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ICAN, International Cancer Advocacy Network

Rating: 4.99 stars   149 reviews 9,413

Address:

ICAN Program Services (by appointment at our Metrocenter Phoenix offices) 27 West Morten Avenue Phoenix AZ 85021-7246 USA

Mission:

ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results:

When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 19 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics:

All ages, all socioeconomic backgrounds.

Direct beneficiaries per year:

more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served:

While we are headquartered in Phoenix/Scottsdale, we work throughout the USA and US territories; 53 countries worldwide

Programs:

Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

2015 Top-Rated Nonprofit
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More Info

602-618-0183
http://www.askican.org/

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Reviews for ICAN, International Cancer Advocacy Network

Role: Professional with expertise in this field
Rating: 5 stars  

Marcia Horn and ICAN have helped so many patients navigate the oncology world by providing resources and time to get the best care in the country. They are able to get access to almost any provider and drug available if that is what it takes to help a patient. ICAN doesn't take No for an answer and provides hope for families that often feel they have no other help or resources by helping them empower themselves through the complicated world of oncology. They need as much funding as possible because it means more patients can stay alive and beat cancer.

 
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Rating: 5 stars  

We heard of Marcia Horn and ICAN through a cousin, who was working in the medical field, and my husband just took a chance, at the beginning of our journey with bc, and called her cold without any introduction, and even though we have never met her in person, she has been a rock for my husband, as she responds to his every email, with positive information and support. This began in 2013 and he still corresponds with her till this very day. Thank you Marcia and ICAN. from Marilyn in Tennessee.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

ICAN needs more funding to be able to work for more patients!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2016

 
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Role: Professional with expertise in this field
Rating: 5 stars  

ICAN is a fantastic resource for patients and a topnotch advocacy organization. I have referred patients to ICAN and they go above and beyond to assist patients in need of resources as they struggle with a cancer diagnosis regardless of the location of the patient. They are well versed in the latest research and clinical trials. They have resources far and wide around the country through their strong relationships with patient volunteers as well as medical and academic contacts. I will continue to refer patients in need to ICAN.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

Amazing organization. I referred friend who had Stage 3 lung cancer. This is precision medicine as it was intended to be.

 
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Role: General Member of the Public
Rating: 5 stars  

This is a unique and world-class nonprofit which does what (to my knowledge) no other nonprofit world-wide does on behalf of the most critically-ill cancer patients. The tributes to this organization from patients and their families are endless, employing expressions like "you saved my life" and "we will never be able to adequately thank you." Yet ICAN remains scrupulously objective, realistic, and science-based in its approach to helping patients, doing what no doctor does or can do: seek out and advocate the best cancer care and clinical trials available in the entire arena of cancer therapies. The fact that this organization is international and that it charges nothing for its services is truly miraculous.

 
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Rating: 5 stars  

ICAN allows for working alongside renowned experts at the frontier of today's medicine. It is my conviction that ICAN's detailed letter of recommendation about me, written by ICAN's CEO Marcia Horn and ICAN's Director of Research Services Regina Marie Klopfer, enabled my admission into my first-choice graduate program. IUPUI (Indiana University-Purdue University Indianapolis) offers translational bioinformatics and other cutting-edge research areas in close association with the Indiana University School of Medicine, and I look forward to contributing what I learned under ICAN as a Health Disparities Research Intern.

I greatly enjoyed my time as an intern and Research Team Leader at ICAN. It was most productive, and the Research Teams are very well managed.

 
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Role: Professional with expertise in this field
Rating: 5 stars  

The staff is dedicated, patient centered, and continuously provides "above and beyond" individualized service.

 
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Rating: 5 stars  

There are simply not enough stars to rate International Cancer Advocacy Network (ICAN) as high as they should be rated! I am an elderly, low-income grandmother who has been recently diagnosed with Stage IV colon cancer. It was so, so scary at first. My experience with ICAN has been critical, life-saving, inspiring, motivating, empowering, and amazing! The ICAN advisors have helped me take charge of my Stage IV colon cancer diagnosis. ICAN has a tremendous knowledge base of cutting-edge advanced genetic and other cancer research that even the top-class practitioners in the United States do not *yet* use routinely with all their patients. ICAN has worked tirelessly, promptly, and caringly to help me 1) understand my diagnosis; 2) find the absolute world-class top doctors near my home; 3) introduced me and the doctors to advanced research to personalize my care; 4) supported me *every step* of the way with advice, interpretation of doctor's recommendations, and guidance; 5) provided inspirational, positive motivation to me. I am elated to report that, despite my very serious stage of cancer, and my elderly, low-income status with no other "connections" in the medical world except ICAN, I am making great progress towards curing this cancer! ICAN has helped me access the best treatment possible with their tremendous knowledge base of research and has helped me feel confident that I am getting the best cancer care available today in the United States -- for instance, the advanced genetic and protein profiling that ICAN has introduced to me and to my nationally-recognized top cancer doctors at one of our country's top cancer centers, would not have happened without ICAN's help. I only feel bad that I do not have the financial resources to help ICAN as much as they have helped me. I thank every and any person involved with ICAN -- volunteers, researchers, doctors, employees, and financial donors -- for giving me hope and changing my life. I am so confident in their value that I have been spreading the word about ICAN to other cancer patients I meet, including, tragically, even very young cancer patients. ICAN can make a difference, and I will also support them in any possible way that *I-CAN!*

 
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Rating: 5 stars  

ICAN is proving to be a leader in the fight against cancer. Working with patients to battle their unique challenges, the International Cancer Advocacy Network has helped countless families take on the task.

 
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