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Phone: 888-387-3667
11111 W 95th St
Ste 260

Overland Park
Kansas 66214
USA
Website
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Target demographics: All age groups

Direct beneficiaries per year: People diagnosed with essential tremor and their families.

Someone who had 3 hours of volunteer time could: Start a support group and help dozens of people learn more about essential tremor in their community or distribute educational materials to healthcare providers.

Geographic areas served: International

Programs: Develops and Maintains Support Groups, facilitiates free community education seminars, promotes National ET Awareness Month, Develops educational Webinars, Webcasts, and Videos, Maintains an active Database that lists physicians whose expertise is movement disorders, and exhibits literature at national health conferences

Mission:
The mission of the International Essential Tremor Foundation (IETF) is to provide global educational information, services and support to children and adults challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.
Results:
We spend a great deal of time educating those with essential tremor about ET, the public and healthcare providers. This entails traveling to exhibit at national conferences, promoting and facilitating community education seminars, creating educational materials and tools such as webinars, webcasts and videos to provide support and distribute materials to the multiple support groups across the country.

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36 Reviews
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Average rating:
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10/01/14
I became aware I had inherited my mom and maternal grandmother's tremor when I was 20 years of age. I am now 61 years of age. IETF has helped me to learn about the current research and what is happening in the area of treatment. Also I find hope and connection from this organization... more »
10/01/14
A coworker actually introduced me to the IETF, and it has opened up so many new friendships for me. I have had tremors since I was a child, and I always felt so alone, felt I was a young person trapped in an old persons body. Now thanks to "Tremor Talk", IETF's magazine, and the Facebook page, "... more »
09/25/14
I meet with others with Essential Tremor monthly and have lunch. We often have a speaker and chat about new findings and aids to help minimize our shaking. The Foundation is the organizer for these meet-ups, and it is one way they've helped me... more »
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Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation

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