The Center for Coordinating Action for Children's Health Respite House

Rating: 5 stars   3 reviews

Issues: Health, Human Services

Location: 7S721 State Route 53 Naperville IL 60540 USA

Mission: At Almost Home Kids, our mission is to enhance the lives of children facing serious and ongoing medical challenges.  
Programs: Medical Respite and hospital-to-home Transitional Care are CoACH Care Center?s major operating programs. CoACH was conceived and founded by two mothers of children with significant medical needs. They met in 1991 and collaborated throughout the long process to create a respite program. Through their diligent efforts with the State, the doors were opened in 1999 and they began providing the continuum of quality education and exceptional respite care for medically fragile children and youth. Today, this program welcomes children for up to two weeks each year, providing a fun-filled and stimulating time away from home in a safe and loving setting. This frees the parents from intrinsic care-giving and allows them a much-needed break from the daily demands of parenting these special children. This program also functions as a safety-net for families in crisis, providing emergency respite care, when needed. Referrals to the Respite Care Program can come directly from the family, a physician, a hospital, or a State agency.The Transitional Care Program is for children who are ready to be released from hospital intensive care units and are in need of services to ease them into life at home. With the goal of successfully transitioning the child from the hospital to their own home environment, CoACH provides 120 days of highly skilled medical, therapeutic, and nursing care. In this four-month period, the parents are taught the skills needed to care for their children, home-health nursing is arranged, and care coordination is established to insure that all recommended support services for the child are forthcoming. In addition, the parents and siblings are provided with educational and social services support to help with the adjustments to new roles and responsibilities. It should be noted that every day a child spends at CoACH in transition care represents one less day the child is in a hospital intensive care unit, and an overall shorter timeframe is realized to establish them in their own homes. Referrals are frequently from hospital intensive care units. Currently 26 hospitals refer cases to CoACH.In addition to the direct care we provide for these children and their families, CoACH Care Center also serves as a training ground for nursing students from three area universities and for pediatric residents on rotation from the University of Chicago. Emergency Medical Technologists from area ambulance and fire stations are given instruction in caring for these medically complex cases. CoACH is licensed by the Illinois Department of Public Health to care for 10 medically fragile, technology dependent children per day. In a 4,000 square foot home, situated on 2

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Community Reviews

Rating: 5 stars  

3 people found this review helpful

5 Stars. AHK is an incredible facility. I have personally been involved for approximately 7 years, my daughter volunteers and my husband is on the medical advisory board. AHK is a temporary home for children that are nedically fragile or respite care for families who may need a break from the burden of daily care. The staff is highly trained and truly love each and every child. It's a medical facility that feels like home. We need more houses like AHK!

I've personally experienced the results of this organization in...

the families who may need the care. The expertise and level of care is a godsend to families that aren't medically experienced. They teach the parents/caretakers how to take care of these kids at home. Respite care later.

What I've enjoyed the most about my experience with this nonprofit is...

the children. They truly love being here. The families are champions for AHK because it has provided them with valuable training that they never would have gotten going from hospital to home with their medically fragile child.

The kinds of staff and volunteers that I met were...

WOW! The staff and volunteers are definitely highly motivated. The medical staff is all pediatric trained and come from high level backgrounds. The volunteers are there because they love the kids!

If this organization had 10 million bucks, it could...

GROW! We need many more of these facilities. The price per child would be exponentially less if there were more AHK's.

When was your last experience with this nonprofit?

2009-11-01

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Rating: 5 stars  

4 people found this review helpful

this is one of the very few places we have ever felt comfortable leaving our medically fragile son for respite - it's beautifully appointed, the nursing staff are incredibly attentive and they really make the stay fun for the kids that go there - we liked it so much I now volunteer on the Board

I've personally experienced the results of this organization in...

the faces of other parents and their children

If I had to make changes to this organization, I would...

keep it on the same path

What I've enjoyed the most about my experience with this nonprofit is...

the comfort level they achieve

The kinds of staff and volunteers that I met were...

the best

If this organization had 10 million bucks, it could...

expand

Ways to make it better...

they were situated closer to Chicago

In my opinion, the biggest challenges facing this organization are...

funding issues

One thing I'd also say is that...

they need donations

When was your last experience with this nonprofit?

2009-6-01

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Role: Board Member
Rating: 5 stars  

5 people found this review helpful

this organization remains committed to meeting the needs of children with technology needs/complex medical care needs and their families. the nursing staff are uniformly exceptional

I've personally experienced the results of this organization in...

fmailes staying together and children staying home from the hospital even when they have complex health care needs

If this organization had 10 million bucks, it could...

open more facilities and help more children and families

When was your last experience with this nonprofit?

2009-10-01

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