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Noonan Syndrome Support Group, Inc.

Rating: 1 stars   1 review

Nonprofit Issues:

Cancer

Address:

P O Box 145 Upperco MD 21155 USA

Mission:

Members share experiences and exchange ideas on how to cope with Noonan syndrome. A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe. Names of medical specialists who have worked with TNSSG in the past, is available upon request. Newsletter - The Noonan Connection is published on a quarterly basis Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.

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http://www.noonansyndrome.org

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Reviews for Noonan Syndrome Support Group, Inc.

Rating: 1 stars  

1 person found this review helpful

Gave money to this org for a new website in 2011 ... Thousands of dollars were raised ... It's over a year alter and still no website ... Never answers calls ... What happened to my money?

How would you describe the help you got from this organization?

None

How likely are you to recommend this organization to a friend?

No

How do you feel you were treated by this organization?

Badly

When was your last experience with this nonprofit?

2012

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