ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   128 reviews 3,748

Issues: Technology, Health, Philanthropy, Cancer

Location: ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).
Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."
Target demographics: All ages, all socioeconomic backgrounds.
Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.
Geographic areas served: While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide
Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org
2014 Top-Rated Nonprofit
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EIN 86-0818253
602-618-0183
http://www.askican.org/

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Community Reviews

Rating: 5 stars  

My brother in law was given a short window to live and I recommended that my sister call and within ten minutes Marcia the president was giving wise counsel they needed to extend his life in a quality way.
Just last month one of my clients mentioned that her chemo drug was no longer going to be available through insurance. One call to Ms. Horn and she is now receiving her medication. Her response was, "Last week we had no hope but this week we have hope."
Marcia Horn is truly amazing and has assembled a team that is second to none.

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Rating: 5 stars  

Marcia Horn is amazing. I sent her an email when I first got her name, and she was back to me on the phone in 10 minutes. Prompt, extremely knowledgeable, and ready any time , day or night, to discuss my brother's cancer treatment. I don't know what we would have done without her. And I'm very thankful she was there for us.

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Rating: 5 stars  

My wife has been dealing with stage IV lung cancer for 3 + years. She and I had the good fortune, almost by accident, to become clients more than a year ago. I cannot really begin to say how much Marcia has helped us - both in practical ways and in many less tangible but perhaps even more important emotional ways. She has always made herself available practically 24/7 to answer question, bounce ideas off, offer advice, etc., etc. , etc. Really this list just goes on and on. She is always upbeat, always positive, and always persistent. They really could use help to raise funds so that they can serve more clients.

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Rating: 5 stars  

Marcia Horn at ICAN, a leading cancer advocacy group, is in total service to her cancer patients. Her personal phone calls were beneficial to our understanding of the process; the medical terms, the tests, the legalities, the doctors and services. We were so surprised when she called us, herself— and spoke with my husband—sometimes for 2 hours, late into the night. She understands the stress, the horrors of cancer diagnosis and she is trained to read medical tests and patient files. She is all action and knows the facts. When predatory cancer organizations stuff their pockets with patient contributions and give nothing to the families, hers is a free service for anyone in need. Thank you ICAN for your dedication and compassion.

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Rating: 5 stars  

Wow, words cannot express my thanks to Marcia Horn & the ICAN organization. I called ICAN on a Saturday morning & left my name & number. Within minutes I received a phone call from Marcia Horn. Marcia spent over an hour talking to my husband & I. I called to inquire about help for my brother who has renal cell carcinoma. She provided some excellent referrals & even agreed to speak to my brother & his wife. Later that day, again she spent over an hour speaking with our entire family. Marcia answered questions & provided the encouragement which we all needed. We have continued to contact Marcia daily & she responds within a few minutes. She & ICAN are amazing. What a wonderful service they provide at such a difficult time in people's lives. Thank you to ICAN & Marcia for being there. We are so very grateful!

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Rating: 5 stars  

When our mother was stricken with ovarian cancer our family did not know where to turn. We heard about ICAN and Marcia Horn. When we contacted Marcia she was more then happy to meet with my family and help guild us through what was happening and what to expect along with some options. Even being over 3000 miles away it was nice to know there was someone great in our corner. I can't thank Marcia & ICAN enough for all her help and leadership.

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Rating: 5 stars  

This is an amazing organization! I have volunteered and worked with Marcia Horn and ICAN for a number of years and enjoyed raising money and making great friends. Suddenly a few months ago ICAN took on a different meeting in my life when I was informed that a close friend was diagnosed with Ovarian cancer. As soon as I received the information, I called Marcia and she went to work and spoke personally with my friend. Never mind that it was 9:45pm on a Friday night. Marcia took the bull by the horns and gave specific step by step instructions and phone numbers. As a result, and due to our fast acting, my friend is now 94% cancer free. The entire process from diagnosis to final results was 3 weeks. Without Marcia Horn and the ICAN organization, my friend would never have received the level of care that she did. Thank you!

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Rating: 5 stars  

There are angels on this earth!!!


I landed on the ICAN website by way of a recommendation from a friend and I had a mortal angel fly in and land on my doorstep. Her name is Marcia Horn of ICAN and she turned our world from Black and White to Technicolor! From out first meeting she went out of her way to make some great suggestions and recommend state of the art ways of dealing with my mom (Pearl) Ovarian Cancer. She helped us line up some good doctors and was always around to help our family to answer any questions we had on the labyrinth of cancer therapies.

ICAN is a great resource and I recommend it to anyone who must face a cancer therapy and is unsure where to turn, to consult with ICAN.

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Role: Professional with expertise in this field
Rating: 5 stars  

My association with ICAN started five years ago when I joined as Web Research Intern, transitioned to Research Team Leader and now working as member of International Physicians Council. During my time at ICAN, I've been extremely impressed by the program's commitment towards health care and cancer research excellence. Personally, I feel so blessed and grateful to have known and worked with such fantastic team without whose dedication and commitment, the gargantuan task of cancer projects can't be completed.

Not only have I enjoy working with Regina (Director Research Services), I learnt the dynamics of effective team management. She has always stood by me and my team whenever we need her and smoothed many hitches by her unconditional hand of cooperation at all times. Her strong work ethic, uplifting spirit, and wonderful attitude makes her an asset for ICAN.

Another person whom I've really enjoy working is Michèle . She is a brilliant Citation Editor who painstakingly corrects every assignment that is sent her way . She has a remarkable ability to oversee a large project without losing sight of the little things.

Last but not the least, The dynamic and passionate leadership of Marcia makes this Non Profit stand out amongst others. I feel that Marcia is an exceptional leader and a genuinely good person. Not only she brings a keen intellect to all quarters of ICAN, she enhances the ICAN community with her worldliness and humanism.

Because though I have branched out higher, the roots have grown a bit more deeper .
As they say " Even the smallest act of caring for another person is like a drop of water -it will make ripples throughout the entire pond...”
I sincerely hope that our ICAN family ripples reach far and wide and make difference in lives of those in need.

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1 previous review
Rating: 5 stars  

ICAN has been a wonderful organization to work with. It truly celebrates diversity by bringing together people of different cultures, backgrounds and professions at crux of passion : of helping others. My journey with has been amazing as well as rewarding for ICAN helped me grow as a professional as well as person. Being a Research Team Leader,I had an opportunity to work closely with CEO, Marcia K Horn and Director Research Services, Regina Marie Klopfer. Found them thoroughly professional and always there to smooth the glitches for the team members. ICAN's deep commitment towards empowering late stage cancer patients with latest treatments and approaches speaks volumes for the kind of inspiring organization it is. Outstanding Patient care, high volunteer satisfaction and high professionalism makes ICAN a class apart

I strongly recommend and urge to support ICAN in any way you can. It definitely needs more funding so that even more patients can be helped!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

I've said it before and I'll happily say it again: in my sixteen years volunteering for ICAN (including about eight years serving as Chairman of the Board), I continue to see miracles happen ... lives being extended with the best possible quality of life. Because of the extremely worthy work done by all those on Team ICAN, I become recommitted - every day - to that team and to those patients who count on us. With day-to-day eyewitnessing of ICAN's small but mighty staff and its more than 1000-strong volunteer base working around the world and around the clock, I am convinced that ICAN is THE most patient-friendly and helpful cancer organization on the planet. With more funding dollars, we would be able to help that many more desperate patients, and if I were to win the lottery, I would put a little away to take care of my family and then donate the rest to ICAN.

If I had to make changes to this organization, I would...

Find 'angel' donors whose financial support would allow this organization to help all those who come to our doors, without ever having to put any patient on a waitlist.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

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1 previous review
Rating: 5 stars  

As Chairman of the Board of ICAN, I am the organization's lead volunteer and cheering squad for our very small staff and hundreds of volunteers around the world! In the thirteen plus years during which I have volunteered for ICAN, I have witnessed the amazing work done by this organization, along with the gratitude of countless patients and their families. I truly believe that of all the cancer organizations on the face of the planet, ICAN is the only one that actually “goes to bat” for patients and their families … extending lives and improving patient quality of life along the way. Every day, I am reminded by grateful patients that all volunteer efforts and donor support for ICAN could not go to a more worthy organization.

I've personally experienced the results of this organization in...

hearing from grateful patients and their families, many of whom had not been helped by some of the more high profile cancer organizations.

If I had to make changes to this organization, I would...

find some wealthy people who could give us the support we need to help even more patients around the U.S. and around the world.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2012

How did you learn about this organization?

In 1998, my cousin's 29-yr-old daughter was dying of melanoma. At that time, I read an article in Phoenix Magazine about an anticancer drug developer (Dr. George Pettit), who went into the rainforests and the oceans around the world, looking for anticancer compounds, which he would then try to replicate in the lab. The article mentioned that if readers wanted more information, they should contact Marcia Horn at IFADD (International Foundation for Anticancer Drug Discovery, which was the organization's name until several years ago when we changed it to ICAN). At that time, I called Marcia who immediately did research for this cousin of mine and was able to provide the family with some critical information (that none of us could find elsewhere). I was so grateful to Marcia and inspired by the help and resources that she and the organization provided to us that I offered my help. And now, more than thirteen years later, I am more inspired than ever.

What is this organization's top short-term priority?

For cancer patients, our most critical priority today is molecular profiling, which will give doctors the most complete information on exactly what might best fight that patient's particular cancer, bringing about THE most effective "personalized medicine" treatment for every cancer patient. For ICAN, our most critical priority is to have the funds that will allow us to act as an advocate for every patient who might benefit from our services.

What is its top priority in the long run?

Exactly the same priorities as short-term (above).

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1 previous review
Rating: 5 stars  

Speaking as an ICAN (International Cancer Advocacy Network) insider, I can personally vouch for the fact that whatever donors and volunteers put in to this organization, be it donations and or time, they get back twice as much in satisfaction and gratification that their efforts are truly helping cancer patients fight for their lives. How do I know? I’ve been a very active ICAN (formerly IFADD) volunteer since 1998. At that time, Marcia Horn - ICAN's heroic leader - researched my cousin's cancer at my behest and was able to present some critical information (that we could not find elsewhere) to the family. I was so grateful to Marcia and inspired by the help and resources that she and the organization provided to my cousin that I offered my help. And now, more than twelve years of just about full time pro bono work for ICAN, I am more inspired than ever.

Of all the cancer organizations on the face of the planet, I believe that ICAN is the only one that is truly "in the trenches" with patients and their families … extending lives and improving patient quality of life along the way. It’s become sort of “legend” around ICAN circles that if I were to win the lottery tomorrow, I’d reserve a little for my family and then give the lion’s share to ICAN, as it could not go to a more worthy organization that literally works 24/7 to be a virtual lifeline for proactive cancer patients.
Sherry Weinstein, Chairman
ICAN Board of Trustees

I've personally experienced the results of this organization in...

Having met - in person, on the phone, or via email - many grateful cancer patients (or their families) who say that ICAN is greatly responsible for the "extra years" they've gotten, or for enhancing their quality of life. That's all the proof I need to keep me motivated to continue my work with ICAN for the next twelve years!

If I had to make changes to this organization, I would...

The only change I'd make is to try and find more "angel donors" so that ICAN would be able to provide its unique services to an ever-greater number of patients around the world.

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