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NATIONAL TAY SACHS & ALLIED DISEASES ASSOCIATION INC Overview
NTSAD is a 501(c)(3)nonprofit health organization dedicated to the treatment and prevention of Tay-Sachs, Canavan and related genetic diseases. NTSAD is committed to providing information and support services to individuals and families affected by these often fatal disorders, as well as the public at large. The strategies for achieving these goals include public and professional education, family support services, carrier screening, research and advocacy.
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I was diagnosed with adult, (now called late) onset Tay-Sachs Disease in 1982 due, to a blood test this organization caused to be developed. My membership continues since 1984. As a client, member, volunteer and now, ability to donate has increased, NTSAD has given my life direction for more than 25...
Our daughter, Madison, was diagnosed with Tay-Sachs in 2006. My dad actually was the one who found out about NTSAD and talked to them first. I then got in tough with Kim, who was extremely kind and easy to talk to. We got into contact with other families through NTSAD and made connenctions. ...
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My name is Stewart Altman, I was diagnosed in 1978 with Late Onset Tay-Sachs, I am on the board of directors of NTSAD...
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