Down Syndrome Network

Rating: 5 stars   23 reviews

Issues:

Location: 4025 East Chandler Boulevard Suite #70-C3 Phoenix AZ 85048 USA

Mission: Our mission at DSNetwork is to educate, support and advocate for those in our community whose lives are impacted by Down syndrome. DSNetwork is committed to providing a balance of life to those impacted by Down syndrome. DSNetwork will achieve this goal through an open, supportive and collaborative network that will connect individuals and families with needed resources and information.

Write a Review

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Community Reviews

3,364 Views
Rating: 5 stars  

DSNetwork is a great organization. They are able to support not only families with individuals with Down syndrome, but they provide information and programs to the community to better understand what Down syndrome is.

More Feedback

I've personally experienced the results of this organization in...

My oldest son has Down syndrome (DS). When we moved to Arizona, we were unsure as to what type of services were available. I was able to join the DSNetworkAZ Yahoo Forum which allowed for me to ask other families with individuals with DS for guidance and information as they pertained to pediatricians, dentists, therapists, schools, and all the other services that go hand-in-hand with having a child with different abilities.

If I had to make changes to this organization, I would...

DSNetwork relies on the generosity of those in the community in order to fund the various programs they offer. Please consider a donation of time or financial support to help DSNetwork to accomplishing their mission to educate, support, and advocate for those in the community whose lives are impacted by Down syndrome.

Rating: 5 stars  

10 people found this review helpful

Our middle son was born with DS and it was quite a shock. We were quickly introduced to a parents organization - Down Syndrome Network. We were impressed with the quality of the information and its members and joined the Board to help with growth and development. Since that time, DS Network has grown significantly and has secured the attention of many donors, healthcare providers and educatiors. The organization is building managerial depth and is poised for tremendous growth.

More Feedback

I've personally experienced the results of this organization in...

Information packets and seminars, speaking engagements, networking and advocacy opportunities

How frequently have you been involved with the organization?

About every week

When was your last experience with this nonprofit?

2010-6-01

1 previous review
Rating: 5 stars  

21 people found this review helpful

When my son was born we were overwhelmed upon learning he had Down syndrome. DS Network helped us navigate through the maze of government agencies and paperwork to start early intervention therapy and provided a forum for discussing issues with other parent. We immediately got involved with the organization and it has since grown into a group that educates teachers and parents, maintains a medical and education directors and has ambitions of building a DS center in Arizona. It is the best organization I have worked with and has helped our family immensely. I am proud to be a part of this organization.

More Feedback

I've personally experienced the results of this organization in...

the development of my son Casey (DS) through the sharing of ideas and expert testimony.

If I had to make changes to this organization, I would...

I am part of the group that runs this organization. :)

What I've enjoyed the most about my experience with this nonprofit is...

The positive outlook that members have toward their challenges and the growth and development of the kids and adults with Down syndrome.

The kinds of staff and volunteers that I met were...

Professional caring and dedicated. The best!

If this organization had 10 million bucks, it could...

open a DS center to provide therapy and a forum for advancing the development of individuals with Down syndrome.

Ways to make it better...

We had more funding and were able to do more!

In my opinion, the biggest challenges facing this organization are...

Funding for our lofty goals

One thing I'd also say is that...

Our organization takes its fiscal and professional responsibilities seriously, spends very little on administration. It is run largely by caring parents and volunteers; however, because those parents have diverse skills we have a professional management and leadership team.

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

20 people found this review helpful

DSN advocates for the protection of rights for my nephew who has DS. DSN's efforts have raised awareness about DS issues at the local and state as well as national levels. I fully support the aspirations of this organization.

More Feedback

I've personally experienced the results of this organization in...

local and national news broadcasts.

If I had to make changes to this organization, I would...

need more support.

What I've enjoyed the most about my experience with this nonprofit is...

seeing the DS community uplifted in the eyes of the public. DSN reminds our country about not just the needs but the benefits of supporting the DS community.

The kinds of staff and volunteers that I met were...

encouragers where encouragement is needed most.

If this organization had 10 million bucks, it could...

make the necessary changes to improve the lives of our DS families.

Ways to make it better...

I had more time to volunteer.

In my opinion, the biggest challenges facing this organization are...

financial resources.

One thing I'd also say is that...

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

21 people found this review helpful

DS Network is such an amazing organization. With all the cuts to EVERYTHING theraputic for our special needs children, they stepped up to the plate an are offering so many events to help in the growth and development of our kiddo's, with little or no cost. The parents and professionals involved are the most giving and charitable people I have ever come into contact with. Thank you all for your help and support, I only wish I would have found you sooner. Cheer's to a great future.

More Feedback

I've personally experienced the results of this organization in...

Everything they do is for the benefit of Down Syndrome research.

If I had to make changes to this organization, I would...

Keep doing what they do in remembering that Down Syndrome effects all races and religions and we need to be supportive of everyone and their needs.

What I've enjoyed the most about my experience with this nonprofit is...

The support on I can get 27/7.

The kinds of staff and volunteers that I met were...

The most genuine and caring of individuals wearing their hearts out on their sleeves.

If this organization had 10 million bucks, it could...

Help build an even brighter future for the Down Syndrome community.

Ways to make it better...

There were more events on Sunday's.

In my opinion, the biggest challenges facing this organization are...

Who has the cuttest picture, and where to place it on their web site.

One thing I'd also say is that...

We should have a contest to see who has the best way of raising contributions for the buddy walk. Thus far I believe Jason is the winner. Way to go Doc!

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

22 people found this review helpful

Down Syndrome Network is an amazing organization. The board members in this organization are incredibly well-informed and fantastic networkers. This group provides social events, educational events, national news, local news, as well as medical talks and information. This group supports DS research. The connecting of so many people with so much info. makes it a progressive group.

More Feedback

I've personally experienced the results of this organization in...

Spreading the news about best practices for working with students with Down syndrome.

What I've enjoyed the most about my experience with this nonprofit is...

I have made some incredible friendships.

If this organization had 10 million bucks, it could...

increase the educational functions so more people would know how to work with students with Down syndrome.

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

24 people found this review helpful

Down Syndrome Network has been there for me and my family right from the start! My son, Jacob, was born with Down syndrome in April, 2006. We were shocked and saddened, and didn't know what to do first. Someone told me to call DSNetwork, and I'm so grateful that I did. Through this group, I have received so much helpful advice from other parents. I've been to educational seminars on a wide range of topics that are all helpful for raising my son. I've found a solid community of people to support me and for me to support as well. This group has been a huge help for us in so many ways!

More Feedback

I've personally experienced the results of this organization in...

The top notch speakers they bring into town to educate and support the families with DS children. Also, in the way DSNetwork promotes acceptance of individuals with DS in the community at large.

If I had to make changes to this organization, I would...

do all I could to promote it everywhere I went.

What I've enjoyed the most about my experience with this nonprofit is...

I've enjoyed the family fun events where we can get together with other families and meet their children as well. I really enjoy the pride I feel about my son in a community that really promotes acceptance.

The kinds of staff and volunteers that I met were...

Excellent! All are very caring, strong, and helpful. It's a close knit group in which we all support each other.

If this organization had 10 million bucks, it could...

Open up a center to support the DS community. This center could be a place for these individuals to go for therapy, socials, support, etc. It would be great!

Ways to make it better...

My experiences are great. I think they'll get even better as DSNetwork gets more funds to support their dreams of an actual center for support.

In my opinion, the biggest challenges facing this organization are...

the budget cuts right now, and the tough economy. We have big ideas and great people willing to do them, but the money isn't there.

One thing I'd also say is that...

DSnetwork not only supports people with DS, but also includes others in the community in their workshops, etc.

When was your last experience with this nonprofit?

2009-5-01

Role: General Member of the Public
Rating: 5 stars  

24 people found this review helpful

This group was fun to watch in the Arizona State homecoming pareade. They looked like they were having so much fun. The children were so cute.

More Feedback

I've personally experienced the results of this organization in...

We are proud that they are associated with ASU.

If I had to make changes to this organization, I would...

The kinds of staff and volunteers that I met were...

friendly and fun.

Ways to make it better...

nothing

In my opinion, the biggest challenges facing this organization are...

One thing I'd also say is that...

When was your last experience with this nonprofit?

2008-10-01

Rating: 5 stars  

20 people found this review helpful

This organisation has been great in that it connects families together in the Phoenix area. I have had the opportunity to speak with people and share experience, knowlege as well as prideful and difficult times. I like it as a support, and in that way it has been of wonderful value to me and my family. L Johnson

More Feedback

I've personally experienced the results of this organization in...

Brining families together

If I had to make changes to this organization, I would...

not sure

What I've enjoyed the most about my experience with this nonprofit is...

responsive feedback

The kinds of staff and volunteers that I met were...

enjoyable to talk with

If this organization had 10 million bucks, it could...

make schools

Ways to make it better...

I lived closer to the city

In my opinion, the biggest challenges facing this organization are...

funding

One thing I'd also say is that...

cheers

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

18 people found this review helpful

When our son was born with Down syndrome, my husband and I had many questions and we were in need of information and support. I spoke with many people from this group after our son was born and started attending playgroups, workshops and other fun events. Our son has brought us many blessings including the people we have met and the information we have gained through DSNetwork.

More Feedback

I've personally experienced the results of this organization in...

a number of ways! New parents have received information and support that was crucial in getting through the first few months. Other families have received information on educational opportunities, playgroups, and social activities

What I've enjoyed the most about my experience with this nonprofit is...

gaining information and knowledge to help our son and other children born with disabilities

The kinds of staff and volunteers that I met were...

patient, kind, understanding and supportive

If this organization had 10 million bucks, it could...

Build a center where children and adults with Down syndrome and their families could receive support, therapy, and educational services. This center could also provide young adults with Down syndrome a place to work, meet others and socialize. This group could work within the community to raise awareness for Down syndrome, help others with disabilities, and make a difference in their community.

When was your last experience with this nonprofit?

2009-5-01

Rating: 5 stars  

20 people found this review helpful

When I joined up with Down Syndrome Network I was in need of opportunities to socialize as a family and feel acceptance. I craved education so I could feel confident in myself as a mom of a child with a disability who had abilities. I also desired a place where I could give back by share my talents. A few years later I am still socializing, gaining confidence and giving back as my talents develop. I greatly appreciate what Down Syndrome Network has provided as our family travels the wonderful journey of Down syndrome.

More Feedback

I've personally experienced the results of this organization in...

the lives of my family.

If I had to make changes to this organization, I would...

work just as hard to improve the lives of individuals with Down syndrome

What I've enjoyed the most about my experience with this nonprofit is...

the confidence I received to raise a child with a disability.

The kinds of staff and volunteers that I met were...

go getters and dedicated to their cause

If this organization had 10 million bucks, it could...

reach its goals.

Ways to make it better...

I had gotten involved earlier

In my opinion, the biggest challenges facing this organization are...

people who are prejudice of individuals with disabilities and funding to reach the larger goals.

One thing I'd also say is that...

having a child with Down syndrome is a big time opportunity for happiness and growth.

When was your last experience with this nonprofit?

2009-5-01

Write a Review for This Nonprofit

Far exceeds expectations
Exceeds expectations
Meets expectations
Below expectations
Far below expectations
Rate this nonprofit:
1000 characters left