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Nonprofit Overview

Causes: Health, Medical Research

Mission: Lymphatic Education & Research Network (LE&RN), formerly Lymphatic Research Foundation (LRF), is a nonprofit organization founded in 1998 to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Results: LE&RN is at the forefront of raising awareness of lymphatic disease and lymphedema. Founded in 1998 as the Lymphatic Research Foundation, LE&RN provides annual grants to Research Fellows at the world’s leading universities, putting lymphatic diseases on the radar in the medical community, in academia, in government, and with pharmaceutical companies. Through LE&RN’s education programs, such as our popular Medical Symposium Series, medical practitioners, therapists, patients, and family members can benefit from hearing presentations given by the world’s leading lymphatic and lymphedema experts. LE&RN’s Patient Registry and Tissue Bank provides researchers with access to information about those afflicted with these diseases and can provide tissue samples from lymphatic disease patients to further research discoveries in the field. The quarterly journal Lymphatic Research and Biology delivers the latest developments and advancements in lymphatic biology and pathology from the world’s leading biomedical investigators. Through events such as the annual Walk for Lymphedema & Lymphatic Diseases and through advocacy efforts such as fighting for passage of the Lymphedema Treatment Act, LE&RN is building an extensive network of people looking for answers, demanding better treatment options, and, ultimately, finding a cure so that no one will have to suffer with lymphedema and other lymphatic disorders.

Target demographics: fight lymphatic disease and lymphedema

Direct beneficiaries per year: fund researchers worldwide, and brought our educational symposiums to tens of thousands.

Geographic areas served: the United States and internationally

Programs: research, education and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Community Stories

22 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

My only hope for a cure is Lymphatic Education & Research Network. They are going to change my future
~Emma Detlefsen
Youth Ambassador

Volunteer

Rating: 5

This group helped me uncover what disease I truly had after years of misdiagnoses. Without the resources this group makes available, I may still be searching for answers.

Client Served

Rating: 5

This is the only charity of its kind and without it we would still be back in the dark ages without any social or political recognition or understanding of Lymphoedema and its effects on those of us profoundly personally (physically, socially and psychologically) impacted by Lymphoedema. Finding out about LE&RN seven months ago has given me hope that there may one day be a cure for the Lymphoedema that has utterly turned my once athletic life and day to day life upside down since 2015. Being able to cling to hope, knowing the dedication LE&RN has to myself and others with Lymphatic diseases, is in large part what has helped me overcome the deep depression I found myself in for months after diagnosis 16 months ago. Without LE&RN, research/cure funding would not exist as it now does, political/governmental initiatives would not exist, and those of us enduring dehabilitating lymphatic diseases would be without hope that we may ourselves benefit from a cure in our lifetime. LE&RN has made it possible for me to feel I can and want to stand up and fight the disease, and win!!

Client Served

Rating: 5

I have been a supporter of this charity for over 4 years now. This year they helped get NYS honor my 5 year old as a youth ambassador for Lymphedema and Lymphatic Disease and recognize Marh 6th as World Lymphedema Day! We need more awareness, support, and research to help our loved ones fight this disease! LE&RN strives for just that.

Volunteer

Rating: 5

Thanks to LE&RN so many from around the world are able to come together and fight Lymphedema.

When I met the folks at LE&RN back in 2011, I felt alone and afraid of what my future held. Now 5 years later and I have met thousands of Lymphatic patients and with the help of LE&RN been able to direct patients to them for education and hope. Without Research our hope would be totally lost.

Thank you to LE&RN for continuing to provide hope, faith, education and research!!!!

General Member of the Public

Rating: 5

LE&RN is an excellent source of education and compassion for lymphatic diseases. I've had Lymphedema and lipedema for most of my adult life and finally found a community that gives so much back to research and education. They also have wonderful people who volunteer for them

Becca K.

Volunteer

Rating: 5

LE&RN has opened the eyes of the world. Lymphedema and lymphatic diseases are more common than anyone would like to believe. Their dedication to Education and research is phenomenal. So many changes in the lymphatic community have happened over ther years because of the research this organization helps fund. As a Lymphedema patient, I can honestly say they were a lighthouse in the midst of a storm. Thank you LE&RN!!!

1

Volunteer

Rating: 5

I developed lymphedema years ago as a result of cancer surgery, lymph node removal and radiation. At first, no one knew what it was and then finally, I was one of the lucky people who had it properly diagnosed. At first I was scared and alone and knew no one else that had lymphedema. And then I was introduced to LE&RN and everything changed. Through this wonderful organization, I met other people who had similar questions and concerns as me. And as I started going to events and lectures, I learned more and more about how to help myself and others. And now every year I attend the annual LE&RN Walk and help to raise money for further research and awareness.

1

Volunteer

Rating: 5

I was one of many with lymphedema who was misdiagnosed for years and years. I went from doctor to doctor, was put on diuretics for "water weight", and found that no one could help me with the enormous pain, stiffness and swelling in my lower legs and feet. I finally found out what I had only two years ago, at the age of 63, when I was introduced to a physical therapist with a specialty in treating lymphedema. I still felt very alone, until one night when my husband was flipping TV channels and happened upon Kathy Bates being interviewed about her own battle with lymphedema and the organization she was spokesperson for -- LE&RN. I was thrilled and immediately went on the website to sign up for the newsletter. I now hope to encourage and support others as co-chair of LE&RN's Florida Chapter. This is a very worthwhile nonprofit, and an organization which deserves recognition for the help and awareness it provides to both those who have lymphedema and those providing treatments and hopefully one day cures.

1

General Member of the Public

Rating: 5

Being in the dark for so many years thinking I was the only one out there until I came across LE&RN. This organization has not only helped me find myself again but it has given me hope with the amount of research that has been going on thanks to them. I am now a Co-Chair for the Missouri Chapter and very proud to be part of this organization. I am no longer a lone.