The Becky Werner Meningitis Foundation

Rating: 5 stars   12 reviews

Issues: Health

Location: S95 W32805 Hickorywood Trail Mukwonago WI 53149 USA

Mission: The Becky Werner Meningitis Foundation, Inc. is a non-profit organization created to increase awareness of the dangers of meningitis and methods of prevention, to educate the public and medical communities about meningitis and to provide support to the families affected by meningitis. The Foundation supports research and development of testing for early diagnosis of meningitis, meningitis treatments and preventative meningitis vaccines.
Results: To date, the Foundation has reached out to over 15,000 high school students, not including medical groups and community groups.
Target demographics: Everyone!!

2011 Top-Rated Nonprofit
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Community Reviews

Rating: 5 stars  

I met Bob and Dee at the Second Annual PALs meeting, where I was a meningitis survivor and Dee told me their daughter had died from the disease.
The three of us began corresponding and they, like I, find it hard to believe that people can see the devastation, caused by meningitis and still think the vaccine is unimportant.

I am in the middle of writing a book about a cop, who is shot and paralyzed in the line of duty. Things, I've learned from both the Meningitis Angels, as well as Bob and Dee, have allowed me to introduce a teenaged character, who lost her hand and hobby (softball) to Meningitis and then allow the cop to encourage her to find another hobby....She learns she can write with her, formerly, non-dominant hand, as well as she could with the hand, she lost. She even learns to draw!!

With the memory of someone else, whom I met at the same meeting, where I met the Werners, I would like to allow that to show other meningitis survivors that meningitis doesn't have to be the end of living.
I do, however, wish it didn't take so many lives!






I've personally experienced the results of this organization in...

Bob and Dee have helped me, financially and I greatly appreciate it.

If I had to make changes to this organization, I would...

I don't think I have the exprertise to change a thing, here. Although I am a (now) 40-year meningitis survivor, Bob and Dee know more about these things than I, because my survival began, when I was ten and I didn't learn that, unlike other viruli, a meningitis survivor doesn't become immune to the disease until I asked Dee.

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Rating: 5 stars  

When I was in high school the Werner family came to tell their story about Becky and it truly moved me, they shared their tragedy to prevent it from happening to us, a very difficult but courageous mission. As a board member of the University of Wisconsin HOSA, I invited them to come share their story with the Madison community as my club HOSA strives to share pertinent health care issues of today. Everyone who came were moved and so appreciative of the Werner's telling their story and many followed up stating they got vaccinated because of the Werner's story and mission or passed the information on to loved ones! Many thanks go to the Werner family for their amazing efforts to prevent this tragedy from occurring in another family!

I've personally experienced the results of this organization in...

Working with HOSA, my student organization to plan an informative event regarding meningitis.

If I had to make changes to this organization, I would...

No changes

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Rating: 5 stars  

I was invited to help volunteer at the latest golf fundraiser, and I can't express the overwhelming love and commitment that the Werner's have for their dedication to helping find better answers to how to help save others from this terrible disease, meningitis. My son contracted it 3 years ago.

I've personally experienced the results of this organization in...

The organization donated funds towards my son's prosthetics.

If I had to make changes to this organization, I would...

Nothing. :)

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Rating: 5 stars  

As a high school teacher, I see first hand how naive young people are to this disease. Most have no idea how meningitis is spread. Through the education that Werner's have provided to me, I am able to help spread their message. I thank them for that and for all their hard work to help educate people.

I've personally experienced the results of this organization in...

With me own children - educating them and getting them immunized.

If I had to make changes to this organization, I would...

Try to help make it bigger so the word gets out even more.

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Rating: 5 stars  

The Werners have worked extremely hard to educate teens and their families about Meningitis. Through the Becky Werner Foundation, they do presentations at schools all over the state of Wisconsin, host events to raise awareness of Meningitis, including being a part of an international group that has established World Meningitis Day. They also have golf outings, bike rides, and the walk at Concordia University. As a volunteer, I know first hand how well organized the events are. The walk at Concordia is especially nice with beautiful scenery, touching tributes to victims of Meningitis, with educational materials available, and great snacks after the walk - it really is a great day. I have heard the Werners tell Becky's story many times and I can see how difficult it is for them. But they persevere, with the ultimate goal of getting the vaccine on the list of childhood vaccines so no family has to experience the pain they live with every day.

I've personally experienced the results of this organization in...

I have noticed that more and more people I talk to know about Meningitis. The education is working - important information coming from television, physicians, awareness days and word of mouth. Many of my young relatives have received the vaccine - something that wasn't routine even 5 years ago.

If I had to make changes to this organization, I would...

do more advertising to increase attendance at events.

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Rating: 5 stars  

The Werner's do a great job of creating Meningitis awareness. I have participating in their 5k walk at Concordia University for two years and would gladly participate in their future events.

I've personally experienced the results of this organization in...

5k Meningitis walk for two years Receiving knowledge on a first hand basis from the Werner's

If I had to make changes to this organization, I would...

More events

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Rating: 5 stars  

Bob and Dee Dee Werner do a fantastic job in leading the The Becky Werner Meningitis Foundation. They put so much effort into raising awareness through their events. I participated in the 5k walk at Concordia University for the past three years and it is always a fun and uplifting event! I will continue to support the foundation for years to come!

I've personally experienced the results of this organization in...

the 5k walk at Concordia University

If I had to make changes to this organization, I would...

None.

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Rating: 5 stars  

Bob and Dee have always done thing whole heartedly. The love they have for their daughter Becky will always live on in the things they do.

I've personally experienced the results of this organization in...

same as above

If I had to make changes to this organization, I would...

None

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Rating: 5 stars  

The Becky Werner Meningitis Foundation is a wonderful foundation that has several events. I participated in the 5K Walk at the Concordia University Campus. The campus was a perfect location for the walk. The company was wonderful while walking too. Bob and Dee really go the extra mile with all their events to support the foundation!!

I've personally experienced the results of this organization in...

I've experienced a very positive experience from the Becky Werner Meningitis Foundation. The first time I heard their story was around Christmas time several years ago at a Christmas concert for their foundation. I was moved to tears. I have shared what I have learned to my close friends and family and plan to continue to contribute in any way possible to the foundation.

If I had to make changes to this organization, I would...

Nothing!

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Rating: 5 stars  

The Becky Werner Meningitis Foundation, led by Bob and Dee Dee Werner is an amazing organization. The message they bring to young people is touching and inspiring. I have had the privilege of attending their presentation several times and it touches me each time. I am amazed that Bob and Dee Dee could take the devastating experience of losing their daughter and turn it into this amazing program focused on getting young people vaccinated so other families don't have the same experience.

I've personally experienced the results of this organization in...

They have given donations to help our son, a meningitis survivor, with medical and other expenses. I have witnessed young people taking on the responsibility of getting themselves vaccinated.

If I had to make changes to this organization, I would...

I wouldn't change anything. Their message is so honest. Bob has a way of connecting with young people that is amazing.

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