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ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   143 reviews 9,335

Address:

ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission:

ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results:

When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics:

All ages, all socioeconomic backgrounds.

Direct beneficiaries per year:

more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served:

While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide

Programs:

Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

2015 Top-Rated Nonprofit
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More Info

602-618-0183
http://www.askican.org/

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Reviews for ICAN, International Cancer Advocacy Network

Rating: 5 stars  

ICAN allows for working alongside renowned experts at the frontier of today's medicine. It is my conviction that ICAN's detailed letter of recommendation about me, written by ICAN's CEO Marcia Horn and ICAN's Director of Research Services Regina Marie Klopfer, enabled my admission into my first-choice graduate program. IUPUI (Indiana University-Purdue University Indianapolis) offers translational bioinformatics and other cutting-edge research areas in close association with the Indiana University School of Medicine, and I look forward to contributing what I learned under ICAN as a Health Disparities Research Intern.

I greatly enjoyed my time as an intern and Research Team Leader at ICAN. It was most productive, and the Research Teams are very well managed.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The staff is dedicated, patient centered, and continuously provides "above and beyond" individualized service.

 
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Rating: 5 stars  

There are simply not enough stars to rate International Cancer Advocacy Network (ICAN) as high as they should be rated! I am an elderly, low-income grandmother who has been recently diagnosed with Stage IV colon cancer. It was so, so scary at first. My experience with ICAN has been critical, life-saving, inspiring, motivating, empowering, and amazing! The ICAN advisors have helped me take charge of my Stage IV colon cancer diagnosis. ICAN has a tremendous knowledge base of cutting-edge advanced genetic and other cancer research that even the top-class practitioners in the United States do not *yet* use routinely with all their patients. ICAN has worked tirelessly, promptly, and caringly to help me 1) understand my diagnosis; 2) find the absolute world-class top doctors near my home; 3) introduced me and the doctors to advanced research to personalize my care; 4) supported me *every step* of the way with advice, interpretation of doctor's recommendations, and guidance; 5) provided inspirational, positive motivation to me. I am elated to report that, despite my very serious stage of cancer, and my elderly, low-income status with no other "connections" in the medical world except ICAN, I am making great progress towards curing this cancer! ICAN has helped me access the best treatment possible with their tremendous knowledge base of research and has helped me feel confident that I am getting the best cancer care available today in the United States -- for instance, the advanced genetic and protein profiling that ICAN has introduced to me and to my nationally-recognized top cancer doctors at one of our country's top cancer centers, would not have happened without ICAN's help. I only feel bad that I do not have the financial resources to help ICAN as much as they have helped me. I thank every and any person involved with ICAN -- volunteers, researchers, doctors, employees, and financial donors -- for giving me hope and changing my life. I am so confident in their value that I have been spreading the word about ICAN to other cancer patients I meet, including, tragically, even very young cancer patients. ICAN can make a difference, and I will also support them in any possible way that *I-CAN!*

 
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Rating: 5 stars  

ICAN is proving to be a leader in the fight against cancer. Working with patients to battle their unique challenges, the International Cancer Advocacy Network has helped countless families take on the task.

 
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Rating: 5 stars  

Over the past 6 years, I have had the pleasure of volunteering with ICAN and I can honestly say it is a wonderful experience. As Director of Research Services, I have the honor of working with some of the finest and most dedicated individuals around. Without Andrew Young (our Director of HR), Michele Ouellet (our Citation Editor), all of our extraordinary Research Team Leaders and as well as our truly committed Web Research…I can honestly we could never accomplish our goals so each and every one of them is truly appreciated on so many levels. ICAN is a truly amazing organization and it is truly needed in this world.

 
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Rating: 5 stars  

I have known ICAN for more than 15 years and can speak of their utmost integrity, efficacy and making an enormous difference in the patients and families who are facing cancer challenges. Not only do they have some of the best and up-to-date information but they continually reach out to those fighting this dreadful disease to help them navigate and understand the treatments and potentials to win their battles.

I can without hesitation endorse and encourage this organization as a 'best of the best' non-profits. I could not recommend them more highly.

 
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Rating: 5 stars  

We have known Marcia and seen her work tirelessly with ICANN from the beginning. She has helped many of our family members when we have needed assistance in the hospital or recommendations for the very best Dr. for any situation. She helped us find the very best Pediatric GI Specialist when our son was diagnosed with EE, she helped my sister when she was in the hospital in intensive care for Sepsis, helped our friend find a top fertility specialists in Phoenix and the list goes on. She is truly amazing and ICANN is essential for continuing to help people with their medical care with Cancer and many other medical situations. Marcia and ICANN are the first place we turn to when we need help and assistance with our medical needs. There truly are no words for how helpful they have been. Thank you Marcia.

 
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Rating: 5 stars  

ICAN and Marcia Horn have been the first place our family has turned to in several critical health situations. Marcia is amazing with her knowledge of Dr's and specialists for every medical situation that we have had to deal with. She has helped our son find one of the best Pedicatric Gastrointerologist in the nation to help him with his medical condition, pointed us in right direction when our Father was in a burn unit from an explotion, was one of the first to realize and help us when a family member was in intensive care and had sepsis and helped us in so many other instances. We can't say enough about ICAN and personally don't know what we would have done without Marcia and her kindness to always help us. She has been there for us and helped us at any hour and we feel blessed to have someone like Marcia and ICAN that we can turn to. Paula Shapiro

I've personally experienced the results of this organization in...

the way it has helped our family in many medical situations

If I had to make changes to this organization, I would...

I can only hope that they can receive more money so that they can take their advocay services to even more patients.

 
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Rating: 5 stars  

Truly amazing organization! I contacted ICAN for a friend of mine in China. Marcia and Scott provided valuable information and endless consultations. They are very sensitive to cultural barriers and practice differences and was able to put together a panel of experts from US and China to help my friend! I am so amazed by ICAN's powerful network, from cancer researchers, clinicians, to patient advocates. And it is this network of selfless, passionate, and knowledgeable experts who provide hope to my friend that the family and I are forever grateful.

 
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Rating: 5 stars  

After our world was turned up-side-down with my husbands cancer diagnosis we didn't know where to turn. An acquaintance mentioned ICAN. The information, support, service and attention we received far exceeded any expectations. Marcia responded after hours and on weekends to get us information and help us navigate our way through the confusion. Phenomenal organization!!! Incredible woman. Thank you from the bottom of our hearts!!!
Forever Grateful, the Milazzo Family

 
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Rating: 5 stars  

As a volunteer in a local "Wig Boutique" I am in contact with cancer patients on a daily basis. Many of them have talked positively about their ICAN experience and specifically mentioned Sherry Weinstein as a fabulous resource for them. Her compassion, patience and persistence in assisting them in their quests for knowledge have comforted them and led them to treatments not before known to them. I have personally spoken to her and feel that her representation as Chairman of the Board of Trustees of ICAN is exemplary and that this organization goes above and beyond the basics at all times in order to aid those in need. We all need to support ICAN with donations so they can continue their inspirational work.

 
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