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Michigan Lyme Disease Association

Rating: 4.94 stars   100 reviews 5,897

Nonprofit Issues:

Health

Address:

35431 Brush St. Wayne MI 48184 USA

Mission:

Our mission as the central voice in Michigan is to help prevent Lyme Disease and other Tick-Borne Disorders while helping to support research. Providing support and education to Lyme Disease patients, caregivers, Health Care Professionals and the general public. 

Target demographics:

with support, education and research on Tick-Borne Diseases.

Direct beneficiaries per year:

Research in Michigan, Doctor Education, Public Education

Geographic areas served:

State of Michigan

Programs:

Educational Lectures to Organizations/Businesses. Hosting Conferences to Educate Physicians. Supporting Research efforts. Setting up educational booths to educate the public. Setting up support groups to help patients.

2014 Top-Rated Nonprofit
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More Info

1-888-784-5963
www.mlda.org

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Reviews for Michigan Lyme Disease Association

Role: General Member of the Public
Rating: 4 stars  

MLDA provides a wealth of information on all things Lyme related. I especially like their interest in homeopathic resources. As I've learned Lyme cannot be treated by conventional medications alone. Linda has been an invaluable resource and all the MLDA members owe her a great deal of gratitude.

 
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Rating: 5 stars  

linda has been there for me over and over michigan lyme is great they help so many people thank you

 
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1 previous review
Rating: 4 stars  

1 person found this review helpful

i feel very blessed to have this in michigan linda is wonderfull education is whats needed they provide that pam maize

I've personally experienced the results of this organization in...

yes

If I had to make changes to this organization, I would...

none

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

How did you find this group?

afriend

What, if any, change in your life has this group encouraged?

help

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

Michigan Lyme has been a god send for me. I was at a point where I was runnung out of options. Then I contacted Michigan Lyme and was put on the right track for proper testing that confirmed the diagnosis. I have called for support and help many times and had nothing but good positive responces.

I've personally experienced the results of this organization in...

In the support and involement of it's members.

How frequently have you been involved with the organization?

About every month

When was your last experience with this nonprofit?

2010-6-01

 
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Rating: 5 stars  

I've had and been disabled with Lyme Disease for 25 yrs. It is a most serious and complicated disease. MLDA is vital to education, fundraising, outreach, in MI. The president, Linda Lobes, is an extremely devoted worker who has been a much need resource and support for myself as well as many other patients, physicians and others in MI. I can't say enough positive things about this organization.

 
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1 previous review
Rating: 5 stars  

2 people found this review helpful

MLDA is a continual source of valuble information and support for myself as well as hundreds of others. I visit the online support group almost daily. Sometimes I ask a question or sometimes I just learn by reading input from others. It helps me to not feel so isolated ecspecially when I'm unable to get out due to fatigue or head pain. MLDA is by far my favorite non=profit group!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

Michigan Lyme Disease Association has organized support groups throughout the state as well as on line that provide Lyme Disease patients, family, and friends with education and support. This has been extremely helpful to me on my journey thru this difficult and devastating disease. I don't know what I'd do without it. Sometimes Lyme is disabling and the online support helps us to not feel so isolated and to be able to share information with each other. I know any monies that are won would go to great use as there is much education needed about Lyme, the fastest growing bacterial infection in America.

I've personally experienced the results of this organization in...

Support Groups Onlline Support Groups Educational Conventions Billboard on Highway (Informational) Toll Free Hot Line Educational Literature

If I had to make changes to this organization, I would...

Can't think of a thing.

 
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Review from Guidestar
Rating: 5 stars  

The MLDA is a wonderful organization with caring and dedicated individuals, who are a great resource for those who need help with anything to do with Lyme Disease and associated confections. We strive to raise awareness through many research campaigns, brochures and much more. All to often we provide support to those in need to many newly diagnosed patients and health professionals seeking additional information. Without the MLDA, many would struggle in knowing where to go for help or information on what Lyme Disease is all about. I'm happy to serve as a board member, in continuing to help educate the public and assist in much of the planning the goes on for the association.

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I've had lyme disease now for 18 years but took a year to get diagnosed. I was quite young at the time, 15 years old and my mom was desperate for help. We thank God every day that we came across the MLDA, and the president Linda at the time. She helped us immensely and has helped me to want to give back by joining the board. Without the MLDA, many people would be lost. They are THE best non-profit I know. I don't know where I'd be today without them.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

The MLDA has been the best non-profit organization I have worked with. I have never worked with a more caring organization as this one. They help so many people that are looking for information. I for one would be lost without the MLDA, they have been a constant resource for me for the past 17 years. The president of this organization is a God send to us all.

If I had to make changes to this organization, I would...

I wouldn't change a thing.

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

I'm not sure where I would be without the MLDA. Getting sick 16 years ago while still being in high school, my mom and I were lost. We had no idea where to go for help and information until we found the MLDA. We received all the information and compassion that we needed to get me help and treatment. Before this, we had been givin a lot of mis-guided information and told it didn't exist even with a positive blood test. Since then, I have had many people concerned about contracting the disease and I send them straight to the MLDA for answers, tips, and any info they are looking for. This organization means so much to those of us that have been suffering from Lyme, our community wouldn't survive without it. The president and members are compassionate and always so helpful! WE LOVE the MLDA!

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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Rating: 5 stars  

1 person found this review helpful

I can't tell you how many people I have referred to this organization. They do very important work raising Lyme Awareness, helping those who have been bitten by a tick or who need to be tested for Lyme Disease, testing areas for ticks/Lyme Disease and much more. With this disease prevention is so important so we desperately need MLDA!

 
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Role: Professional with expertise in this field
Rating: 5 stars  

2 people found this review helpful

This organization is a great source of support for patients and health professionals. They are unique in their ability to understand the importance of supporting research in their own state, as well as other states, and they have a proactive...professional relationship with all tick-borne health stakeholders. They do a fabulous job of educating the public and health professionals, too.

If I had to make changes to this organization, I would...

None

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

 
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Rating: 5 stars  

1 person found this review helpful

Next month (9-13-2014) will be 21 years with Lyme disease. ( Also had Babesia and Ehrlichia) I would not be here today. if someone from the MLDA did not help me. I was very ill and needed help. The ER Dr. said I would be fine and not to worry. I started volunteering early on. I am the secretary and the person who sends out all the information to those who ask. Over the last 21 years I have sent out tens of
thousands of pieces of literature. We do not charge for any of it. We pay for all the printing and postage ourselves. I am mostly homebound now but still send out information and do what I can.. Through the MLDA I have seen the education of medical personal rise, slowly but surely and it is all through the
hard work of the MLDA.

If I had to make changes to this organization, I would...

I would find an easier way to get grants than always asking our members who are mostly very ill and cannot work.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

 
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1 previous review
Rating: 5 stars  

1 person found this review helpful

When I got bit in 1993, there was almost no help from the medical community. I was so sick, most days I didn't know who I was or where I lived. The MLDA helped me in so many ways. When attending support group meetings, then board meetings I found out that they were the only ones interested in getting information to people. iI is hard to function and find information when your brain is swollen. If it wasn't for them, who gave me information to take to my doctor, I am sure I would probably be in a nursing home intead of now being a volunteer and "passing it forward" This is a great organization.

I've personally experienced the results of this organization in...

Yes, because there wasn't information hardly anywhere, and they compiled it for us to take to our doctors. This was life saving for me. As a board member I see the thousands of pieces of information sent out every year and hope that we are educating the public, and people can get treatment early and maybe avoid a long term illness.

If I had to make changes to this organization, I would...

Help them with fundraising and getting more volunteers. Almost everyone on the board is ill. We do so many booths and lectures, it takes a toll on us. So we need more people who aren't ill to help us. We will always continue to educate, no matter what the cost. We are a very good and caring group.

 
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Rating: 5 stars  

1 person found this review helpful

MLDA has provided my family and I with much needed information about Lyme Disease in Michigan and assisted with finding a Lyme literate physician. When someone else has questions about Lyme, I send them to MLDA.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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Rating: 5 stars  

1 person found this review helpful

When my son was diagnosed with lyme disease 7 years ago I had no idea where to turn. Thankfully I found the MDLA. The president was so helpful in finding a doctor and just general support has been great. We attended a MDLA support group that was active in our area for a while, and again, very helpful people. Always good information, always time to talk. Have referred many people to the group and always everyone is happy with the support they recieve. The leadership goes above and beyond the call of duty! Great origanization!!

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
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Rating: 5 stars  

1 person found this review helpful

When I have a question, or need to find a specialist who has seen other lyme patients, I can call the Michigan Lyme disease association and they are able to answer my questions or let me know where I may be able to find a dr.
I know of no other group that helps lyme patients like the MLDA.
Many people would suffer needlessly if it was not for the Mlda.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

 
Flag review
1 previous review
Rating: 5 stars  

1 person found this review helpful

I belong to a lot of different lyme groups on the net and via mail. The MLDA is one of the best. They work very hard to help others with this disease. They have a great phone support system, web posting site and even have some local support groups. Thanks so much to Linda and all of you who have supported me in the past.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

 
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