Adult Congenital Heart Association Inc
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October 9, 2012
ACHA has been a powerful tool in aiding me with research, answers, physicians and others with same defects. I'm an adult with CHD since 1965, this has been my ticket to confidence and education..Thank you for being available and my secruity blanket!!
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How would you describe the help you got from this organization?
A lot
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2010
October 8, 2012
My daughter was born in 1983 with serious complex heart defects. Today she is 29 years old. This site has helped with transition from pediatric to adult doctors. We have used the directory to find good ACHD doctors.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
October 8, 2012
I'm the mom to a 13 year old girl who has a heart defect. I pray everyday that she will grow into an adult with a CHD. I like to read the blogs & watch the webinars to gain insight on what the future holds for her.
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Will you volunteer or donate to this organization?
Likely
How much of an impact do you think this organization has?
A lot
When was your last experience with this nonprofit?
2012
October 8, 2012
I was told in 1972 that my congenital heart defect had been fixed with surgery and the only future treatment I would need was antibiotics when dental work was done. In 2006 I developed new symptoms that local cardiologists could not figure out. A newspaper article about ACHA led me to expert treatment and complete recovery. This organozation is helping thousands and will change the standard of care for all current and future congenital heart defect patients.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
1 person found this review helpful
October 8, 2012
1 person found this review helpful
Our late son,Steve Catoe was very much involved with ACHA.The great people in this organization meant so much to him ACHA is managed by great people. We continue to support ACHA in his memory.
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Was your donation impactful?
Definitely
How likely is it that you would recommend that a friend donate to this group?
Definitely
How likely are you to donate to this group again?
Definitely
When was your last experience with this nonprofit?
2012
October 8, 2012
I'm an RN, specializing in pediatric cardiac intensive care - and I also am an adult with a congenital heart defect! I found ACHA a few years ago when I was searching for adult congenital heart clinics for myself. Their website offers lots of information for patients and families, as well as medical professionals. Their "health passport" and clinic directory as great resources. I especially enjoy reading the blog, because the stories truly reflect common thoughts & feelings shared by many CHD patients. I often recommend the ACHA website to my own patients and their families!
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How does this organization compare with others in the same sector?
Very Well
How much of an impact do you think this organization has?
Life-changing
Will you recommend this organization to others?
Definitely
When was your last experience with this nonprofit?
2012
October 8, 2012
I became involved with ACHA because I have two adult daughters with single ventricles. I have attended two conferences, and have come away impressed, inspired, and informed by the energy and leadership shown by the organization, its board, and the many cardiologists and surgeons who are dedicated to finding new ways to treat the adults who have grown up after having lifesaving heart surgery as children. I could go on and on. ACHA has brought me hope, information, and comradeship. The conferences bring together doctors and patients who interact over lunch and coffee breaks, as well as during presentations. It's a much needed and very well-led organization!
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
October 8, 2012
I found ACHA after the death of my son who was an adult with congenitalfrom heart defects. I think that if I'd known about the organization before, he'd still be alive. The wealth of accurate information from ACHA is invaluable. The ACHA is truly a lifeline for this large population of people that have very little access to accurate, relevant information. The organization is outstanding in it's scope of advocating for the broad needs of this community, from informational support, emotional support, to lobbying and educating our lawmakers in order to obtain much needed funding for the chd population.
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How would you describe the help you got from this organization?
Life-changing
How likely are you to recommend this organization to a friend?
Definitely
How do you feel you were treated by this organization?
Very Well
When was your last experience with this nonprofit?
2012
October 8, 2012
ACHA has changed my life. When I found out about the need for a second surgery in my late 20s, I was overwhelmed and felt very alone. I knew little about my condition, and had never met another person who understood on a personal level. My cardiologist introduced me to ACHA and the change has been dramatic. From raising awareness, to education to simply connecting those who understand, ACHA makes a difference. I'm so happy to have found the blogs, the fundraisers which bring us all together and the wealth of knowledge on their site.
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Will you volunteer or donate to this organization?
Definitely
How much of an impact do you think this organization has?
Life-changing
When was your last experience with this nonprofit?
2012
October 8, 2012
I became involved with ACHA because my daughter has a congenital defect. ACHA helps to educate people on the facts about heart defects and what to do to get the best care. They are working to get more research and recognition for congenital defects.
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Would you volunteer for this group again?
Definitely
For the time you spent, how much of an impact did you feel your work or activity had?
Some
Did the organization use your time wisely?
Very Well
Would you recommend this group to a friend?
Definitely
When was your last experience with this nonprofit?
2012
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