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Stop Childhood Auto Inflammatory Diseases, Inc

Rating: 4.76 stars   17 reviews 442

Nonprofit Issues:

Health

Address:

West Chester PA 19382 USA

Mission:

To educate, provide awareness and fund researchers who are committed to find a cure to auto inflammatory diseases.

2013 Top-Rated Nonprofit
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More Info

http://www.stopcaidnow.org

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Reviews for Stop Childhood Auto Inflammatory Diseases, Inc

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Role: General Member of the Public
Rating: 1 stars  

This site might be as bogus as the organization. When you write a bad review, it gets removed so you only see 5 star. So Questionable. Someone should investigate the funds from this org.

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stopcaidnow (Nonprofit Staff) wrote:

Tony although I appreciate all responses, this clearly shows you have not researched the Foundation. StopCAIDnow is the first organization to focus on the mechanism of these disease. No one on the board is paid, the founder has put thousands of dollars toward the foundation, we have the CAID clinic and CME at the Cleveland Clinic, on going list of projects for the families and children.....most of of the CURE in sight. Maybe you'd like to tell the Founders son who has no prognosis and her oldest that this is a bogus Foundation. Maybe they'd like to hear you think the money goes else where, when they know that this Foundation is helping them and hundreds and thousands of others suffering. The Founder could have taken her money and gone for the CURE and not have started a Foundation that was so needed, however that is not her nor her boys way of thinking. No review has been removed and the Foundation speaks for itself. If you would like to call the Drs on the executive board who know how hard the Founder works as well as their dedication and work towards the CURE pls contact me so I can connect you. I advise you to research before you make un true statements. God Bless you and I pray you never have a child or loved one go through what I witness from my own and hundreds of others.

stopcaidnow (Nonprofit Staff) wrote:

Tony although I appreciate all responses, this clearly shows you have not researched the Foundation. StopCAIDnow is the first organization to focus on the mechanism of these disease. No one on the board is paid, the founder has put thousands of dollars toward the foundation, we have the CAID clinic and CME at the renowned Cleveland Clinic, global awareness, book written for the families and children.....most importantly is we have the CURE in sight. Maybe you'd like to tell the Founders son who has no prognosis and her oldest that this is a bogus Foundation. Maybe they'd like to hear you think the money goes else where, when they know that this Foundation is helping them and hundreds and thousands of others suffering. The Founder could have taken her money and gone for the CURE and not have started a Foundation that was so needed, however that is not her nor her boys way of thinking. No review has been removed and the Foundation speaks for itself. If you would like to call the Drs on the executive board who know how hard the Founder works as well as their dedication and work towards the CURE pls contact me so I can connect you. I advise you do your research before you make un true statements about a dedicated CAUSE. God Bless you and I pray you never have a child or loved one go through what I witness from my own and hundreds of others.

stopcaidnow (Nonprofit Staff) wrote:

no comment has ever been removed, your the first to respond this way and you have obviously not done your research.

stopcaidnow (Nonprofit Staff) wrote:

all who know the President/Founder and the foundation are well aware no one gets paid. This is the first Foundation to focus on the mechanism of these diseases, the founder has put thousands of dollars her own money into the education and awareness, we have the CME and CAID clinic at the renowned Cleveland Clinic, many projects that were dev. for the children and families, ...and most important is we have the CURE insight! How would you like to tell her son who has no prognosis, gets infusions twice a month and her oldest who is also fighting a CAID that this foundation/cause is "bogus"! The Founder could have just focused on her two boys and went for the CURE, treatments but knowing the hell they go though she saw the urgency to start stopCAIDnow, get more Drs educated and the awareness for all these diseases. Again, I hold no judgement and GOD bless you! I pray you never have a loved one or child who feels the pain and suffering as they have and thousands do but Im sure they'd appreciate your kind sediments. Next time before you post or pass judgement on anyone or foundation, please do your research. Also, the Foundation works amongst top physicians and hospitals, if you would like to be in contact with them so they can assure you where the monies have gone, I will gladly connect you.

Role: General Member of the Public
Rating: 5 stars  

Lisa Moreno-Dickinson is a powerful special force of nature. She utilizes all she has for the good of others. Her passion to bring awareness, support and assist those with CAID is as solid as Mt. Everest. Lisa is climbing the mountain for many who cannot climb alone.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2014

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Role: General Member of the Public
Rating: 5 stars  

Lisa Dickinson is a wonderful, passionate, dedicated mother and director of this so very important non-profit organization, fighting children's auto-inflammatory disease. She is an effective advocate and support for other families battling with this disease, working tirelessly for a cure. Her work of many has already changed lives, and will continue to bring hope and a cure for families battling this debilitating disease.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
profile
Role: General Member of the Public
Rating: 5 stars  

The cries of a mother won't go unanswered. Change happens when hearts are changed. Join Lisa in spreading the message and make a difference today.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

When people think what can ONE person really accomplish ??? Not MUch is the answer....
Well they have never met Lisa Moreno Dickeson- Founder StopCAID now.

NO ONE without exception has accomplished more. While being the best mother I have ever seen she also revolutionized the way this group of horrific diseases "CAID" which by the way LISA created the name for these collected illnesses) has been addressed by the medical community and the public.

She has created multiple spectacular fundraiser, created wings in hospitals for the treatment and study of CAID, motorcycle rallies, and brought awareness nationally single handedly in less than a year with a huge Madison Ave PR company and millions of dollars.

The money also goes 100% to doctors shes has hand picked through her years of saving her beautiful sons. Only the best on this team.

Lisa has and will continue to be one of the people everyone will remember who truly made a huge difference for something so so tragic and important. Until Lisa surfaced it was -virtually unknown and overlooked by science and doctors in general.
Bless you LISA

If I had to make changes to this organization, I would...

Every corporation in America send a million or two from their wasteful budgets and give it to this group that has and will continue to save lives of defenseless beautiful children. This organization has no weak links. The Government should be a tenth as efficient.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

This organization has done more in two years for Auto Inflammatory diseases than most have done in years. So Proud of Lisa Moreno Dickinson and all she has accomplished in such a short time. We need a voice for the children with CAID and I could not have picked anyone more perfect for this role. She is driven, tireless and always on GO when it comes to the children and this cause. Love her determination and effort to help all of these kids to live a better - pain free life. She inspires me daily and my daughter who suffers from CRMO loves her and her passion to find a cure. We are grateful beyond words for this organization - and the headway they are making for Inflammation Diseases for Children. God bless her and this progress she is making on behalf of all the kids who suffer.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Amazing, simply put. Such a needed cause from such a warm heart.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

I have never met a more dedicated or tireless human being in my life then Lisa Moreno Dickenson! I believe with her at the helm of this organization a cure will be found!!!!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

The mother who started this foundation, Lisa Dickinson, has been NON-STOP in the past few years trying to figure out a cure for children with auto Inflammatory Diseases. What impresses me most is that she could have just tried to help her child alone in finding ways to cure him, but instead made herself an open book to other parents with children of the same disease, and has been a great comfort and advocate for their families. In two years the strides she has made with the Cleveland Clinic, press and donations are momentous and will change countless children's - and their families - lives forever.

If I had to make changes to this organization, I would...

Give it a million dollars to keep going and not only find a cure but create global awareness.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

This is an excellent charity doing amazing work, doing a great job raising awareness.

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Was this review helpful?