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Phone: 1.800.818.RETT
4600 Devitt Drive
Ohio 45246

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Programs: IRSF is the world’s leading private funder of basic, translational and clinical Rett syndrome research, funding over $28M in high-quality, peer-reviewed research grants and programs to date. Annually, IRSF hosts the world’s largest gathering of global Rett researchers and clinicians to establish research direction and priorities while exchanging ideas and the most recent information. IRSF is the most comprehensive non-profit organization dedicated to providing thorough and accurate information about Rett syndrome, offering informational and emotional family support, and stimulating research aimed at accelerating treatments and a cure for Rett syndrome and related disorders. IRSF has earned Charity Navigator’s most prestigious 4 star rating. To learn more about IRSF and Rett syndrome, visit www.rettsyndrome.org or call IRSF at 1-800-818-RETT (7388).


 The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while improving the overall quality of life for those living with Rett syndrome by providing information, programs, and services.



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My daughter has Rett syndrome, and it robbed her of every skill needed for independence by 18 months of age. We lost our way as parents with this diagnosis. But with the immediate help and information from this organization, I was gifted trusted information and a solid foundation from which to be ... more »
Trying to find out any information about this foundation is practically impossible from the IRSF website - it's unbelievable that their Annual Report and 990 have not been updated since 2010... more »
IRSF has been helping families who have a child with Rett Syndrome for many years. It is an excellent source for information, ideas, therapies, advice and hope for Rett families. I'm a busy working mom and my daughter with Rett is 28 years old. I turn to this organization to keep me updated in ... more »
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