Over 1.8 million nonprofits and charities for donors, volunteers and funders

Cranio Care Bears

Rating: 5 stars   99 reviews 3,926

Nonprofit Issues:

Children & Youth, Health

Address:

PO Box 464 Mead CO 80542 USA

Mission:

Cranio Care Bears goal is to spread awareness, support & compassion through loving care packages to families of children facing surgery for craniosynostosis. Our care packages include items for the child & family to relieve the stress accompanying this very serious surgery. Cranio Care Bears also offers one on one support before, during & after surgery. We also strive to bring awareness of craniosynostosis to families & the medical community for early detection.

Results:

We send out around 80-100 care packages every month all over the world. We also mentor and support families before, during and after surgery. We have sent care packages to every state in the US and around 30+ countries.

Target demographics:

Worldwide babies and children from ages 0-15 years old with Craniosynostosis.

Direct beneficiaries per year:

500-1,000

Geographic areas served:

Worldwide

2013 Top-Rated Nonprofit
Write a Review
Donate
Invite Reviews Share This Nonprofit

See How 3Hrs Can Help

More Info

303-652-7795
www.CranioCareBears.org

Promote This Nonprofit

GreatNonprofits badges allow you to raise awareness of your favorite nonprofits on your own web sites!

Review this charity on
GreatNonprofits

Reviews for Cranio Care Bears

Role: General Member of the Public
Rating: 5 stars  

My baby boy was diagnosed with sagittal and left coronal at birth as he was rather disfigured. The care package for his surgery was wonderful and uplifting, to think a charity in the US can send something to the UK for free is amazing. The items arrived when my friend was here and made her cry!! Thankyou for your support! Xx

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My son was extremely late being diagnosed with a birth defect that should have been caught and surgically treated in infancy. As a result of it having been missed for almost 9 yrs my son has suffered many struggles from severe speech delay, language based learning disabilities, headaches by 8 yrs old and a serious academic regression at the start of grade three. Now suspected seizures. For yrs we suspected autism and had 3 psychological assessments done. He is nowhere on the spectrum. Almost 9 and still running for answers. Finally the scariest diagnosis. Skull reconstruction is the only thing to release the Internal pressure in his skull, hopefully releaving the pressure and stopping his debilitating headaches and allowing him for the first time, some quality of life.
This organization with their thoughtfulness and outreach of support at the scariest time of our lives, has helped make a scary and uncertain time, one that was a bit more uplifted with a light at the end of the tunnel.
There are no words to express the smile it brings to the face of a Mom facing such a difficult road ahead.
Cranio Care Bears, Thank You.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

My daughter was diagnosed with sagittal craniosynostosis at 3 months old. i came across this charity while trying to find some info which is very scarce.As us cranio moms know it is very hard to find information and support and this organization is doing just that, offering valid information to the anxious parents and showing that someone out there genuinely cares and is here to offer support and so much more. I personally know nobody that has gone through what i am with my child so real support is hard to find. These two woman are truly amazing. I am very appreciative!

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

When our son was diagnosed with sagittal craniosynostosis the day after he was born we were completely overwhelmed and distraught. We found Cranio Care Bears online and that was the beginning of feeling like we were not on this journey alone. Their website had success stories that made us feel supported and loved. Our son received his Cranio Care Bears package 10 days before his surgery and it brought us all to tears with the amount of generosity and caring that went into the package. It had clothes, blankets, toys, snacks for us, chap stick, and many more items. Most amazingly it included hand written ribbons that formed a beautiful prayer chain that we could place on our sons bed as well as advice on what to pack. They really go above and beyond and the love they spread is amazing.

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

Our son was diagnosed with Craniosynostosis, but we were pretty sure that was what was going on before the diagonisis through our own research. We found Cranio Care Bears and what a great organization it is! The support they give to families during such a stressful and scary time is invaluable. They make it so easy to donate back and when you do it, you know exactly how you are helping others who are in the same boat as you!

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

They have provided so much information that we need in a time that is very scary. Thank you Cranio Care Bears!

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

My granddaughter was diagnosed with metopic craniosynotosis when she was 10 months old. She had her operation just after her first birthday. The time in between and shortly after her surgery was very scary. We never knew about Cranio problems but we came across Cranio Care Bears when searching for answers. Not only are they educational but they send care packages that are crammed with items for baby and the parents. Cranio Care Bears is a Godsend to anyone with a family member facing Cranio surgery. They are angels in disguise.

Was this review helpful? 
Rating: 5 stars  

1 person found this review helpful

Amazing organization! They help out cranio families by sending packages with prayer chains, candy, toiletries, pjs for kiddos, and many other things at no cost

Was this review helpful? 
Rating: 5 stars  

3 people found this review helpful

Their care packages not only come with a lot of hospital essentials, they come full of love and hope. My husband and I were both brought to tears when we received our package. We were both so scared, but receiving this package, and reading the countless Cranio journeys assured us that we were not alone, & that our baby boy would be okay! THANK YOU FOR ALL YOU DO!

Was this review helpful? 
Rating: 5 stars  

2 people found this review helpful

I can't thank Cranio Care Bears enough for the prayer, support, and our awesome care package during this time in my family's life. Cranio Care Bears was one of the first sites I stumbled upon while researching my son's craniosysnostosis--which I had never even heard of prior to his diagnosis. It was a pretty frightening time for us. Their site had links to support groups and info on Cranio. They prayed for my son from the very beginning when we were getting the confirmation CT scan to the day he actually had his surgery. I can't explain how important that support was for us--we weren't alone in any of this. The care packages are phenomenal! They are so thoughtful and practical. Our family has never had to experience a surgery before, this was all new. The packages include items for during and after the surgery that only an experienced parent would know you'd need--and so generous, and filled to the brim with encouragement and love. In our particular case, we were in a bit of a financial bind at the time of our son's surgery, so our package was a real blessing to us. I will always hold Cranio Care Bears dear. Thank you to everyone--from the donors, to the volunteers, to the fellow families who offer thoughts and prayers for each others' children through their surgeries. This is wonderful non-profit group.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2014

Was this review helpful?