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Phone: 949.248.RARE
28 Argonaut
Suite 150

Aliso Viejo
California 92656
USA
Website
2013 Top-rated nonprofits and charities

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Geographic areas served: National/Global

Programs: Our Three Primary Goals: it’s all about the patient
* Education/Awareness
--- For the rare disease community
--- For the general public
--- Policymakers / Government

* Build and Support an empowered community
--- Build a collective voice
--- Build a connected network
--- Develop resources and tools that help families on their journey

* Fund innovations in research that impact rare disease patients within their lifetime

Mission:
Global Genes | RARE Project strives to serve as one of the leading rare disease patient advocacy organizations world-wide.Global Genes | RARE Project’s mission is to unify the international rare and genetic disease community by providing connections and resources to ease the burdens of affected families. Recognized by the Blue Denim Genes Ribbon™, the organization unites experts, advocates and patients of all ages to stand together in hope for treatment and cures for 7,000 rare diseases and all undiagnosed diseases. www.globalgenes.org - https://www.facebook.com/globalgenesproject
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11/06/13
Global Genes/RARE Project filled a much-needed role in the rare disease community. Previously, many people suffering from rare diseases had no place to turn, until Nicole Boice started this outstanding organization. She has given families hope in many ways: by working with biotech companies to ... more »
Global Genes plays a very important role in the rare disease advocacy space. While most organizations are focused on specific diseases, Global Genes is focused on supporting all of those advocacy groups, empowering them to better serve their own missions, as well as increasing awareness about rare ... more »
10/21/13
I am in awe of this organization and its dedication to those suffering from rare diseases. It's so heartwarming to hear and read the stories of those less fortunate. This organization is all about love... more »
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