Adult Congenital Heart Association Inc

Rating: 4.94 stars   16 reviews

Issues: Health, Cancer

Location: 6757 Greene Street Suite 335 Philadelphia PA 19119 USA

Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community.
Results: Below are ACHA’s 2012 programming outcomes. • 900 members attended one of 16 educational webinars. • 2,100 congenital heart disease advocacy actions were made by ACHA members. • 600 one-on-one member contacts were made by our Heart to Heart Ambassadors to provide support and information. • 200 congenital heart disease patients were contacted by an Ambassador providing unique peer support. • 52,000 people visited ACHA’s website – www.achaheart.org. • Facebook membership increased from 1,905 to 2,793 – an increase of 46%.
Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients
Geographic areas served: United States
2012 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

1 person found this review helpful

Our late son,Steve Catoe was very much involved with ACHA.The great people in this organization meant so much to him ACHA is managed by great people. We continue to support ACHA in his memory.

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2012

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Rating: 5 stars  

ACHA has been invaluable in helping me cope with my congenital heart condition. I have used the message board to help answer many questions and connect with others with similar issues. I learned from the website the current care recommendations for people with my condition, and have confidence that if I find myself ill in an unfamiliar city, I know where to go to get care that considers my unique heart. The organization does great advocacy, and offers many opportunities for involvement and education. I am a much more savvy patient now thanks to ACHA, and I would recommend the organization to anyone who has or loves someone with a congenital heart condition.

Was your donation impactful?

Likely

How likely is it that you would recommend that a friend donate to this group?

Likely

How likely are you to donate to this group again?

Definitely

When was your last experience with this nonprofit?

2012

Was this review helpful?