HOPE FOR TRISOMY 13 AND 18 INC

Rating: 5 stars   3 reviews

Issues: Cancer

Location: 14850 Fripp Island Ct % Alex Hauber Naples FL 34119 USA

Mission: The mission of Hope For Trisomy is to fund research for Trisomy 13 & 18 and related chromosome disorders, develop programs that educate parents of children with Trisomy about options available to their child and teach them how to advocate for their child to receive all available treatment, and to create materials, literature, workshops, seminars, and conferences to educate the medical health professionals, the parents, and the public about Trisomy 13 and 18, so they have accurate and current information and resources available to them.
Results: Most of our Donated Money goes to our Bears Program. These are Bears that are given to Children with Trisomy and or Parents that have lost a Trisomy Child.
Target demographics: Trisomy Children and Parents
Direct beneficiaries per year: 200+
Geographic areas served: International
Programs: Gemma's Bears, Payton's Bears
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More Info

EIN 20-5808571
(866)977-6637
http://www.hopefortrisomy13and18.org

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Role: General Member of the Public
Rating: 5 stars  

I have a daughter that's almost 4 yrs old with TRISOMY (she's 9p) and from experience its hard to find true factual answers about anything trisomy....I greatly appreciate Hope For Trisomy nonprofit group for being public resource accessible and are working hard, doing research which, I'm sure all trisomy families(I do), are doing on daily basis'......I greatly, heartedly thank them for forwarding their knowledge & bringing families together to share with each other!!!!!! Trisomy family in VA...

Will you volunteer or donate to this organization?

Likely

How much of an impact do you think this organization has?

A lot

When was your last experience with this nonprofit?

2013

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Rating: 5 stars  

Great Charity that supports Trisomy Families and really cares about our Children. The Gemma Bears are a very nice Gift from Hope for Trisomy

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

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Role: General Member of the Public
Rating: 5 stars  

For me, this charity organization started out as TAG (Trisomy Advocacy Group). Alisha Hauber was my first contact with this group. She is a wonderful Mom to a full Trisomy 18 boy named Lane. They both have inspired me and encouraged me so much with their Trisomy Journey. I am a grandmother to a beautiful full Trisomy 18 Granddaugher, Delainey Belle. She has so much in common with Lane that it was easy to relate to this wonderful Mom and her beautiful son. Alisha is very knowledgeable and she shares that knowledge with everyone through the new group Hope for Trisomy 13 and 18 Inc. I love reading the Trisomy Mommies posts and try to encourage them where I can. I help care for my granddaughter so i can relate to the needs these children have. Alisha's husband, Alex, is a wonderful Dad and advocate for their son, too. It's so nice to see a husband and wife united in a cause to help their son and reach out to others in need as well. I feel very fortunate to have this valuable group in my life. Thank you Alisha and Alex!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2012

Was this review helpful?