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24 Reviews
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January 30, 2014

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January 30, 2014

They have were an indispensable resource for my brother and we will be forever grateful. He is chronically ill and the support he received before his passing was amazing.

Ways to make it better...

If I had to make changes to this organization, I would...

None

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Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

October 4, 2011

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October 4, 2011

This organization headed by Ms. Jennifer Jaff, is an outstanding source of information that is very helpful to all with chronic ilnesses, especially those with IBD. I bought the Know Your Rights Handbook and found it to be very helpful. It is comforting to know that there is a person, a group, really looking out for those with IBD. My son has Crohn's disease and I know that I can count on them to help me when I run into trouble getting help with whatever he might need. I am a member of CCFA and they are awesome, but Ms. Jaff takes it to a more personal level when helping you. Thanks to Ms. Jaff and her staff for being such a great source of help and support. Stay well.

Carmen Fiorelli, Madison, WI

The Great!

I've personally experienced the results of this organization in...

Purchasing the Know Your Rights Book and spoke to Ms. Jaff twice.

Ways to make it better...

If I had to make changes to this organization, I would...

Hire more wonderful people to help!!

October 7, 2010

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October 7, 2010

I was diagnosed with Crohn's disease in 2001 at the age of 38. After a constant battle, several surgeries, 18 blood transfusions, and more medications than I can remember. I’ve experienced events that will haunt me forever. My disease has taken my life hostage, twisted it, making each day a constant battle just to survive; every day is a new challenge. I’ve lost everything from my job, my home, my medical insurance, life as I knew it and everything that meant anything. Suffering from severe complications and side effects while fighting for my rights to Social Security Insurance and Disability Insurance… this is what my life has become. Finding help and answers has been very difficult. Advocacy for Patients with Chronic Illness, Inc. has help me and others like me suffering from these same experiences to make sense of our legal rights. They advocate and give us a voice when our voices are no longer being heard.

The Great!

I've personally experienced the results of this organization in...

I am in the process of experiencing results from this organization, I am in the appeals process of getting my Social Security Disability Benefits.

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What I've enjoyed the most about my experience with this nonprofit is...

The genuine caring and support.

The kinds of staff and volunteers that I met were...

Kind, Compassionate, understanding, and willing to go the extra mile to help others with their needs.

If this organization had 10 million bucks, it could...

Create a strong voice for people who have had their voice silenced by their illness, lack of energy, and resources. They would be able to add staff to help more chronically disabled individuals fight for their human rights in a dignified way.

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010

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