Noonan Syndrome Support Group, Inc.
Rating: 1 stars 1 1 review 298
P O Box 145 Upperco MD 21155 USA
Members share experiences and exchange ideas on how to cope with Noonan syndrome. A Web site at http://www.noonansyndrome.org has a wealth of information. Also available to Internet users is an e-mail list service, offering educational and emotional support to new friends around the globe. Names of medical specialists who have worked with TNSSG in the past, is available upon request. Newsletter - The Noonan Connection is published on a quarterly basis Public Awareness - TNSSG helps fight misconceptions about Noonan syndrome and lets others know that help is available.
Filter Reviews by Role
Promote This Nonprofit
Donor & Volunteer Advisory
This organization's nonprofit status may be in question. You'll need to check recent news about this organization. For more information please visit https://apps.irs.gov/app/eos/forwardToRevokeDownload.do
GreatNonprofits, as an impartial aggregator of reviews, takes no position on allegations made or issues raised by third parties. However, donors and volunteers can read recent news about this organization and determine for themselves whether such information is relevant.
Reviews for Noonan Syndrome Support Group, Inc.
1 person found this review helpful
Gave money to this org for a new website in 2011 ... Thousands of dollars were raised ... It's over a year alter and still no website ... Never answers calls ... What happened to my money?
How would you describe the help you got from this organization?
How likely are you to recommend this organization to a friend?
How do you feel you were treated by this organization?
When was your last experience with this nonprofit?