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Phone: 888-387-3667
11111 W 95th St
Ste 260

Overland Park
Kansas 66214
USA
Website
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Target demographics: All age groups

Direct beneficiaries per year: People diagnosed with essential tremor and their families.

Someone who had 3 hours of volunteer time could: Start a support group and help dozens of people learn more about essential tremor in their community or distribute educational materials to healthcare providers.

Geographic areas served: International

Programs: Develops and Maintains Support Groups, facilitiates free community education seminars, promotes National ET Awareness Month, Develops educational Webinars, Webcasts, and Videos, Maintains an active Database that lists physicians whose expertise is movement disorders, and exhibits literature at national health conferences

Mission:
The mission of the International Essential Tremor Foundation (IETF) is to provide global educational information, services and support to children and adults challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.
Results:
We spend a great deal of time educating those with essential tremor about ET, the public and healthcare providers. This entails traveling to exhibit at national conferences, promoting and facilitating community education seminars, creating educational materials and tools such as webinars, webcasts and videos to provide support and distribute materials to the multiple support groups across the country.

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33 Reviews
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Average rating:
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09/16/14
Before I was diagnosed with Essential Tremor, I'd only heard about it from articles about Katherine Hepburn many years ago. My diagnosis was a surprise to me, and when I talk to friends and family about it, no one seems to know anything about it either. Through the International Essential Tremor ... more »
09/13/14
I was diagnosed 2 years ago with Essential Tremor and at the time I had no idea what that was. So after some time surfing the internet, I found the IETF website and became informed. I also contacted an Essential Tremor Support Group Leader who encouraged me to become a group leader for my area; the ... more »
09/13/14
The small but capable, hard-working and dedicated staff is responsive, supportive, knowledgeable and does great work for people with ET. Cathy Rice just staged a seminar for us in Albuquerque. It was well-organized and gave the audience the latest information on research and tools to help attendees ... more »
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Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation
Latest Photo by International Essential Tremor Foundation

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