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Phone: 888-387-3667
11111 W 95th St
Ste 260

Overland Park
Kansas 66214
USA
Website
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Target demographics: All age groups

Direct beneficiaries per year: People diagnosed with essential tremor and their families.

Someone who had 3 hours of volunteer time could: Start a support group and help dozens of people learn more about essential tremor in their community or distribute educational materials to healthcare providers.

Geographic areas served: International

Programs: Develops and Maintains Support Groups, facilitiates free community education seminars, promotes National ET Awareness Month, Develops educational Webinars, Webcasts, and Videos, Maintains an active Database that lists physicians whose expertise is movement disorders, and exhibits literature at national health conferences

Mission:
The mission of the International Essential Tremor Foundation (IETF) is to provide global educational information, services and support to children and adults challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.
Results:
We spend a great deal of time educating those with essential tremor about ET, the public and healthcare providers. This entails traveling to exhibit at national conferences, promoting and facilitating community education seminars, creating educational materials and tools such as webinars, webcasts and videos to provide support and distribute materials to the multiple support groups across the country.

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16 Reviews
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Average rating:
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11/09/13
The IETF has helped me get information and is a fabulous website to referr doctors teachers or others for more information. I have had ET since childhood, have got a son with it, but didn't have a name to it until a couple of years ago. Tje information and tips om their website will help in letting ... more »
05/18/13
I was diagnosed with ET during my twenties - during my college years. At first, I thought the shaking was just from stress, but I noticed that it got worse with physical activity. My doctor told me that any type of stress on the body - emotional or physical, will increase ET symptoms. Later, my ... more »
05/16/13
While I myself do not suffer from ET, a dear friend of mine does. I have seen how this organization has helped her and so many other in the most positive of ways. It is through such wonderful organizations as this that education and help is available. What a fabulous non-profit to donate to... more »
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Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation

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