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Global Genes | RARE Project Overview
Global Genes | RARE Project strives to serve as one of the leading rare disease patient advocacy organizations world-wide.Global Genes | RARE Project’s mission is to unify the international rare and genetic disease community by providing connections and resources to ease the burdens of affected families. Recognized by the Blue Denim Genes Ribbon™, the organization unites experts, advocates and patients of all ages to stand together in hope for treatment and cures for 7,000 rare diseases and all undiagnosed diseases. www.globalgenes.org - https://www.facebook.com/globalgenesproject
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Global Genes/RARE Project filled a much-needed role in the rare disease community. Previously, many people suffering from rare diseases had no place to turn, until Nicole Boice started this outstanding organization. She has given families hope in many ways: by working with biotech companies to ...
Global Genes plays a very important role in the rare disease advocacy space. While most organizations are focused on specific diseases, Global Genes is focused on supporting all of those advocacy groups, empowering them to better serve their own missions, as well as increasing awareness about rare ...
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I am in awe of this organization and its dedication to those suffering from rare diseases. It's so heartwarming to hear and read the stories of those less fortunate. This organization is all about love...
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