Adult Congenital Heart Association Inc

Rating: 4.94 stars   16 reviews

Issues: Health, Cancer

Location: 6757 Greene Street Suite 335 Philadelphia PA 19119 USA

Mission: The Adult Congenital Heart Association (ACHA) is a nonprofit organization that seeks to improve the quality of life and extend the lives of adults with congenital heart defects. Through education, outreach, advocacy, and promotion of research, ACHA serves and supports the more than one million adults with congenital heart defects, their families and the medical community.
Results: Below are ACHA’s 2012 programming outcomes. • 900 members attended one of 16 educational webinars. • 2,100 congenital heart disease advocacy actions were made by ACHA members. • 600 one-on-one member contacts were made by our Heart to Heart Ambassadors to provide support and information. • 200 congenital heart disease patients were contacted by an Ambassador providing unique peer support. • 52,000 people visited ACHA’s website – www.achaheart.org. • Facebook membership increased from 1,905 to 2,793 – an increase of 46%.
Target demographics: Adults living with congenital heart disease, their families, and medical providers who serve congenital heart disease patients
Geographic areas served: United States
2012 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I became involved with ACHA because my daughter has a congenital defect. ACHA helps to educate people on the facts about heart defects and what to do to get the best care. They are working to get more research and recognition for congenital defects.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Some

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

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Rating: 4 stars  

ACHA is a wonderful place to learn about everything you need as an adult living with a congenital defect. I am one, I just went through another surgery and ACHA is a wonderful lifeline of information! I am also a volunteer-I raised funds for the Heart Walk and volunteered in helping with the walk as well. As a volunteer I felt the walk was not the best, and in raising enough funds to get a "reward" from ACHA-the reward took way too long to even care about it in the end. Maybe it is because I am in a different state from where corporate ACHA is-but I would like to be involved more in things that are ran better. Overall-a wonderful nonprofit.

Would you volunteer for this group again?

Unsure

For the time you spent, how much of an impact did you feel your work or activity had?

A little

Did the organization use your time wisely?

Somewhat badly

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2011

Was this review helpful?