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8085 Saltsburg Rd
Ste 201

Pittsburgh
Pennsylvania 15239
USA
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Programs:

The United Mitochondrial Disease Foundation has made it a priority to reach out to physicians through Grand Rounds.  The program introduces and/or broadens the knowledge base on mitochondrial diseases.  The primary purpose of the Grand Rounds is to provide continuing education to health care providers on topics specific to mitochondrial disorders, which also furthers the UMDF mission to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and to provide support to affected individuals and families.   The Grand Rounds are also coupled with a special family meeting to help educate patients/families about mitochondrial disease - and many times, the family meetings are suitable for outreach to nurses, therapists, educators, and various allied health professionals.

Mission:

UMDF''s mission is to promote research and education for the diagnosis, treatment and cure of mitochondrial disorders and provide support to affected individuals and families.

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3 Reviews
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10/03/13
My husband Steve was diagnosed with Mitochondrial Myopathy in 2002 (about a year after the onset of his symptoms). Although it seems that everyone has a slightly to extremely different experience with a mitochondrial disease, the UMDF helped us know we were not alone. They also helped our friends ... more »
Review from The Pittsburgh Foundation
10/03/12
Hello ,i am from india.my son is 1 year old now.he was diagnosed with leigh's disease when he was 4 monyh old.shortly after that he stopped crying,smiling and recognizing us.for two months after that he was on thiamine iv and he had lot of pricks .we made friends with many parents whose babies were... more »
Review from The Pittsburgh Foundation
12/27/10
My daughter Carly was diagnosed with a Mitochondrial Disease when she was 5 years old. She will be 17 this summer and without The Mitochondrial Disease Foundation (UMDF) and their personal touch her life would have been very different. Every day I live with a bit of fear that if she catches the ... more »
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