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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Heart & Circulatory System Diseases & Disorders

Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community.

Results: Below are ACHA’s 2015 programming outcomes. • More than 800 ACHA members attended 17 different webinars in 2015. In addition, archived webinars are available on demand on the ACHA website and have had over 5000 views in 2015. • More than 115 advocates from 19 states gathered in Washington, D.C., on February 25-26, 2015 to talk to their lawmakers about CHD. • 17 new Ambassadors were trained, bringing the total to 73 Ambassador volunteers. These volunteers offered over 1,200 ACHA patient and family members personalized information and support. • More than 186,000 website sessions in 2015. This included more than 141,000 users, accounting for over 382,000 page views. • ACHA Facebook membership increased steadily through the year, from 5,735 people to 7,323 by year’s end – an increase of nearly 28%. • Congenital Heart Walk’s sixth year, over 15,000 walkers raised more than $1.9 million in 30 locations across the United States • ACHA published 93 posts from more than 20 bloggers, which were viewed approximately 58,000 times. • In 2015 ACHA Ambassadors and staff presented on the importance of lifelong cardiac care at over 20 events. Hundreds of CHD patients and families received this carefully crafted message. • There were more than 9700 topics and 92,000 posts on ACHA Discussion Forum.

Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients

Direct beneficiaries per year: over 15,000 people

Geographic areas served: United States

Programs: Heart to Heart Ambassador Program, Regional Events and National Conferences, Webinars, Discussion Forum, Adult Congenital Heart Disease Program Directory, Online and Printed Material, Congenital Heart Walks, Advocacy and Professional Programs; CHD Fellowships and ACHD Accreditation

Community Stories

3 Stories from Volunteers, Donors & Supporters

1 Robert186

Volunteer

Rating: 5

Finding out about the ACHA has been the best part of a rather unexpected journey for me. After having had successful open heart surgery when I was 10, I was surprised to learn of the need for a 2nd surgery 41 years later (I'm 51). Finding myself a "heart patient" again after so many years could have been a frightening experience; however, the connection and resources provided by ACHA did so much to mitigate that possibility. Within a few weeks, I was introduced to my ACHA Ambassador who was a wonderful sounding board for many of the concerns I had. Beyond that, the organization provides a wide ranging library of resources, webinars and information that can answer all your questions. Perhaps most importantly, for many old/new heart patients, the organization provides you with a community of individuals that provide support, encouragement and inspiration. In short, they rock!

sxg231

Volunteer

Rating: 5

I became involved with ACHA because my daughter has a congenital defect. ACHA helps to educate people on the facts about heart defects and what to do to get the best care. They are working to get more research and recognition for congenital defects.

Volunteer

Rating: 4

ACHA is a wonderful place to learn about everything you need as an adult living with a congenital defect. I am one, I just went through another surgery and ACHA is a wonderful lifeline of information! I am also a volunteer-I raised funds for the Heart Walk and volunteered in helping with the walk as well. As a volunteer I felt the walk was not the best, and in raising enough funds to get a "reward" from ACHA-the reward took way too long to even care about it in the end. Maybe it is because I am in a different state from where corporate ACHA is-but I would like to be involved more in things that are ran better. Overall-a wonderful nonprofit.