As a medical social worker at a large institution working with pediatric chronic illness, I regularly refer patients and families here for guidance and advocacy support on issues ranging from educational equity access to necessary medications for well-being, employment discrimination issues, and entitlement and legal rights. I have seen, first hand, the way that the organizations dedication, investment wisdom and compassion have directly led to successful outcomes that allow children to have access to their educational curriculums, obtain life-saving treatments that insurances initially deny, and permit parents to not have to choose between threats of losing a job and being with their child during scary hospitalizations. I have seen families lies be enhanced, health be improved and most critically, perhaps, hope be restored, all because of the tireless work and expertise offered by this organization. As a professional collaborator, the services are prompt, relevant and exhaustive. I have seen the extraordinary impact the organization and Ms. Jaff have on public policy awareness and education the community about evolving laws impacting patients’ rights, and the reach she has in various illness-focused professional organizations to be a consultant to health care providers on the front lines, so that their own care delivery can be enhanced with the right strategies for patient advocacy. The organization and it’s commitment to equality helps teach me how to be a better clinician. It gives a 5-year-old with a lifelong chronic illness, a chance to be a 5 year old.
Advocacy for Patients with Chronic Illness is a unique and much needed Non-Profit Organization. Jennifer Jaff is an attorney who provides pro-bono work for any patient who needs it. She never turns anyone away. If she cannot find the answers, she will find someone who can. Advocacy for Patients with Chronic Illness has helped several people I know personally with a variety of situations such as IEP co-ordination for children, disability application assistance, and negotiating on patient's behalf with insurance company claims appeals. Advocacy for Patients with Chronic Illness is also an advocate for Health Care Reform and great resource navigating and understanding how the new Health Care Laws affect individuals.