal support and advices from Jennifer and she's always there to listen, even when I needed to vent. She has helped me getting information on medical insurances when husband was laid off. I have also benefited from her sharing information daily she posts on behalf of her organization.

Ways to make it better...

If I had to make changes to this organization, I would...

I would want to see them having sufficient funds to start a committee focused primarily on donations/fundraising so that Jennifer Jaff and her staff can focus on what they love the most - their clients/patients.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

They need all the help they can use in order to help people.

Why did you make your donation at this time?

They really need the money to keep their organization in operation and it's still not enough.

What would you tell others about this organization?

I would them that it's an amazing organization that would go very far to fight for them, at little or no cost if they cannot afford. And they would be treated with respect right from the beginning.

When was your last experience with this nonprofit?

2010

October 19, 2010
1 person found this review helpful

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October 19, 2010
1 person found this review helpful

Jennifer Jaff is an attorney and helps thousands of chronically ill folks to resolve issues with their health insurers each year. She enables many, many people to receive life-saving treatments and prescriptions that have been denied. She does it all at no cost to the people she helps. My wife and I have donated to Advocacy for Patient with Chronic Illness and will continue to do that. As a person who has several chronic illnesses and who became unexpected disabled after working for thirty years as a science and medical librarian, I know what type of expertise this takes. Jennifer manages this organization out of her home with one other staff member and herself. I can't think of any other organization that does so much good with so little staffing. Any donation will be well used and benefit those who need it most.

The Great!

I've personally experienced the results of this organization in...

Jennifer writes a very informative blog that keeps people informed of aspects of health reform and also gives people ideas for dealing with hard insurance situations. The blog also creates awareness of the type of work she does for patients and self-help publications she's written. An excellent one among many is: Know your rights: A handbook for patients with chronic illness. 2008 It reviews medical and disability insurance and contains many useful form letters. I wish I knew this when I became ill.

Ways to make it better...

If I had to make changes to this organization, I would...

Jennifer offers an essential and hard to find service for those facing chronic illness and huge medical unknowns. She does this all with very minimal staff. I think she needs funding for at least a couple of high level support staff such as trained paralegal staff. Adequate staffing would lead to more people being helped. It would also allow Jennifer to concentrate more on difficult cases and perhaps more on fundraising.

More feedback...

Was your donation impactful?

Definitely

How likely is it that you would recommend that a friend donate to this group?

Definitely

How likely are you to donate to this group again?

Definitely

What specific problem, purpose, priority, or project prompted your gift?

I am a person who became very ill and then disabled quite rapidly. I never knew what it would be like to live this way and be so dependent on medical specialists and very expensive medications. One of my life saving medications, Xolair, helps me to breath with severe, persistent asthma. It costs $36,000 per year. My antidepressant Cymbalta, costs about $6,000 per year. It is so expensive to be sick. Many people, almost, 50 million people here in the United States do not have the excellent health insurance I have. They need help in finding physicians and clinics who will help them and in obtaining medications. They also need help in fighting their health insurance company's denials of treatment and cancellation of their coverage. Jennifer helps children and adults with chronic illness needing help. I can't think of a more worthwhile purpose. Jennifer helps chronically ill folks to get the medical care they need.

Why did you make your donation at this time?

I saw the kind of good advice Jennifer was giving people on her blog. She was patient and she was extremely helpful. I wanted to help in that effort. I could also see the kind of excellent advice she was giving in her guide to patients and their rights as someone with chronic illnesses.

What would you tell others about this organization?

Jennifer makes your donation count and works endless hours to help people. She operates this organization out of her home which enables each hour to count and keeps costs down. By not commuting to an office some where else she also cuts down on time waiting in traffic. This is an added gift. Mostly I just like the way she tells it as it is. She was just great in the way she wrote a whole series of articles about how health insurance reform benefits us as patients. Donate generously and give your time to Jennifer too if you can. The band Pearl Jam also is a supporter. For example they do benefit concerts for her. I am attaching a photograph of me using my Flexitouch machine. It would cost an individual about $10,000 and simulates the drainage massages that many lymphedema patients need. I am lucky and have excellent insurance which pays for durable pieces of equipment like this which helps to control my leg swelling. Many people have no insurance or have insurance that is not as good as mine. To write the letters to gain insurance support, many patients would need the help of advocates like Jennifer. Without it, many cancer patients with severe lymphedema would not have the help of a machine like this. Others could not afford such a machine. Jennifer helps them.

When was your last experience with this nonprofit?

2010

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