Patient Advocate Foundation, Inc.

Rating: 3.94 stars   17 reviews 516

Issues: Education, Health, Cancer

Location: 421 Butler Farm Road Hampton VA 23666 USA

Mission:

Patient Advocate Foundation was established in 1996 as a national 501(c)3 organization with a mission of “safeguarding patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.” PAF serves as an active liaison between patients and their insurer, employer and/or creditors to resolve insurance, job retention, and/or debt crisis matters relative to their diagnosis through case managers, doctors and health care attorneys.


Programs: Patient Advocate Foundation's Co-Pay Relief, A Patient Assistance Program On 4/1/04, PAF opened Co-Pay Relief, a cash assistance program to provide co-payment assistance for medically and financially qualified insured patients who have prescription drug coverage but cannot pay to access their prescription drug coverage. Support is currently available for patients with Breast, Lung, Brain, Colon, Kidney, Head and Neck, Pancreatic and Prostate Cancers, Autoimmune Disorders, Diabetes, Lymphoma, Sarcoma, Macular Degeneration, Myelodsyplastic Syndrome, Myeloma, Osteoporosis and Chemotherapy Induced Anemia/Chemotherapy Induced Neutropenia. This premier program has been approved by the Office of the Inspector General. A Modification to Advisory Opinion 04-15 was received on 8/29/08, increasing the number of available disease categories from 27 to 43. Hispanic/Latino Outreach Program The Hispanic/Latino Outreach Program was implemented in 2001 with offices in New York and California staffed by bi-lingual case managers. This program seeks to improve access to healthcare for the Hispanic/Latino community. PAF also provides educational materials in Spanish. When the program was implemented in 2001, 1.24% of all PAF patients were Hispanic/Latino. For FY 07/08, 8.62% of all patients served were of Hispanic/Latino descent. National African American Outreach Program PAF's National African American Outreach Program was initiated towards the end of the 2004 fiscal year. This program is designed to reduce health care disparities and assist individuals by disseminating information to those who are generally unable to receive reliable health care. In FY 07/08, 17.07% of the patients served by PAF are African American. Local and National Outreach Initiative During FY 07/08, PAF staff attended over 600 local, regional or national conferences either as a participant or as an exhibitor. This included conferences such as the National Sickle Cell Disease Program Conference, the Association of Oncology Social Workers Conference, The Oncology Nursing Society Annual Meeting, The Association of Community Cancer Centers Conference, The National Comprehensive Cancer Network Annual Conference and American Society of Clinical Oncology. Publications Department The newest publication is within PAF's "A Greater Understanding..." series of brochures entitled "Second Opinions: Know Your Rights and Options." The majority of PAF authored publications are also available in Spanish. All of PAF published educational publications are provided at no cost and can be obtained via internet by downloading from the PAF website, www.patientadvocate.org. Med CareLine Division In November 2006, PAF launched the Colorectal CareLine (CCL), a patient/provider hotline, designed to provide sustained assistance to patients who have been diagnosed with colorectal cancer and are seeking educational resources, direct assistance with access to care issues and/or financial aid for select patient needs. In November, 2008, the second Med CareLine program was launched, the Lymphedema CareLine to assist breast cancer patients with access to a test the determine if the patient is prone to lymphedema and through early detection, can almost always avoid the disease. PAF/American Cancer Society Partnership In May 2008, PAF entered into a partnership with the American Cancer Society to receive referrals from the ACS Patient Navigator Program. These services are an extension of the services provided by ACS. The Lance Armstrong Foundation In FY 07/08, PAF celebrated it's 4th year of the partnership with the Lance Armstrong Foundation and the LAF LiveStrong SurvivorCare Program. Patients who reach out to LAF and are in need of social service programs and access to healthcare are referred to PAF for assistance. Since inception of the partnership, PAF has assisted 5,876 patient referrals.
2013 Top-Rated Nonprofit
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More Info

EIN 54-1806317
www.patientadvocate.org
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Community Reviews

Rating: 5 stars  

PAF saved my life. I was underinsured with a $25K cap when I was diagnosed with breast cancer. PAF helped me negotiate bills with medical providers so I ended up with very little medical debt. Thank you PAF.
J S Hodges

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Rating: 4 stars  

As a chronic pain sufferer due to trigeminal neuralgia, type two, the best treatment as far is medical ( meaning expensive pharmaceuticals). This nonprofit organization really stepped up and helped me at a time of great need! Actually, the need is ongoing but the area of pain was fully subscribed; now I see it is not listed as an area of service. How distressing if understandable given the controversy whipped up over pain medication! At any rate, this nonprofit is first class!

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Rating: 5 stars  

In the summer of 2011 I was diagnosed with Breast Cancer and underwent surgery. I then had to face the daunting prospect of "chemo" with the worry of cost above my Medicare Advantage plan. I applied to Patient Advocate Foundation for co-pay assistance. The process was fast, efficient, smooth and culminated in a 12 month grant to aid in my treatment.

It was great to be able to focus on the medical aspects of my condition with out the additional worry of finance! My experience with this caring foundation was very positive.

Thank You,

Marvelle Smith

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Review from CharityNavigator
Rating: 5 stars  

I was the recipient of generous financial assistance from Patient Advocate Foundation (PAF) in the treatment of osteoporosis. My prescription medication was a very expensive daily injection medication over a two-year period. I was awarded $3,000 by PAF for each of those years. The staff at PAF handled the payment of invoices directly in an efficient manner was always most kind in my contacts with them. I am truly impressed with the services of PAF and will always be grateful for their assistance.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Review from CharityNavigator
Rating: 5 stars  

April 18, 2013

I am, most sincerely, just one of the “many” Presidents of Patient Advocate Foundation, and Cheryl Nowell Fan Club.. In addition to walking me through my first bout with Colon Cancer bills and medical confusion, PAF (through Cheryl Nowell) also helped me a second time through the same after my treatments for small bowel cancer. What PAF did for me, was to take the confusing state of mind that I or anyone else would be in after such medical trauma, and help it make to make some sense. The end result, from BOTH times, was that ALL of my medical bills (except one) were written off. This state does not just happen---it is through incredibly diligent work and a caring heart, which PAF exhibited to the nth degree—and way beyond. I cannot possible put into mere words the gratitude I feel for this organization, which helps ALL people through different kinds of “medical and mental” trauma. I most highly recommend PAF to anyone who needs a sincerely caring voice and heart on the other end of the telephone, during such confusing and trying times. Thank You PAF! All of you are WONDERFUL!!

Sincerely from the bottom of my heart,
Bonnie West

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2010

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Review from CharityNavigator
Rating: 5 stars  

I would recommend the Co-Pay Relief program because it’s a quick, simplified process with a staff that truly cares. When you are sick and down you don’t need nor can you deal with the stress of the huge financial burden our medical system throws and you. It’s really nice to work with a group of professionals who make you feel like you are a part of their family and really want to help. I am grateful to the PAF/Co-Pay Relief Program and the staff who have given me a chance to finish my treatment. I am also grateful for the donors who support this program which helped me and has helped so many others. Thank you all very much for your excellent work and for being such kind and caring people.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2012

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Rating: 5 stars  

Try to understand the feeling and dismay when you are informed that the problem you are facing has no cure and that a certain program, if successful,will prolong your life. Then, you discover the costs of this program, knowing that you do not have the funds nor are able to raise the necessary funds to begin the program.
That is what happened to me 3 months ago.
Fortunately for me, I was able to access information on my PC and discovered Patient Advocate Foundation and their helpful and compassionate people who really cared. The Foundation has been so very helpful and because of their decision to help, I am being treated and improving.
Without the Foundation's help, I would not be able to receive the necessary treatments and my life expectancy would be cut short, and I would not be able to write this review.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 5 stars  

After I was diagnosed with Multiple Myeloma in 2008 I began to pay my huge co-pays for medications. It became unbearable. I was introduced to PAF by my PCP and filled application. The Co-Pay Assistance Program helped me to stay on. With cancer treatment so expensive I could not survive without the help of PAF. I greatly appreciate their help and hope they will continue to provide assistance to cancer survivors. Victor Sloosky, Ashton, MD

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Review from CharityNavigator
Rating: 5 stars  

I am a 54 year old breast cancer survivor. PAF really saved me at the hospital. The co-pays were crazy and thanks to PAF I can hold my head up high because I paid off Virtua Hospital Voorhess, NJ. I don't know what I could have done without them but the professionalism of the staff was a big help since I paid with them directly. Thank you to all who got me through the taxotere and carboplatin (the chemo that makes you lose your hair). Better days are coming since my hair is growing back now. Since PAF absorbed the costs after Medicare which I pay myself, I am not losing anything. Thank you friends. Sincerely, Debbie Kidd-Beswick.

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?

Likely

How do you feel you were treated by this organization?

Quite well

When was your last experience with this nonprofit?

2012

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Review from CharityNavigator
Rating: 5 stars  

My wife was diagnosed with gastrointestinal stromal tumor (a rare form of sarcoma) in September of 2009. We belonged to an employer sponsored health maintenance organization (HMO) which has very strict rules about going out of network. It became evident that the expertise available within the HMO was insufficient to treat my wife's type of cancer. Only a handful of experts in treating this type of cancer were available, all requiring travel to get to. In July of 2010 my wife and I attended a support group function and Patient Advocate Foundation had a couselor and display at the meeting. It was here that I met Laurel, a counselor with the Patient Advocate Foundation. Laurel took me under her wing and provided every assistance I would need to fight the HMO for a referral outside of the HMO network.

When I made the initial request on behalf of my wife for a referral, the request was denied. We had to go through the entire appeals process and were denied each time, which I am told, happens with some frequency. In my state, after the appeals process with the insurance company is exhausted, there can be an appeal for an external review. When I requested the external review, the HMO capitulated and granted the referral to the ouside expert.

Laurel was behind me 100% and provided letters and backing to whether the appeals process with the HMO. Without the assistance and encouragement of the Patient Advocate Foundation, and specifically our wonderful counselor, Laurel, we may have never been granted the referral.

I know that the Patient Advocate Foundation helps out in many areas to support and advocate for paients as they struggle for treatment, payment assistance and approvals. Having been through this, I can tell you that it is very important to have someone help you advocate just to get noticed in the medical/insurance system.

I highly recommend Patient Advocate Foundation. My wife and I had a successful outcome with their assistance. I believe they will go to great lengths to provide any assistance they can and is within their means to provide.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2011

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