The Neuroendocrine Tumor Research Foundation, Inc. puts on free, excellent patient education meetings! I learned about a new procedure, met the expert surgeon doing it, and had the surgery! My QOL and my time here were greatly improved by this knowledge gained at their conference. I have also attended another conference which has given me much information that I have been able to discuss with my oncologist.
Their staff is friendly, helpful and committed. Their funding of research is so basic to future treatments. Truly THE organization for this often ignored, often unknown cancer!
One of the most progressive and forward thinking non-profit organsations in the field of Neuroendocrine Tumours
I was diagnosed with pancreatic neuroendocrine cancer 9 months ago. I soon discovered that this rare form of cancer is not the subject of a long history of scientific research, but the Caring for Carcinoid Foundation is changing that. Currently CCF is funding research on immunotherapy for neuroendocrine cancers and trials will begin next summer. Their website is a source of excellent information about this disease and a link to a world of physicians and advocates who care deeply about those of us with this kind of cancer.
The CFCF assists patients like myself with trustworthy and current information about the basics of neuroendocrine, particularly carcinoid, tumors; current developments in monitoring and treating the disease; and in connecting me with others who also live with this chronic disease. Additionally, I feel confident that the funds that are contributed to CFCF go to solid, meaningful research into treating this disease, with the goal of finding a cure for this disease. With that in mind, I have helped raise awareness of carcinoid cancer and funds for CFCF sponsored research.
If you have carcinoid or have a family member with carcinoid, this organization is for you. They are very caring and very dedicated to help you with your disease. They are constantly gathering information to help you make informed decisions. They will connect you with others to form a personalised support system for you. All money donated goes for research and that is important for all of us.