Mission: The Pancreatic Cancer Action Network is a nationwide network of people dedicated to working together to advance research, support patients and create hope for those afflicted by pancreatic cancer.
Programs: Research grants and clinical initiatives - the research grants and clinical initiatives departments employ a comprehensive strategy to advance pancreatic cancer research by directly funding research grants, coordinating special multisite research initiatives, working with the government affairs team to advocate for more resources from the federal government for investigations into the disease, and facilitating interactions and collaborations within the research community. The diverse research portfolio is designed to build a pipeline of researchers dedicated to studying pancreatic cancer and to expedite scientific and medical progress for the benefit of current and future patients. The grants program uses a rigorous, peer-review system to ensure funding the very best science from institutions across the country. To date the grants program has funded 123 grants, totaling nearly $28. 3m in funding, which was distriuted to 123 scientists at 50 institutions.
government affairs and advocacy - the government affairs and advocacy program in washington, d. C. , focuses on educating public policy makers and elected officials about pancreatic cancer and the need to increase federal research funding dedicated to studying the disease. The federal government has more dollars for cancer research than any private entity. Therefore, we augment private research funding with aggressive advocacy for increased federal dollars for pancreatic cancer. Our efforts include bringing hundreds of supporters each year to washington, d. C. To educate their elected officials about the disease and the urgent need to take action, submitting regulatory comments on issues directly related to pancreatic cancer research and/or care and working with our coalition partners to advance our shared advocacy goals. These colaborations with researchers and other organizations has lead to the passage of a bill and the creation of the deadliest cancers coalition.
patient services (patient central) - patient central is a comprehensive, free information and education service for pancreatic cancer patients, their family members and caregivers, and health professionals. When an individual calls or emails patient central, they are matched with highly trained, dedicated staff members, called patient central associates, who are available to answer questions and provide information and support. The program is the only one of its kind providing quality, detailed information on topics including diagnosis, treatment options, clinical trials, diet and nutrition, specialists and support resources. Personalized clinical trials searches of the organization's proprietary clinical trials database are available to all callers. Patient services also hosts live, interactive educational events for pancreatic cancer patients.
community outreach - community outreach is our team of dedicated and passionate volunteers organized as local affiliates in over sixty communities across the country. The passion and commitment of our volunteers has created a growing movement that propels our mission forward in each program area and is the driving force behind our organization. The volunteer efforts include engaging the local media, hosting local events, attending health fairs, distributing patient information to hospitals and doctors' offices, and alerting elected officials about the urgent need for scientific progress in pancreatic cancer research. Over 100,000 participants have attended our signature events this past year.
I have been involved with this organization for the past 5 years and have had the opportunity to work very closely with the organization at a national level. Their leadership is visionary and they are leading the charge against this terrible disease. The recently got the Recalcitrant Cancer Act passed to drive federal funding for the most deadly cancers including pancreatic cancer. Their comprehensive approach will absolutely make a difference in the fight against pancreatic cancer.
This organization was extremely helpful to our family when my brother was diagnosed with pancreatic cancer in his early thirties. They were a wealth of information to us and a great beacon of hope. When someone receives a diagnosis of pancreatic cancer it almost always comes with a short survival rate. There are a few that are lucky and beat the odds. PanCan does whatever they can to increase the chance of increasing those odds and give patient and caregivers hope. I have since become a volunteer and think the upmost of this organization. Please look up your local affifliate chapter, join in, and do your part to help know it fight it end it! You will be happy that you did! A diagnosis of pancreatic cancer leaves many feeling helpless but it is empowering to actually be able to do something about it! If not for yourself, your loved one, but for the countless others who are impacted by pancreatic cancer. I give this orgnaization an A+ for fighting for us all!
I can't tell you how wonderful this organization is! When I was diagnosed, they did more to help me than even the hospital where I was treated. Don't get me wrong, my surgeon saved my life, but at the Pancan, there was follow up with diet and nutrition, there was opportunity to talk with other survivors, there was a group that talked to my congressman in Washington so all i had to do was call them. In my community there is a very active Chapter working to help people that are facing this disease. I have donated to them since my diagnosis and will continue to do so. PLUS, i looked at the salary that the executives make and it certainly isn't out of line with other charties.
PANCAN spends far too much on fancy salaries esp, for execs. The ratio that goes to research is poor. It is really a fundraising machine where the great bulk of the work is done by folks who are impacted by PC. The org. exploits this very well, modeled on Komen's strategy.
I've been involved with PANCAN in one way or another for close to 4 years now. Originally as a recipient of their support when my Mom was diagnosed with pancreatic cancer, then as a volunteer with the St. Louis affiliate and now as a volunteer with the San Diego affiliate. In that time, I've even had the chance to meet the founder of the organization. Every part of PANCAN with which I've interacted has been top-notch.