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Ican, International Cancer Advocacy Network

Rating: 4.99 stars   140 reviews 8,592

Nonprofit Issues:

Technology, Health, Philanthropy, Cancer

Address:

ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission:

ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results:

When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics:

All ages, all socioeconomic backgrounds.

Direct beneficiaries per year:

more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served:

While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide

Programs:

Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

2015 Top-Rated Nonprofit
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More Info

602-618-0183
http://www.askican.org/

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Reviews for Ican, International Cancer Advocacy Network

Rating: 5 stars  

ICAN is proving to be a leader in the fight against cancer. Working with patients to battle their unique challenges, the International Cancer Advocacy Network has helped countless families take on the task.

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Rating: 5 stars  

Over the past 6 years, I have had the pleasure of volunteering with ICAN and I can honestly say it is a wonderful experience. As Director of Research Services, I have the honor of working with some of the finest and most dedicated individuals around. Without Andrew Young (our Director of HR), Michele Ouellet (our Citation Editor), all of our extraordinary Research Team Leaders and as well as our truly committed Web Research…I can honestly we could never accomplish our goals so each and every one of them is truly appreciated on so many levels. ICAN is a truly amazing organization and it is truly needed in this world.

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Rating: 5 stars  

I have known ICAN for more than 15 years and can speak of their utmost integrity, efficacy and making an enormous difference in the patients and families who are facing cancer challenges. Not only do they have some of the best and up-to-date information but they continually reach out to those fighting this dreadful disease to help them navigate and understand the treatments and potentials to win their battles.

I can without hesitation endorse and encourage this organization as a 'best of the best' non-profits. I could not recommend them more highly.

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Rating: 5 stars  

We have known Marcia and seen her work tirelessly with ICANN from the beginning. She has helped many of our family members when we have needed assistance in the hospital or recommendations for the very best Dr. for any situation. She helped us find the very best Pediatric GI Specialist when our son was diagnosed with EE, she helped my sister when she was in the hospital in intensive care for Sepsis, helped our friend find a top fertility specialists in Phoenix and the list goes on. She is truly amazing and ICANN is essential for continuing to help people with their medical care with Cancer and many other medical situations. Marcia and ICANN are the first place we turn to when we need help and assistance with our medical needs. There truly are no words for how helpful they have been. Thank you Marcia.

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1 previous review
Rating: 5 stars  

ICAN and Marcia Horn have been the first place our family has turned to in several critical health situations. Marcia is amazing with her knowledge of Dr's and specialists for every medical situation that we have had to deal with. She has helped our son find one of the best Pedicatric Gastrointerologist in the nation to help him with his medical condition, pointed us in right direction when our Father was in a burn unit from an explotion, was one of the first to realize and help us when a family member was in intensive care and had sepsis and helped us in so many other instances. We can't say enough about ICAN and personally don't know what we would have done without Marcia and her kindness to always help us. She has been there for us and helped us at any hour and we feel blessed to have someone like Marcia and ICAN that we can turn to. Paula Shapiro

I've personally experienced the results of this organization in...

the way it has helped our family in many medical situations

If I had to make changes to this organization, I would...

I can only hope that they can receive more money so that they can take their advocay services to even more patients.

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Rating: 5 stars  

Truly amazing organization! I contacted ICAN for a friend of mine in China. Marcia and Scott provided valuable information and endless consultations. They are very sensitive to cultural barriers and practice differences and was able to put together a panel of experts from US and China to help my friend! I am so amazed by ICAN's powerful network, from cancer researchers, clinicians, to patient advocates. And it is this network of selfless, passionate, and knowledgeable experts who provide hope to my friend that the family and I are forever grateful.

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Rating: 5 stars  

After our world was turned up-side-down with my husbands cancer diagnosis we didn't know where to turn. An acquaintance mentioned ICAN. The information, support, service and attention we received far exceeded any expectations. Marcia responded after hours and on weekends to get us information and help us navigate our way through the confusion. Phenomenal organization!!! Incredible woman. Thank you from the bottom of our hearts!!!
Forever Grateful, the Milazzo Family

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Rating: 5 stars  

As a volunteer in a local "Wig Boutique" I am in contact with cancer patients on a daily basis. Many of them have talked positively about their ICAN experience and specifically mentioned Sherry Weinstein as a fabulous resource for them. Her compassion, patience and persistence in assisting them in their quests for knowledge have comforted them and led them to treatments not before known to them. I have personally spoken to her and feel that her representation as Chairman of the Board of Trustees of ICAN is exemplary and that this organization goes above and beyond the basics at all times in order to aid those in need. We all need to support ICAN with donations so they can continue their inspirational work.

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Rating: 5 stars  

When my father-in-law was diagnosed with cancer several years ago, we learned about ICAN from some friends who referred us to Sherry Weinstein. She was wonderful at putting us in contact with the people at ICAN who were able to advise us on how to understand what was happening and what dad's options were. I have contributed to them and would recommend that others support ICAN's efforts.

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Rating: 5 stars  

Marcia Horn and ICAN work tirelessly in an effort to serve those in need. The patients are always put first and Marcia answers all inquiries almost immediately. She and her staff have an amazing amount of information at their fingertips, and can help direct patients very quickly to those that can help them. My husband and I are very grateful to ICAN and Marcia and we are in wonder of all they can do as advocates. They deserve and need more funding so they can reach more people that find themselves needing answers and direction at a time when all seems so frightening and confusing. Marcia and her team are just incredible.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

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Rating: 5 stars  

This is what is needed: a place where cancer patients are the "important". Marcia Horn and ICAN are there for you. Present, helping you, advising you, and you feel their help is real, efficient, effective, and caring. I can't and I don't want to imagine this "journey" without her.

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