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Noonan Syndrome Support Group, Inc. Overview
Members share experiences and exchange ideas on how to cope with Noonan syndrome.
A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe.
Names of medical specialists who have worked with TNSSG in the past, is available upon request.
Newsletter - The Noonan Connection is published on a quarterly basis
Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.
Invite friends and colleagues to share their experiences with this nonprofit
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Gave money to this org for a new website in 2011 ... Thousands of dollars were raised ... It's over a year alter and still no website ... Never answers calls ... What happened to my money...
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