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FABRY SUPPORT & INFORMATION GROUP Overview
Fabry Support & Information Group (FSIG) is a 501(c)(3) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms and to improve the quality of life for those affected by Fabry. The FSIG website provides information and mutual self-help by linking patients and family members/caregivers. In this way members can support and encourage one another. An increased understanding of Fabry disease and emotional support may alleviate some of the burden associated with this rare disorder.
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My husband of 35 years of age had his 3rd stroke in May of 2012. He was sent to Barnes Jewish Hospital in St. Louis, MO. It was there where he was finally diagnosed with Fabry. The doctor being a stroke specialist did not know much about this disease except for what he found on the internet. ...
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