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Fanconi Anemia Research Fund Inc

Rating: 5 stars   2 reviews 654

Nonprofit Issues:

Health

Address:

1801 Willamette St Ste 200 Eugene OR 97401 USA

Mission:

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Reviews for Fanconi Anemia Research Fund Inc

Rating: 5 stars  

FARF is saving lives NOW.

How do I know? Research and programs they have funded saved a member of my family's life with a high risk bone marrow transplant...from an unrelated, unmatched donor. This would have been impossible a few short years ago.

When a cure for Fanconi Anemia is found, other genetic diseases will benefit.

Please help support FARF.

I've personally experienced the results of this organization in...

watching my family member survive a high risk bone marrow transplant for myleodysplasia as a result of Fanconi Anemia. The research program was funded by FARF.

If I had to make changes to this organization, I would...

give them lots and lots of funding.

 
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Rating: 5 stars  

When my daughter was diagnosed with the very rare disease Fanconi Anemia, I immediately turned to FARF. They were able to provide our family lots of invaluable information and comfort. For its size, its a mighty charity! They provide family services that mean something and I could never have made it through this journey without them. I can't say enough about the dedicated people at FARF!!

I've personally experienced the results of this organization in...

Being able to better care for my daughter. When your child has such an incredibly rare disease you feel so alone. FARF is always there with whatever support and information we need.

If I had to make changes to this organization, I would...

Raise more money for them so they could do more!

 
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