Adult Congenital Heart Association Inc

Rating: 4.94 stars   16 reviews

Issues: Health, Cancer

Location: 6757 Greene Street Suite 335 Philadelphia PA 19119 USA

Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community.
Results: Below are ACHA’s 2012 programming outcomes. • 900 members attended one of 16 educational webinars. • 2,100 congenital heart disease advocacy actions were made by ACHA members. • 600 one-on-one member contacts were made by our Heart to Heart Ambassadors to provide support and information. • 200 congenital heart disease patients were contacted by an Ambassador providing unique peer support. • 52,000 people visited ACHA’s website – www.achaheart.org. • Facebook membership increased from 1,905 to 2,793 – an increase of 46%.
Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients
Geographic areas served: United States
2012 Top-Rated Nonprofit
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Community Reviews

Role: General Member of the Public
Rating: 5 stars  

My daughter was born in 1983 with serious complex heart defects. Today she is 29 years old. This site has helped with transition from pediatric to adult doctors. We have used the directory to find good ACHD doctors.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

I'm the mom to a 13 year old girl who has a heart defect. I pray everyday that she will grow into an adult with a CHD. I like to read the blogs & watch the webinars to gain insight on what the future holds for her.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

ACHA has changed my life. When I found out about the need for a second surgery in my late 20s, I was overwhelmed and felt very alone. I knew little about my condition, and had never met another person who understood on a personal level. My cardiologist introduced me to ACHA and the change has been dramatic. From raising awareness, to education to simply connecting those who understand, ACHA makes a difference. I'm so happy to have found the blogs, the fundraisers which bring us all together and the wealth of knowledge on their site.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful?