National Cfids Foundation, Inc.
Rating: 3.67 stars 3 3 reviews 428
103 Aletha Rd Needham MA 02492 USA
The National CFIDS Foundation, founded in 1997, grew out of the need of having an illness misunderstood due to the trivializing name. We fund grassroots research and is, currently, the only national organization still funding private research continuously since our inception in this medical area of CFS/CFIDS/ME.
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Reviews for National Cfids Foundation, Inc.
True Ponzi Scam. Ripping sick people off. They make money. The Volunteers that are incredible sick do not see a penny.
I volunteer for this charity because I know where every penny of any donation goes and that's unlike any other charity! 100% of each donation actually goes to fund research because this charity actually wants answers that will put them out of business. Every volunteer, from the president on down, volunteers and wants real progress. Even though others will ignore the science, they further it. I doubt one will find a better charity anywhere in the world.
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I asked myself, "How many charities are actual charities?" I know the National CFIDS Foundation is because there are no employees to pay, no secretaries, and every last penny of my donation went toward funding research into my disease: Chronic Fatigue and Immune Dysfunction Syndrome. I'm on disability but I'll continue to fund this organization whenever possible. Truth is hard to find but not when you read their newsletters. It gives me hope...REAL hope!
I've personally experienced the results of this organization in...
Their anesthesia protocol, based on research that they funded, not only answered questions long pondered but saved many lives.
If I had to make changes to this organization, I would...
Make more patients aware of this charity.
I recently joined the Board of Directors for the Ellie Fund, however, my families involvement with this organization started more... more »
Billy Starr is a crook and the press continues to give him a back rub instead of holding him accountable. He siphons near $2... more »
Jeriann M. wrote:
I developed Stevens Johnson Syndrome a year ago, leaving my eyes drastically damaged. My eye doctor at Mass Eye and Ear Infirmary... more »
I feel fortunate to have spent a couple days fishing and hanging out with a great group of survivors. The group consisted of a... more »