Blessed to have found this organization.
Although I feel pressured to donate it is a good organization.
It has a huge turnover in staff, you never who you will see when you walk through the door.
That may contribute to the disorganization that goes on with programs .
Would like to see more transparency with the donations and grants . Not sure where all the money is being used for , salaries maybe?
Over it has been wonderful for my family for the past four years .
When our daughter was diagnosed at birth with DS, I knew little and was very afraid and heartbroken. A nurse introduced me to a calendar that this organization put together. It showed kids with DS dressed up as firemen, businessmen, princesses, football players, ballerinas, etc. and it was a turning point for us, showing us it was okay to dream. Not sure what I would have done without them.
After a week in the NICU, we stopped by here and they congratulated us on our child and made us feel at home. Through out the time since then they have regularly organized classes, group therapies, playtime for the kids (meet Santa, etc.) and a chance for parents to network and learn from each other. I learned so much from the parents that saved me hundreds of hours of reading and research on topics like estate planning, navigating early intervention, transitions into schools, best and worst doctors,etc.
This is an awareness center and a support group that changes lives of families and people who have DS for the better. Best charity I have ever come to know!