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Cranio Care Bears

Rating: 5 stars   107 reviews 4,179

Address:

PO Box 464 Mead CO 80542 USA

Mission:

Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results:

We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics:

Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year:

500-1,000

Geographic areas served:

Worldwide

2015 Top-Rated Nonprofit
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More Info

303-652-7795
www.CranioCareBears.org

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Reviews for Cranio Care Bears

Rating: 5 stars  

Cranio Care Bears offered us a tremendous amount of support at a time when we felt very much alone. Having a child diagnosed with a relatively rare condition is very isolating and it was so nice to have a group pull us in and offer support. The care package they sent for our daughter was a bright spot at a challenging time - it was so nice to have that extra support!

 
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Rating: 5 stars  

1 person found this review helpful

This group is amazing. We found out that our one month old son needed surgery in less than a months notice for something we had never heard of. This group helped educate us, connect us to a community of others who have been through the same thing and to top it all off, sent us the most thoughtful surgery care package that has me crying tears of joy that there are strangers out there willing to help support those in need without any asks back. I am so grateful and they have inspired me to pay it forward. XO

 
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Rating: 5 stars  

1 person found this review helpful

This group helped up get through the most difficult time in our child's life. they went above and beyond what I thought with their website and support package we felt more prepared for our difficult journey. I emailed question about recovery after the fact and was responded to within the day! I love cranio care bears!!

 
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Rating: 5 stars  

1 person found this review helpful

With something so stressful going on with my baby it was extremely comforting to have this care package arrive in time to make me feel prepared, comforted and not alone. These packages are put together by people who have been in my situation, they understand. I can't thank them enough!

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My grandson is afflicted with a rare form of craneosynostosis. I consider myself well educated, but I had never heard of this birth defect. Their information is enlightening and the help parents and caregivers receive is invaluable. This group is supportive and giving. I cannot thank them enough for the encouragement and support they have shown my daughter and her family as they navigate an unknown highway called Craneosynostosis.

 
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Rating: 5 stars  

2 people found this review helpful

A beautiful group who send love, help and care to so many.nothing is worse than laying your baby. Into the arms of a surgeon. They sent my grandson a care package free of charge all the way to Australia, filled with toys clothes, prayers and thing for mum too . I was so impressed I reimbursed them the money for postage and have donated in other ways too. They have a book that I have purchased to help my grandson and his big brother can understand craniosynostosid. They are always available with advice.n

 
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Rating: 5 stars  

2 people found this review helpful

When my daughter was diagnosed with craniosynostosis, I researched everything I could on it. I finally found craniocarebears! Through them I was able to see other people's stories and talk with them about their experiences! The creators of this organization kept in contact via email (without automated replies!) which meant so much more getting to know them on a personal level. Their care package meant so much to my daughter and me. The items were everything we would need at the hospital along with items to make my daughter smile in a not so happy time. Everything about this organization is wonderful and they will always hold a special place in our hearts! They are such great people with big hearts!

 
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Rating: 5 stars  

3 people found this review helpful

Cranio Care Bears is an awesome organization. When my son was diagnosed with cranisynostosis they mailed me a care pack with some many useful things. I felt like I had a great support system thatnks to them.

 
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Role: General Member of the Public
Rating: 5 stars  

1 person found this review helpful

My baby boy was diagnosed with sagittal and left coronal at birth as he was rather disfigured. The care package for his surgery was wonderful and uplifting, to think a charity in the US can send something to the UK for free is amazing. The items arrived when my friend was here and made her cry!! Thankyou for your support! Xx

 
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Rating: 5 stars  

2 people found this review helpful

My son was extremely late being diagnosed with a birth defect that should have been caught and surgically treated in infancy. As a result of it having been missed for almost 9 yrs my son has suffered many struggles from severe speech delay, language based learning disabilities, headaches by 8 yrs old and a serious academic regression at the start of grade three. Now suspected seizures. For yrs we suspected autism and had 3 psychological assessments done. He is nowhere on the spectrum. Almost 9 and still running for answers. Finally the scariest diagnosis. Skull reconstruction is the only thing to release the Internal pressure in his skull, hopefully releaving the pressure and stopping his debilitating headaches and allowing him for the first time, some quality of life.
This organization with their thoughtfulness and outreach of support at the scariest time of our lives, has helped make a scary and uncertain time, one that was a bit more uplifted with a light at the end of the tunnel.
There are no words to express the smile it brings to the face of a Mom facing such a difficult road ahead.
Cranio Care Bears, Thank You.

 
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