Mission: The prostate cancer research institute (pcri) mission is to improve the quality of men's lives by supporting research and disseminating information that educates and empowers patients, families and the medical community. Pcri accomplishes this by 1)empowering patients with knowledge of the most effective known treatment options that limit the risks of complications and side effects, 2)encouraging physicians to stay medically current and help them access and actively engage with top experts in the field, 3) providing information based upon peer-reviewed medical research, literature, and reputable studies that will enable the patient to knowledgeably participate with his health care team in developing the best individual treatment strategy, 4) providing support research that can most immediately improve patient outcomes,
Programs: Helpline: the phone-based helpline receives about 20-25 calls and emails per business day from prostate cancer patients, relatives, advocates and the general public requesting relevant information and guidance.
insights: a pcri complimentary newsletter, published quarterly to a subscriber base of 20,000. It is a publication of research by the pcri medical advisory board and others in the medical community. The subscriber base includes physicians, prostate cancer patients and their relations, support groups and other medical professionals.
conference: pcri annual conference is attended by prostate cancer patients, relatives, friends and physicians and others in the prostate cancer community. Pcri conferences attract several hundred participants from all around the world.
I called their hotline in 2006 and spoke with Harry (now deceased) who stressed how young men with prostate cancer need to get their surgery done soon with a Dr who has done more than 150 DaVinci robotic prostatectomies.
At age 43, my disease turned out to be Gleason 3+3 stage 2C with lymphatic vessel involvement and a PSA of 3.9. After immediate surgery, the PSA was under 0.01 for 2 years. The cancer is back now with a PSA of 0.013, but I am told my low Gleason 3+3 means my cancer is unlikely to metastasize or kill me.
My surgeon said I would have died at age 45 (I am now 49) if I had not had treatment.