Sjogrens Syndrome Foundation, Inc. Overview
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Phone: (301) 530-4420
6707 Democracy Blvd
The SSF mission is to educate patients and their families about Sjögren's syndrome, increase public and healthcare provider awareness, and encourage research to find better treatments and a cure.
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I was diagnosed with Sjogren's at 15 (over a decade ago). Since that time, I have interacted with quite a few foundations, as a patient, health activist, and even professionally in my role as an auditor (my clients include not-for-profit organizations). I even plan to start my own foundation. In ... more »