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The NOMID Alliance Overview
The NOMID Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved care for people with CAPS (Cryopyrin-Associated Periodic Syndromes) and other autoinflammatory syndromes. CAPS are caused by a rare mutation of the NLRP3 (CIAS1) gene in the cryopyrin inflammasome. These CAPS syndromes include: Neonatal-Onset Multisystem Inflammatory Disease (NOMID)-also known as Chronic, Infantile, Neurological, Cutaneous and Articular Syndrome (CINCA), Muckle-Wells (MWS), and Familial Cold Auto inflammatory Syndrome (FCAS)-also known as Familial Cold Urticaria (FCU).
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NOMID Alliance, has been a real life saver in our family.
When our grandson presented with an assortment of serious problem from a rash on the day of his birth, to painful joints, bowel problems and many other problems, the doctors treated him symptomatically. After hours of searching for answers on...
The NOMID Alliance is an exemplary organisation in the area of providing quality support and information to patients and families living with auto-inflammatory diseases. Through direct experience in working with them I have found their commitment to their work second to none. They also have an ...
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It was through the NOMID Alliance we had the chance to connect with families affected with NOMID and found out so much about the condition, no doctor could give have given us this information. The Nomid Alliance brochures have been extremely helpful and we have shared them with doctors in India.
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