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Phone: 800-337-9288
P.O. Box 7296
Florida 33468
2013 Top-rated nonprofits and charities

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Geographic areas served: We are a national organization in the United States but we have members in primarily English-speaking countries around the world.

Programs: Our organization began in 1978 and provides information packets and doctor referrals. We also have a newsletter providing accurate and timely information of interest to those exposed to DES.

The mission of DES Action is to identify, educate, empower, and advocate for DES-exposed individuals.
DES Action successfully advocated for continued DES research funding of the DES Follow-up Study carried out by the National Cancer Institute. We stay in touch with the researchers and share their results to inform those who need to know about health risks caused by DES exposure.

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Without DES action, information about this drug would not reach the mothers and daughters who have been devastated by the affects of taking it. Good work DES Action... more »
I am a DES daughter. My mother and I have both been members of DES Action for decades. We read all the newsletters, which are full of valuable information. I've passed some of it on to my daughters, who are DES granddaughters. I've also participated in the organization's online and email forums. It'... more »
DES Action is a 5-star organization. For over 25 years, it has always been there for me answering my questions, educating me about DES, and giving me the info I need to get the best possible health care available. It publishes a monthly newsletter entitled DES Action Voice which provides the ... more »
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