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Phone: 314-669-1104
5640 Telegraph Road, Suite 306
Saint Louis
Missouri 63129
USA
Website
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Target demographics: Children with eye cancer (retinoblastoma), their families and adult survivors.

Someone who had 3 hours of volunteer time could: 1) help a group of parents organise a social event for families affected by childhood eye cancer; .2) bake some goods to sell at a fundraising Daisy Bake;3) host a gift wrapping stall at Christmas to help raise awareness and funds.

Geographic areas served: National and international (primarily the developing world)

Programs: Retinoblastoma Family Groups: we aim to develop single-state and regional family groups across the USA, so that within five years, every family will have access to face-to-face support close to home. Each family group will provide a program of social activities, information for families, a small grants fund for families in need, and local advocacy.

National Retinoblastoma Strategy: we aim to develop a national collaborative multi-center approach to retinoblastoma care, encompassing awareness campaigns, evidence based medical care and family support initiatives to improve care for all affected children, adult survivors and their families in America.

Rati’s Challenge: In September 2006, Daisy’s Eye Cancer Fund launched Rati's Challenge to address the needs of families affected by retinoblastoma in Africa. The Kenya National Retinoblastoma Strategy was launched through this program in September 2008, to build a model for capacity building and sustainable care of children in developing countries.

One Rb World: We aim to promote international collaboration to advance high quality retinoblastoma research and delivery of effective care to all children around the world. Annual One Rb World working meetings inspire medical professionals and parent / survivor advocates to become engaged in collaborative work, and advance international sustainable projects that have capacity to rapidly improve awareness, clinical care and family support.

We work in full collaboration with DECF Chapters, prospering from shared experience and energy to keep our children at the heart of all we do.

Mission:
Increasing access to specialist care will bring the promise of life and sight to every child. This is the mission of Daisy's Eye Cancer Fund. We:

• Educate about retinoblastoma to achieve early diagnosis and rapid referral to specialist care;

• Empower medical teams to deliver sustainable high quality evidence-based care

• Enable family support programs that reduce burdens and improve access to essential care
Results:
• Awareness: we have hosted several successful awareness campaigns in collaboration with global awareness events in May and September.

• Family Support: we have built an incredible social network among affected families and survivors within and between Rb treatment centers, providing social support, advocacy and key information to improve treatment outcome and quality of life of affected children and families.

• One Rb World: in October 2012, we hosted the first global medical working meeting, discussing major challenges to effective care and potential solutions. 30 countries were represented (half of them developing nations). New partnerships have been formed and collaborative activities proposed that we will move forward over the next few years to improve awareness, clinical care and family support worldwide.

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11/01/13
My daughter has bilateral retinoblastoma and this organization is wonderful!!! When she was first diagnosed they made an awful situation that much better:) thank you... more »
10/31/13
This organization has been a tremendous help for my family in the months and year following my daughters diagnosis. I'm so great full for all the support and information this organization has lent to my family... more »
09/06/13
I became involved with this charity, like many people often do, after having a personal experience. My daughter was diagnosed with eye cancer shortly after being born in 2007. We were lucky in many ways and our precious child is wonderfully healthy and happy today. Still, the nightmare of those ... more »
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1) help a group of parents organise a social event for families affected by childhood eye cancer; .2) bake some goods to sell at a fundraising Daisy Bake;3) host a gift wrapping stall at Christmas to help raise awareness and funds. Volunteer

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