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October 6, 2010

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October 6, 2010

Dealing with a chronic illness can be a challenging and exhausting experience. This is not only due to the increased emotional, financial, and physical costs of having an illness but also because you have to be your own advocate whether you feel up to it or not. Advocacy for Patients with Chronic Illness is a much needed organization and offers vital support in this regard. I visit the website and subscribe to the e-mail newsletter, which helps me to stay informed about my rights and offers other helpful tips for patients with chronic illnesses. I've also contacted Jennifer personally with legal questions through e-mail. She has always responded promptly, even though I know she must be busy. Her compassion and dedication are evident and inspiring. Just knowing this organization exists helps me as I deal with the implications of my illness and advocate for myself and others.

The Great!

I've personally experienced the results of this organization in...

As I mentioned in my review, I visit the website, subscribe to the newsletter, and have written e-mails to Jennifer asking for advice. All of my experiences have been very positive and I'm very grateful!

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

I feel the strength of this organization is its ability to inform and empower people who are often marginalized due to health conditions. It cares about and understands patients in a society that sometimes seems indifferent.

The kinds of staff and volunteers that I met were...

The staff is helpful, responsive, supportive, & understanding.

If this organization had 10 million bucks, it could...

If it had 10 million bucks, it'd change the world. I know it would use the money wisely and make a real difference.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

October 4, 2010

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October 4, 2010

I found Jennifer, and Advocacy for Patients through Pearl Jam. My husband has a chronic illness. As his caretaker, I found Advocacy to be a valuable resource. I was able to find support groups, sources for legal help, and personal support from this organization. I was also able to find strength and my own voice as an advocate for a chronicly ill patient. Advocacy for Patients was, and continues to be a blessing.

The Great!

I've personally experienced the results of this organization in...

We routinely update our resource network through Advocacy, as well as keep up to date on legislation and reform information.

Ways to make it better...

If I had to make changes to this organization, I would...

Donate. I wish I could afford to fund more help for this organization.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

The moral support I have gotten from Jennifer alone has made all of the difference.

The kinds of staff and volunteers that I met were...

Altruistic.

If this organization had 10 million bucks, it could...

do more of the good it struggles to do everyday.

Ways to make it better...

if ..... if they could do more.

In my opinion, the biggest challenges facing this organization are...

It is still small.

One thing I'd also say is that...

Ms. Jaff works tirelessly for those who come to her for help.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

October 4, 2010

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October 4, 2010

Advocacy for Patients with Chronic Illness is a unique and much needed Non-Profit Organization. Jennifer Jaff is an attorney who provides pro-bono work for any patient who needs it. She never turns anyone away. If she cannot find the answers, she will find someone who can. Advocacy for Patients with Chronic Illness has helped several people I know personally with a variety of situations such as IEP co-ordination for children, disability application assistance, and negotiating on patient's behalf with insurance company claims appeals. Advocacy for Patients with Chronic Illness is also an advocate for Health Care Reform and great resource navigating and understanding how the new Health Care Laws affect individuals.

The Great!

I've personally experienced the results of this organization in...

Thanks to Advocacy 4 Patients I have personally seen the relief a parent feels when their sick child successfully navigates the educational options available to them, or the relief a patient feels when the burden of their denied insurance claim is lifted.

More feedback...

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010

October 6, 2009

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October 6, 2009

When I called Advocacy for Patients over 2 years ago, I was at the end of my rope and afraid of loosing everything we worked hard to achieve. Jennifer Jaff immediately sprung into action, guiding me on how to resolve a very complicated insurance nightmare. She’s never dropped the ball and continues to work and respond quickly to assist and resolve problems. I was consistently impressed with the HUGE impact they were able to make with very limited resources – clearly indicating a commitment to serve a population of American’s who often are severely ill and have no place to go to learn how to advocate on their own behalf. Advocacy For Patients with Chronic Illness provides the place for patients to go to educate themselves and the FREE legal services provided are TOP NOTCH and provided by an attorney with the skills and personal experience that get results. I will be forever thankful for the experience and results received from Advocacy For Patients With Chronic Illness. The books and emails I receive from them are extremely helpful and educational; even if you don’t need their services, I suggest you get in contact with this non-for-profit, read their website and order their books, you’ll be glad you did. When you realize the service, education and advocacy they offer, consider a donation, because without them, the chronically ill will loose a valuable resource. A place for education, information and advocacy, from an organization with first hand experience and who knows what it means to have a chronic illness in America today.

The Great!

I've personally experienced the results of this organization in...

Direct assistance in resolving an insurance denial of benefits

Ways to make it better...

If I had to make changes to this organization, I would...

Toot their horn as much as I can.

More feedback...

What I've enjoyed the most about my experience with this nonprofit is...

Resolution of problem The information and education received and which I continue to receive in their newsletters. Th

The kinds of staff and volunteers that I met were...

Always helpful

If this organization had 10 million bucks, it could...

Continue to meet the needs of chronically ill patients, continue to educate, inform and advocate for patients.

Ways to make it better...

Nothing, completely resolved

In my opinion, the biggest challenges facing this organization are...

Growth, they need to let the chronically ill patients who need them know they are there for them. But with that they need continued funding.

One thing I'd also say is that...

If you're in need of assistance and advocacy not better place to go.

How frequently have you been involved with the organization?

About every six months

When was your last experience with this nonprofit?

2009

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