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Making Headway Foundation Inc

Rating: 5 stars   60 reviews 1,921

Nonprofit Issues:

Health, Cancer

Address:

115 King St Chappaqua NY 10514 USA

Mission:

Making Headway Foundation provides care, comfort and a cure for children with brain and spinal cord tumors while funding medical research geared toward better treatments and a cure.”

Results:

Among our many accomplishments, one of the most notable from 2012 is that we have recently committed $1 million toward a neuro oncology laboratory at NYU. We were also instrumental in finding another matching grant for $1 million. Making Headway Foundation was also named Nonprofit of the Year for 2013 by the Chappaqua-Millwood Chamber of Commerce.

Target demographics:

Children with Pediatric Brain or Spinal Cord Tumor

Geographic areas served:

NY, NJ, CT

Programs:

support services for during treatment, ongoing care post treatment and funding for medical research.

2015 Top-Rated Nonprofit
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More Info

914-238-8384
www.makingheadway.org

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Reviews for Making Headway Foundation Inc

Rating: 5 stars  

Our 3 year old daughter was diagnosed with Leukemia in 2012. Over the course of her 2 years and 6 months treatment I'm not sure how we would have made it thru without the love and support of Maya and everyone at Making Headway. This outstanding organization puts children first, reminds us that children heal through love and laughter and not just by chemotherapy alone. My daughter looked forward to her weekly treatment visits because of all the activities that Making Headway supports at her oncology clinic. Their arms stretch out not only to the patient but the entire family...knowing that cancer affects the patient, siblings and family as a whole.

 
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Rating: 5 stars  

Making Headway is a wonderful foundation that has done so much to help my son giving him the support and advocating for him to receive the best services he needs in school. The fun activities they have for the kids, my son is so much looks forward to attend.

 
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Rating: 5 stars  

I can't say enough of how wonderful Making Headway Foundation has been . In 2004 when my son first became ill with Brain Tumor and spinal cord Cancer. My Life was changed in an instant and forever . Alone in NYC Dr Allen said to me you have to meet 2 people Maya and Edward from Making Headway Foundation. There own personal illness in there family . Is what made Making Headway what it is today there own personal triumph to save other children some day from never being struck by this terrible disease.This was a start of a Life Long friendship There Patients kindness and Support got me through the worst of times. they had Support programs for patient and Parents .Making Headway Foundation is always in our Hearts

 
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1 previous review
Rating: 5 stars  

I can't say enough about this extraordinary couple Maya & Edward who started Making Headway Foundation through there own person issues with there daughter who had a Brain Tumor was inspired to help others with the same illness .They have been a great source of Inspiration and strength to my Family. In 2004 when my son was diagnosed with a Cancer Brain Tumor it changed my life forever. What also changed my life was when Dr Allen walked into the Hospital room and said I want you to meet someone .10 years later Making Headway is in my Heart & an Inspiration my Friend a shoulder to lean on Therapeutic for you and your child .The resources they offer are wonderful when you have trouble elsewhere. As they try to strive to eliminate this terrible decease I Thank God for them and support Them.

If I had to make changes to this organization, I would...

I can't think of any changes I would make at this point there doing everything they can possibly do to do away with this Decease

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

 
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Your words inspire us to work even harder. Thank you.

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Role: Professional with expertise in this field
Rating: 5 stars  

My greatest privilege is working with parents and siblings in those cases when the child does not survive the impact of a brain tumor. Most people do not understand that tumors in children , benign or malignant, are catastrophic for the development of sibling's, as well as for the cohesive marriage of the parents. The guilt, anger and depression, as well as issues of childhood neglect, can be carried by siblings for the rest of their lives if not treated quickly and appropriately. This dramatically effects their chances of reaching their full human potential. Making Headway is the finest and the only foundation I know that seriously treats the spreading impact of this disease throughout the whole family. Without Making Headway, many more parent marriages would end in divorce, and many more siblings would fail to develop a normal, healthy response to the life experience. Making Headway does critically needed work at every level.

 
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1 previous review
Rating: 5 stars  

My concern is for all the siblings of our patients at Making Headway. By giving them equal love, respect and attention, they are growing up with far less anger, depression, and despair. Making Headway is the only dedicated foundation that treats the WHOLE FAMILY so that each survives and thrives to their highest potential. The medical research and care for kids with brain tumors at NYU is recognized around the world, but it takes a village like MH to recover the patient and family together. It's true that whatever happens, life will never be the same, but it's also true that the staff and volunteers at MH are happily determined to make life meaningful and beautiful again. As a bereavement counselor, I have never seen a team of professionals like these anywhere else.
10,000 stars for Maya and Edward Manley, and 10'000 more for our kids at Making Headway.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

 
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Rating: 5 stars   Featured Review

1 person found this review helpful

My daughter was diagnosed with a brain tumor when she was 7 in 1998. She is now 23 and recently graduated college. I don't know how we would have made this journey without the help and support of the Making Headway Foundation. They give you hope and vision for better days, and when days are bleak they are there to hold your hand and help you bear that weight. They also support research looking to the future for better treatments and cures.

 
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Thank you so much. Your family re-pays us in many ways and we are grateful to have you as part of the Foundation.

1 previous review
Rating: 5 stars  

It seems impossible to believe, my family was introduced to Making Headway almost 15 years ago. This was when our then 7 year old daughter was diagnosed with a life threatening brain tumor. The combination of the medical expertise of the specialists at NYU/Langone and the kindness and caring of all the wonderful Making Headway people made a frightening journey a journey of growth and compassion. Making Headways was there from the beginning making sure our daughter could still be a kid in the midst of all our worry. The various services Making Headway provides families, sustained us through all the difficult days with the compassion and humanity they provide. Making Headway more than fills the gap that sometimes exists because hospitals and doctors just do not engage in. We are so grateful.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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We are the ones who are grateful...to have families such as yours as part of our organization.

1 previous review
Rating: 5 stars  

1 person found this review helpful

Making Headway is a loving caring group of folks who always remember that our ids are just kids. Maybe extraordinary kids, but they need the same love, care and fun that all kids should get.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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Lovely review. Thank you.

1 previous review
Rating: 5 stars  

Making Headway was there for us when we needed them 14 years ago. Their help and support through a very difficult time is immeasurable. Their devotion to their clients is truly inspirational. They support children and their families in many ways. Additionally, they are dedicated to helping fund research to improve the treatment of and find a cure for brain and spinal chord tumors.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

 
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You are so kind! Thank you for sharing with others. We want the world to know about our work.

Rating: 5 stars  

A great charity doing wonderful work. Tireless effort comes from this staff to help as many as they can. Great job!

 
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Rating: 5 stars  

We can't say enough positive things about this amazing organization that has helped our entire family since our son's brain tumor diagnosis in 2005. Educational support, counseling, sibling programs, fun activities and healthy snacks are just some of the ways we have directly benefited from this program. We love Making Headway!

 
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Rating: 5 stars  

1 person found this review helpful

Camp friends encouraged us to contact Making Headway Foundation and we are so glad we did! My son was given the opportunity to cruise around the Statue of Liberty while socializing with peers and making new friends. His journey has taken us on a rocky road but Making Headway provided one of those remarkable rest areas along this path that helps puts everything else into perspective. We are so thankful.

 
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Rating: 5 stars  

1 person found this review helpful

Making Headway supported not only my 2 year old when he was diagnosed with a brain tumor in 2003 but my other 2 children as well. Without them I honestly don't know how I would have survived the worst year of my life. Their work and dedication has made a difference in my family's life and the lives of countless others.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The Making Headway Organization is amazing in so many ways. Not only do they give direct support to families who are going through various brain/cancer treatments they actively raise funds to continue ground breaking research. I have personally seen the reach and affect this group has on peoples lives and particularly on children struggling with the treatment of their disease. I hope this non profit is around for many many years to come. Dedication like this is rare, but the big hearts on board are even harder to find.

 
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