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Myasthenia Gravis Foundation Of Illinois Inc

Rating: 4.36 stars   11 reviews 1,187

Nonprofit Issues:

Health

Address:

275 N. York Street, Suite 401 Elmhurst IL 60126 USA

Mission:

Our mission is to facilitate the timely diagnosis and optimal care of individuals affected by myasthenia gravis and to improve their lives through programs of patient services, public awareness, medical research, professional education, advocacy, and patient care.

Target demographics:

myasthenia gravis patients and their families

Geographic areas served:

Illinois, Indiana, and nearby locales

Programs:

patient seminars, support groups, telephone help line, website, YouTube videos, newletters, patient advocacy, MG awareness raising, a Patient Assistance Program (for financially needy MG patients who live in IL or IN with the cost of medical care), and funding of MG research.

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More Info

800-888-6208
http://www.myastheniagravis.org/

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Reviews for Myasthenia Gravis Foundation Of Illinois Inc

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Role: General Member of the Public
Rating: 0 stars  

My sister had a thymectomy a few years ago-and thanks to the support of the myasthenia gravis foundation, she is living an educated, healthy and progressive life ( which includes a five-month-old baby girl, born after an awesome, healthy pregnancy!)

 
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Rating: 5 stars  

I was not even aware of how serious this disease is until I learned that my niece was suffering from it. As a result, and through the efforts of my brother (who became an active volunteer and donation solicitor), I learned more about not only the disease itself, but how much the Foundation provided help and encouragement to those having the disease as well as the patient's family and friends. My niece is now in remission (thank God), but my family continues to support the MGF of Illinois. Keep up the good work!

 
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Rating: 5 stars  

The board of MGF of Illinois began a new program this calendar year as part of its effort to explore new ways of assisting myasthenia patients. The Patient Assistance Program was created to provide financial help to MG patients struggling to pay those medical and medication expenses not covered by health insurance. So far this year MGF of Illinois has been pleased to be able to assist six applicants with these expenses. We encourage those seeking such help to visit our website for a detailed description of the program and an application.

 
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Rating: 5 stars  

I became involved with this organization because of how much my daughter was helped. Because of the educational services provided and the strong message of hope that was conveyed, she was able to find and benefit from excellent medical services.

 
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Rating: 5 stars  

This is the best source of information, I will always be grateful for the Treatment and Diagnosis from Dr Julie Rowan, for those who struggle with this ... please use the resources out there and know you will have a normal wonderful life. Speak up and talk with your doctor and do not be afraid to spread the word.

I've personally experienced the results of this organization in...

Yes

If I had to make changes to this organization, I would...

make no changes currently, just continue to be out there in the public eye

 
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Rating: 4 stars  

I have seen the MGF of Illinois help hundreds of patients and their families. I have attended support group meetings where patients are relieved that others know they are not making things up - their frustrations are real. I wish we could do more - MG poses significant challenges to continuing "normal" life and work. Many do fine but some have greater challenges. I would like to see better treatment options, earlier diagnosis and better education of our physicians.

I've personally experienced the results of this organization in...

seeing patients and families better educated and feeling better!

If I had to make changes to this organization, I would...

Like to see a social worker or nurse practitioner who could travel to physician offices or serve as outreach and education outside the office.

 
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Role: General Member of the Public
Rating: 5 stars  

I have ocular MG. I am one of the few lucky one who was quickly and timely diagnosed by Neuro ophthalmologist Dr. Jeffrey Haag, Wheaton Eye clinic and confirmed by leading Neurologist in the field of MG Dr. Mathew Meriggioli, Director of Neuromuscular Division, Uni of Illinois Chicago . Dr. Meriggioli was kind enough to give me an appointment very next day after I spoke to him, in spite of his busy schedule, and started the treatment immediately. My MG disease is under control. My family and I are grateful to Dr. Meriggioli .

I've personally experienced the results of this organization in...

The seminars, meetings presented by MGF of Illionois and the news letter Conquer are very informative and has given me lot of encouragement and understanding of this disease. KEEP UP THE GOOD WORK.

If I had to make changes to this organization, I would...

I could not think of any changes to this organization . This organization can use more support and funding so that it can expedite the research to find the complete cure. MGF of Illinois is an organization that truly helps and supports MG patients and families.

 
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Rating: 5 stars  

My sister, Alison, has MG. After receiving improper (and often dismissive) treatment from a local neurologist, she was guided by this organization to Dr. Julie Rowan at the University of Chicago.

Dr. Rowan was wholly responsive. She informed Alison of treatment options and helped her manage the day-to-day challenges...physical, psychological...associated with this condition. My sister opted for a surgical route and had her Thymus gland removed. Alison's symptoms have since abated. She is being weaned from her prescribed steroids and is feeling very well.

Julie Rowan is a gifted doctor without whom Alison's life would be very different. Our family thanks the Myasthenia Gravis Foundation of Illinois for its education, support and medical network. God bless you!

I've personally experienced the results of this organization in...

Watching my sister thrive as a result of the organization having lead her toward a proper treatment facility.

If I had to make changes to this organization, I would...

Make sure it was abundantly funded.

 
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Rating: 5 stars  

I have Myasthenia Gravis so when I heard about the business nearby selling flowers to benefit the foundation, I immediately went there to buy some for my mother.
The business owner, once learning that I was purchasing flowers to help MG and that I have MG, donated not only my purchase but the purchase of his best sale that day!
Thank God for these types of benefits to earn money for the MG Foundation of Illinois in order to research and someday provide a cure for this awful disease!

I've personally experienced the results of this organization in...

I have the disease and they are a great help to those that have it and don't have it by supplying information on the disease and upcoming discoveries tests etc.

If I had to make changes to this organization, I would...

Provide other organizations names and benefits that assist those with MG that are financially challenged.

 
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Rating: 4 stars  

i WAS DIAGNOSED WITH MG AT 18 AND NOONE KNEW ANYTHING ABOUT THE DISEASE. THE MG FOUNDATION WAS INSTRUMENTAL IN PROVIDING INFORMATION FOR MYSELF, MY FAMILY, AND LOCAL DOCTORS. THEY ALSO PROVIDED A MEANS TO BE IN CONTACT WITH OTHER MYASTHENICS FOR SUPPORT AND ENCOURAGEMENT. THE ANNUAL MEETINGS AND SUPPORT GROUPS ARE A WAY TO STAY CURRENT IN RESEARCH AND TRENDS. IT IS ALSO A WAY TO PROVIDE SUPPORT TO OTHERS. GREAT JOB!

I've personally experienced the results of this organization in...

KEEPS ME INFORMED AND ALLOWS ME TO INCREASE AWARENESS OF MG.

If I had to make changes to this organization, I would...

I CANNOT THINK OF ANY NECESSARY CHANGES AT THIS TIME

 
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