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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Heart & Circulatory System Diseases & Disorders

Mission: Congenital heart defects (CHDs) are the most common birth defect in the United States, affecting nearly 1 in every 100 babies. Gavin's diagnosis was determined at our 20 week sonogram as Double Outlet Right Ventricle (DORV) with Transposition of the Great Arteries (TGA), coarctation of the aortic arch, and a VSD. He was born at Columbia Presbyterian Hospital and undoubtedly had a challenging road ahead of him. At only six days old, we put Gavin in the hands of Dr. Emile Bacha as he underwent a seven-hour open heart surgery. Complications brought Gavin back to the operating room thirteen days later, to have a permanent pacemaker implanted; complete heart block being a complication of his first surgery. After two open heart surgeries before he was three weeks old and six and a half weeks in the NICU, Gavin has shown us what is truly important in life. Gavin is our heart hero...although small in size, he continues to inspire us in a BIG way!

Results: Since December 2012, we have been able to donate over $35,000 to heart families, Morgan Stanley Children's Hospital at Columbia Presbyterian Hospital in New York (specifically the Single Ventricle Clinic), and Cohen Children's Medical Center to fund heart screenings for students to detect undiagnosed CHDs!

Target demographics: families with children affected by congenital heart defects

Geographic areas served: New York (mainly)

Community Stories

14 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

GGH is a non-profit organization run by a very generous and wonderful family. They help out other families/ children deal with the same situation that they are dealing with. It gives hope, love and support to all who need it. It is amazing to see all they do and may God Bless them!!!

General Member of the Public

Rating: 5

Gavin's got Heart is a wonderful organization. They have done so much and come so far in a short time. The board really cares about everyone they help.

General Member of the Public

Rating: 5

Gavin's Got Heart is an incredible foundation near and dear to my heart. Their generousity, selflessness and relentless drive to raise CHD awareness is beyond words. My son also has several severe heart defects and I am so grateful for all that they do to raise awareness and give support. The family behind this organization is simply wonderful, their hearts are bigger than most.
- A fellow heart momma

Chase D.

General Member of the Public

Rating: 5

This nonprofit was organized and is run by the most amazing family. The generosity and compassion of Gavin's Got Heart owners comes through to the organization. The organization host many events each year to raise funds for its cause which satisfies a niche need that is so very important to families with children affected by congenital heart disease. Events such as walks, fishing trips, & summer blasts, are some of the ways the organization spreads awareness and raises funds. The owners of this family organization make this charity really special because of the personal efforts that they put into each and every detail. Any pledged support is so graciously accepted and directed to the cause. This organization is truly a top representative of its cause and should be considered among others as well.

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gavinsgotheart 10/29/2013

Thank you, thank you, THANK YOU so much for taking the time to write this kind review Chase! Your support means more to us than we could ever say!

Amanda111

Donor

Rating: 5

This organization is very near and dear to my heart! It was founded by my sister and brother-in-law who, in the words of Oprah Winfrey, “turned [their] wounds into wisdom.” Instead of crumbling under the circumstances they were given, they have used their personal experience and positive energy to create an organization to help those in similar situations. They are two of the most loving, selfless people out there who put their hearts and souls into everything they do, and “Gavin’s Got Heart” is no exception! I have donated and will continue to donate to this wonderful organization as much and as often as I possibly can. I love the fact that you know exactly where and who your money is going to help; it gives it a personal touch that many other organizations lack, in my opinion. I can’t say enough great things about this cause and am confident of the success this NPO’s future holds! For more information, visit www.gavinsgotheart.org and follow them on their facebook page at www.facebook.com/GavinsGotHeart

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gavinsgotheart 10/28/2013

You are the absolute BEST Amanda! Thank you, thank you, THANK YOU for writing such an amazing review...you are the sweetest! We appreciate your unending support more than we can ever even begin to say!

Volunteer

Rating: 5

Gavins Got Heart is a foundation started by incredible people with huge hearts that want to give back. Each fundraiser gives back to familys who are financially challeneged with high medical bills from children who have had surgeries related to the heart. The organization continues to grow and give back to people in need!

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gavinsgotheart 10/28/2013

You are so sweet Natalia to write such a kind review! Thank you so much for taking the time to do this...we appreciate your support more than we can put into words!

Vinny C.

Donor

Rating: 5

Sometimes donating to the big charities gives us comfort bc we gave to a noble "cause", but Gavin's Got Heart gives us a whole other level of piece of mind and comfort. The recipient of our donation has a face, a pulse and a family who's lives are truly affected for the better because Gavin's Got Heart exists.

This is a remarkable charity run by even more remarkable and caring people, who are changing lives family by family. Learn more about this organization and how it mends little hearts with great big ones.

Keep up the good work.

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gavinsgotheart 10/28/2013

Thank you SO much Vinny for taking the time to write this review and for all of your kind words! We appreciate it more than we can begin to express!

Andrea79

General Member of the Public

Rating: 5

I have attended both of the annual summer fundraiser's hosted by Nicole and Gregg, my neighbors and friends. The evenings were run smoothly and professionally. They managed to raise an awareness to congenital heart disease while people had fun. To see their beautiful son Gavin run and play with a zest for life melts me! That's when you know its all worth the work.

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gavinsgotheart 10/28/2013

Thank you SO much Andrea for taking the time to write this kind review! We appreciate your support more than we can ever say!

Volunteer

Rating: 5

Gavin's Got Heart is a wonderful organization. They put their heart and soul completely in to all fundraising and educate people as well. Seeing the amount of work that goes in to raising money for a family with a child who has a congenital heart defect is absolutely beautiful, because of the personal attention each family gets. Gavin's Got Heart is an organization that I completely support!

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gavinsgotheart 10/28/2013

Thank you SO much Nicole for taking the time to write this kind review! Your support means the world to us and we appreciate it more than we can ever begin to express!

General Member of the Public

Rating: 5

Gavin's Got Heart provides support and education to families of children with Congenital Heart Defects. They also dedicate endless hours raising funds to help offset the costs of surgeries for these children.

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gavinsgotheart 10/28/2013

Thank you SO much for taking the time to write this kind review! We appreciate your support tremendously!